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Consent Forms in Genomics : The Difference between Law and Practice

Autor: Boddington, Paula, Curren, Liam, Kaye, Jane, Kanellopoulou, Nadja, Melham, Karen, Gowans, Heather, Hawkins, Naomi

Publikováno v: European Journal of Health Law, 2011 Jan 01. 18(5), 491-519.

Externí odkaz: https://www.jstor.org/stable/48730622

The Path Forward for DNA Data

Autor: Boddington, Paula, Hawkins, Naomi, Heeney, Catherine, De Vries, Jantina, Kaye, Jane

Publikováno v: Science, 2008 Nov . 322(5905), 1186-1187.

Externí odkaz: https://www.jstor.org/stable/20145305

Qualitative Interview Study of the Role of Patents in the Development and Delivery of Non-invasive Prenatal Diagnosis, 2014-2019

Autor: Hawkins, Naomi

These qualitative interviews explore the influence of patents on practice at a ���micro��� level, that is, how patents and beliefs about patents influence the practice of those who are actually involved in translational research. The focu

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::c2a6a72a2de199fbca48fcd692413136

Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics

Autor: Carrieri, Daniele, Howard, Heidi C, Benjamin, Caroline, Clarke, Angus J, Dheensa, Sandi, Doheny, Shane, Hawkins, Naomi, Halbersma-Konings, Tanya F, Jackson, Leigh, Kayserili, Hülya, Kelly, Susan E, Lucassen, Anneke M, Mendes, Álvaro, Rial-Sebbag, Emmanuelle, Stefánsdóttir, Vigdís, Turnpenny, Peter D, van El, Carla G, van Langen, Irene M, Cornel, Martina C, Forzano, Francesca, European Society of Human Genetics

Publikováno v: European Journal of Human Genetics, 27(2), 169-182. Nature Publishing Group
2018, ' Recontacting patients in clinical genetics services : recommendations of the European Society of Human Genetics ', European Journal of Human Genetics . https://doi.org/10.1038/s41431-018-0285-1
European Journal of Human Genetics
Carrieri, D, Howard, H C, Benjamin, C, Clarke, A J, Dheensa, S, Doheny, S, Hawkins, N, Halbersma-Konings, T F, Jackson, L, Kayserili, H, Kelly, S E, Lucassen, A M, Mendes, Á, Rial-Sebbag, E, Stefánsdóttir, V, Turnpenny, P D, van El, C G, van Langen, I M, Cornel, M C, Forzano, F & European Society of Human Genetics 2019, ' Recontacting patients in clinical genetics services : recommendations of the European Society of Human Genetics ', European Journal of Human Genetics, vol. 27, no. 2, pp. 169-182 . https://doi.org/10.1038/s41431-018-0285-1

Technological advances have increased the availability of genomic data in research and the clinic. If, over time, interpretation of the significance of the data changes, or new information becomes available, the question arises as to whether recontac

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::182439d614ce8910fb799744ffc5eaef
https://research.rug.nl/en/publications/930ec34b-9bb9-4c21-b7c0-221e979a9b2f