Healthcare providers' expected barriers and facilitators to the implementation of person‐centered long‐term follow‐up care for childhood cancer survivors: A PanCareFollowUp study

Autor: Dionne Breij, Lars Hjorth, Eline Bouwman, Iris Walraven, Tomas Kepak, Katerina Kepakova, Riccardo Haupt, Monica Muraca, Irene Göttgens, Iridi Stollman, Jeanette Falck Winther, Anita Kienesberger, Hannah Gsell, Gisela Michel, Nicole Blijlevens, Saskia M. F. Pluijm, Katharina Roser, Roderick Skinner, Marleen Renard, Anne Uyttebroeck, Cecilia Follin, Helena J. H. van derPal, Leontien C. M. Kremer, Jaqueline Loonen, Rosella Hermens, the PanCareFollowUp Consortium

Publikováno v: Cancer Medicine, Vol 13, Iss 20, Pp n/a-n/a (2024)

Abstract Background Childhood cancer survivors face high risks of adverse late health effects. Long‐term follow‐up care for childhood cancer survivors is crucial to improve their health and quality of life. However, implementation remains a chall

Externí odkaz: https://doaj.org/article/4ea6db853f5d48d7be847cec97b926fc

From long-term follow-up Recommendations for clinical practice to plain language summaries for childhood, adolescent, and young adult cancer survivors

Autor: Selina R. van den Oever, Tessa Fuchs, Gill A. Levitt, Riccardo Haupt, Renée L. Mulder, Ana Amariutei, Edit Bardi, Tom Becker, Morven Brown, Hannah Gsell, Jaap den Hartogh, Samira Essiaf, Monica Muraca, Emma Potter, Carina Schneider, Elaine Sugden, Zuzana Tomášiková, Herma Vermeulen, Leontien C.M. Kremer, Roderick Skinner, Helena J.H. van der Pal

Publikováno v: EJC Paediatric Oncology, Vol 3, Iss , Pp 100165- (2024)

Background: Having sufficient knowledge of cancer diagnosis, treatment and late effects in survivors of childhood, adolescent, and young adult (CAYA) cancer is important for effective self-management and optimising health outcomes. Therefore, in coll

Externí odkaz: https://doaj.org/article/3732033e0e034e64a6b4a81507279590

IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey

Autor: Ismay A E de Beijer, Selina R van den Oever, Eliana Charalambous, Giorgio Cangioli, Julia Balaguer, Edit Bardi, Marie Alfes, Adela Cañete Nieto, Marisa Correcher, Tiago Pinto da Costa, Alexander Degelsegger-Márquez, Vanessa Düster, Anna-Liesa Filbert, Desiree Grabow, Gerald Gredinger, Hannah Gsell, Riccardo Haupt, Maria van Helvoirt, Ruth Ladenstein, Thorsten Langer, Anja Laschkolnig, Monica Muraca, Saskia M F Pluijm, Jelena Rascon, Günter Schreier, Zuzana Tomášikova, Florian Trauner, Justas Trinkūnas, Kathrin Trunner, Anne Uyttebroeck, Leontien C M Kremer, Helena J H van der Pal, Catherine Chronaki

Publikováno v: Journal of Medical Internet Research, Vol 26, p e49910 (2024)

BackgroundTo overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of the Survivorship Passport (SurPass) has been invented. Within the European PanCareSurPass project, the semiautomated and

Externí odkaz: https://doaj.org/article/043dbf50e7364bdbb55da057a5c4b9c3

The European multistakeholder PanCareFollowUp project:novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers

Autor: Rebecca J. van Kalsbeek, Helena J.H. van der Pal, Lars Hjorth, Jeanette F. Winther, Gisela Michel, Riccardo Haupt, Anne Uyttebroeck, Kylie O'Brien, Katerina Kepakova, Cecilia Follin, Monica Muraca, Tomas Kepak, Vera Araujo-Soares, Edit Bardi, Anne Blondeel, Eline Bouwman, Morven C. Brown, Line E. Frederiksen, Samira Essiaf, Rosella P.M.G. Hermens, Anita Kienesberger, Joke C. Korevaar, Luzius Mader, Marlies Mangelschots, Renée L. Mulder, Selina van den Oever, Mieke Rijken, Katharina Roser, Rod Skinner, Saskia M.F. Pluijm, Jacqueline J. Loonen, Leontien C.M. Kremer, Helena J.H. Van der Pal, Selina R. Van den Oever, Lill Eriksson, Thomas Relander, Jacob Engellau, Karin Fjordén, Karolina Bogefors, Anna Säll fors Holmqvist, Brigitte Nicolas, Francesca Bagnasco, Marina Benvenuto, Anna Aulicino, Luca Laudisi, Hana Hrstkova, Viera Bajciova, Marta Holikova, Lucie Strublova, Marleen Renard, Sandra Jacobs, Heidi Segers, Monique Van Helvoirt, Jeanette Falck Winther, Line Elmerdahl Frederiksen, Elisabeth Anne Wreford Andersen, Stefan Boes, Jacqueline Loonen, Rosella Hermens, Irene Göttgens, Iridi Stollman, Adriaan Penson, Roderick Skinner, William Sciberras, Joke Korevaar, Jaap Den Hartogh, Hannah Gsell, Carina Schneider, Jaap den Hartogh, Jeroen Te Dorsthorst

Publikováno v: van Kalsbeek, R J, van der Pal, H J H, Hjorth, L, Winther, J F, Michel, G, Haupt, R, Uyttebroeck, A, O'Brien, K, Kepakova, K, Follin, C, Muraca, M, Kepak, T, Araujo-Soares, V, Bardi, E, Blondeel, A, Bouwman, E, Brown, M C, Frederiksen, L E, Essiaf, S, Hermens, R, Kienesberger, A, Korevaar, J C, Mader, L, Mangelschots, M, Mulder, R L, van den Oever, S, Rijken, M, Roser, K, Skinner, R, Pluijm, S M F, Loonen, J J, Kremer, L C M & PanCareFollowUp Consortium 2021, ' The European multistakeholder PanCareFollowUp project : novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers ', European Journal of Cancer, vol. 153, pp. 74-85 . https://doi.org/10.1016/j.ejca.2021.05.030
European Journal of Cancer
European Journal of Cancer, 153, pp. 74-85
European journal of cancer, 153, 74-85. Elsevier
European Journal of Cancer, 153, 74-85

Background The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Euro

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ccb5b9d659a8d602b72aea9e3b84976c
https://pure.au.dk/portal/da/publications/the-european-multistakeholder-pancarefollowup-project(f7924e77-cee6-4b28-ad81-ee25cedd1c58).html