Zobrazeno 1 - 3
of 3
pro vyhledávání: '"Gunilla Jaeger"'
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-13 (2022)
Abstract Background Ågrenska, a Swedish national centre for rare diagnoses and health conditions, has arranged courses for families of children with rare diagnoses for over thirty years, and has experienced that the conditions often have complex and
Externí odkaz:
https://doaj.org/article/fd34299ddf0742629e80f07ad740c08f
Publikováno v:
Orphanet journal of rare diseases. 17(1)
Background Ågrenska, a Swedish national centre for rare diagnoses and health conditions, has arranged courses for families of children with rare diagnoses for over thirty years, and has experienced that the conditions often have complex and varying
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::82bd91954e455956e11542cea128c393
https://pubmed.ncbi.nlm.nih.gov/35413929
https://pubmed.ncbi.nlm.nih.gov/35413929
Publikováno v:
Disability and health journal. 8(1)
Many rare diagnoses are syndromes that have complex consequences with a significant impact on the individuals' everyday life. Adults with rare diagnoses are a growing group and knowledge about their needs is often scarce.The objective was to investig
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::eb1dac89479e28d33a929f541197c53b
https://pubmed.ncbi.nlm.nih.gov/25164983
https://pubmed.ncbi.nlm.nih.gov/25164983