Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review

Autor: Hannah May Scott, Debbie Braybrook, Daney Harðardóttir, Clare Ellis-Smith, Richard Harding, On behalf of C-POS

Publikováno v: Health and Quality of Life Outcomes, Vol 21, Iss 1, Pp 1-46 (2023)

Abstract Background Person-centred outcome measures (PCOMs) are commonly used in routine adult healthcare to measure and improve outcomes, but less attention has been paid to PCOMs in children’s services. The aim of this systematic review is to ide

Externí odkaz: https://doaj.org/article/263d473fe83645ee832682a4cfa48278

COVID-19: Impact on Pediatric Palliative Care

Autor: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Harðardóttir, Katherine Bristowe, Clare Ellis-Smith, Irene Higginson, Wei Gao, Myra Bluebond-Langner, Bobbie Farsides, Fliss EM Murtagh, Lorna K Fraser, Richard Harding

Publikováno v: Scott, H M, Coombes, L, Braybrook, D, Roach, A, Harðardóttir, D, Bristowe, K, Ellis-Smith, C, Higginson, I, Gao, W, Bluebond-Langner, M, Farsides, B, Murtagh, F EM, Fraser, L K & Harding, R 2022, ' COVID-19 : Impact on Pediatric Palliative Care ', Journal of pain and symptom management, vol. 64, no. 1, pp. e1-e5 . https://doi.org/10.1016/j.jpainsymman.2022.02.330

Context: Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. Objecti

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::85570622156fc5dabfcc8249aea871e5
https://doi.org/10.1016/j.jpainsymman.2022.02.330