Zobrazeno 1 - 10
of 38
pro vyhledávání: '"Haley K. Sullivan"'
Autor:
Haley K. Sullivan, Skye A. Miner, Benjamin E. Berkman, Janet E. Hall, Will Schupmann, Jamie R. Glover, Shepherd H. Schurman
Publikováno v:
Genetics in medicine : official journal of the American College of Medical Genetics
Proposals to return medically actionable secondary genetic findings (SFs) in the clinical and research settings have generated controversy regarding whether to solicit individuals’ preferences about their “right not to know” genetic information
Autor:
Mikaela Matera‐Vatnick, Katherine W. Todman, Paul G. Wakim, Haley K. Sullivan, Carol Squires, Julie Brintnall‐Karabelas, Samuel N. Doernberg, Marion Danis
Publikováno v:
Ethicshuman researchReferences. 44(2)
Occasionally, the ability of prospective research participants to consent may be uncertain. Yet standardized capacity-assessment tools may not suffice to determine the ability to consent to a particular research protocol. This study consisted of a re
Autor:
Benjamin E. Berkman, Haley K. Sullivan
Publikováno v:
Viral Sovereignty and Technology Transfer ISBN: 9781108676076
Viral Sovereignty and Technology Transfer
Viral Sovereignty and Technology Transfer
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::29ae3243b4c0c77fb8a4d5ba73b49585
https://doi.org/10.1017/9781108676076.006
https://doi.org/10.1017/9781108676076.006
Autor:
Lisa Diller, Ann Chen Wu, Natasha K. Stout, Haley K. Sullivan, Jennifer M. Yeh, Grace O’Brien, Kurt D. Christensen
Publikováno v:
JAMA Network Open
Newborn population-based genetic screening may reduce pediatric cancer deaths and could be cost-effective.1 Testing siblings of newborns with variants (ie, cascade testing) could further improve population health.2 Economic studies of cascade testing
Autor:
Benjamin E. Berkman, Paul Wakim, Haley K. Sullivan, Kathi Huddleston, Barbara B. Biesecker, Michelle J. Bayefsky, Sara Chandros Hull
OBJECTIVE: To assess pregnant women’s views and preferences on noninvasive prenatal whole genome sequencing. METHODS: A survey was offered to 805 pregnant women receiving prenatal care in practices affiliated with a large, tertiary care maternity h
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::85e067aba0c9605e98b5f0bc628f9990
https://europepmc.org/articles/PMC6389368/
https://europepmc.org/articles/PMC6389368/
Publikováno v:
AJOB Neuroscience. 8:71-73
Goering and colleagues (2017) discuss concerns about agency and identity in the context of closed-loop deep brain stimulation (DBS), proposing that a relational model of agency helps us think about...
Autor:
Haley K. Sullivan, Benjamin E. Berkman
Publikováno v:
The Hastings Center report. 48(3)
Much new global genetic research employs whole genome sequencing, which provides researchers with large amounts of data. The quantity of data has led to the generation and discovery of more incidental or secondary findings and to vigorous theoretical
Publikováno v:
The American journal of bioethics : AJOB. 17(7)
The recent Common Rule revision process took almost a decade and the resulting changes are fairly modest, particularly when compared to the ambitious ideas proposed in the advance notice of proposed rulemaking (ANPRM) and notice of proposed rulemakin
Publikováno v:
The American Journal of Bioethics. 18:96-97
Many research ethics consultations pertain to whether a study is approvable under existing regulations. Sometimes, studies are ethically appropriate yet still conflict with regulations. Using the P...
Publikováno v:
Ethics & Human Research. Jul2022, Vol. 44 Issue 4, p33-33. 1p.