Which diabetes specific patient reported outcomes should be measured in routine care? A systematic review to inform a core outcome set for adults with Type 1 and 2 diabetes mellitus: The European Health Outcomes Observatory (H2O) programme

Autor: Hamilton, Kathryn, Forde, Rita, Due-Christensen, Mette, Eeg-Olofson, Katarina, Nathanson, David, Rossner, Sophia, Vikstrom-Greve, Sara, Porth, Ann-Kristin, Seidler, Yuki, Kautzky-Willer, Alexandra, Delbecque, Laure, Ozdemir Saltik, Asli Zeynep, Hasler, Yvonne, Flores, Vanesa, Stamm, Tanja, Hopkins, David, Forbes, Angus

Publikováno v: In Patient Education and Counseling November 2023 116

Which patient reported outcomes should be measured in routine diabetes care? A systematic review to inform an international core outcome set for diabetes care

Autor: Hamilton, Kathryn, Forde, Rita, Due-Christensen, Mette, Eeg-Olofson, Katarina, Nathanson, David, Rossner, Sophia, Vikstrom-Greve, Sara, Porth, Ann-Kristin, Seidler, Yuki, Kautzky-Willer, Alexandra, Delbecque, Laure, Ozdemir Saltik, Asli Zeynep, Hasler, Yvonne, Flores, Vanesa, Stamm, Tanja, Hopkins, David, Forbes, Angus

Pre-print of asystematic literature review toidentify candidate patient reported outcomes with potential to inform individual patient care and service development for inclusion in a digital outcome set to be collected in routine diabetes care.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0ffc7a86302506d91bb5c50515f86b89

Development of a harmonised core outcome set for more personalised care of patients with diabetes: results of a multi-country Delphi study

Autor: Porth, Ann-Kristin, Huberts, Anouk S., Rogge, Alizé, Bénard, Angèle H.M., Forbes, Angus, Strootker, Anja, Hurtado Del Pozo, Carmen, Kownatka, Dagmar, Hopkins, David, Nathanson, David, Soderberg, Jeanette, Eeg-Olofsson, Katarina, Hamilton, Kathryn, Delbecque, Laure, Ninov, Lyudmil, Due-Christensen, Mette, Leutner, Michael, Vikstrom-Greve, Sara, Rössner, Sophia, Seidler, Yuki, Hasler, Yvonne, Stamm, Tanja, Kautzky-Willer, Alexandra

Collecting patient-reported outcomes (PROs) in a standardised way and integrating them with clinical data can empower patients and support diabetes care. We sought to develop a patient-centred core outcome set (COS) to be used in routine diabetes car

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::322f03923b8539aaec29c7241e3ed511

Standardising personalised diabetes care across European health settings: A person-centred outcome set agreed in a multinational Delphi study.

Autor: Porth AK; Department of Internal Medicine III, Divison of Endocrinology and Metabolism, Medical University Vienna, Vienna, Austria., Huberts AS; Department of Quality and Patientcare, Erasmus University Medical Center, Rotterdam, The Netherlands., Rogge A; Charité Center for Patient-Centered Outcomes Research, Department of Psychosomatic Medicine, Center for Internal Medicine and Dermatology, Charité - Universitätsmedizin Berlin, Berlin, Germany., Bénard AHM; Vall d'Hebron Institute of Research (VHIR), Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain., Forbes A; Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Kings College London, London, UK., Strootker A; Medtronic International Trading Sàrl, Tolochenaz, Switzerland., Del Pozo CH; JDRF International, New York, New York, USA., Kownatka D; Roche Diabetes Care GmbH, Mannheim, Germany., Hopkins D; Department of Diabetes, King's College London, London, UK.; Institute for Diabetes, Endocrinology and Obesity, King's Health Partners, London, UK., Nathanson D; Department of Medicine, Karolinska Institutet, Karolinska University Hospital Huddinge, Huddinge, Sweden., Aanstoot HJ; Diabeter, Center for Focussed Diabetes Care and Research, Rotterdam, The Netherlands., Soderberg J; JDRF International, New York, New York, USA., Eeg-Olofsson K; Department of Molecular and Clinical Medicine, Institute of Medicine, University of Gothenburg, Göteborg, Sweden.; National Diabetes Register, Göteborg, Sweden., Hamilton K; Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Kings College London, London, UK., Delbecque L; Eli Lilly and Company, Indianapolis, Indiana, USA., Ninov L; European Patients' Forum (EPF), Brussels, Belgium., Due-Christensen M; Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Kings College London, London, UK., Leutner M; Department of Internal Medicine III, Divison of Endocrinology and Metabolism, Medical University Vienna, Vienna, Austria., Simó R; Vall d'Hebron Institute of Research (VHIR), Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain.; Centro de Investigación Biomédica en Red Instituto de Salud Carlos III (CIBERDEM (ISCIII)), Madrid, Spain.; Vall d'Hebron University Hospital, Barcelona, Spain.; Autonomous University of Barcelona, Barcelona, Spain., Vikstrom-Greve S; Department of Medicine, Karolinska Institutet, Karolinska University Hospital Huddinge, Huddinge, Sweden., Rössner S; Department of Medicine, Karolinska Institutet, Karolinska University Hospital Huddinge, Huddinge, Sweden., Flores V; Vall d'Hebron Institute of Research (VHIR), Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain.; Vall d'Hebron University Hospital, Barcelona, Spain., Seidler Y; Section for Outcomes Research, Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria., Hasler Y; Medtronic International Trading Sàrl, Tolochenaz, Switzerland., Stamm T; Section for Outcomes Research, Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria.; Ludwig Boltzmann Institute for Arthritis and Rehabilitation, Vienna, Austria., Kautzky-Willer A; Department of Internal Medicine III, Divison of Endocrinology and Metabolism, Medical University Vienna, Vienna, Austria.

Publikováno v: Diabetic medicine : a journal of the British Diabetic Association [Diabet Med] 2024 May; Vol. 41 (5), pp. e15259. Date of Electronic Publication: 2023 Nov 28.