From clinical competence to human connection: A reflective journey to patient‐centred care

Autor: David Gringras

Publikováno v: Lifestyle Medicine, Vol 5, Iss 2, Pp n/a-n/a (2024)

Abstract Introduction This reflective essay explores a medical student's evolving understanding of the relative roles of technical and interpersonal skills in shaping the patient experience. Methods The author's personal reflections on the relative r

Externí odkaz: https://doaj.org/article/6c2038bb76524d88ac52c9579957c866

P17 Case Report of Common Occurrence of Narcolepsy Type 1 and Myasthenia Gravis in Adolescent Girl

Autor: Paul Gringras, Heinz Jungbluth, Thomas Rossor, Thomas Maycock, Maria Vanegas

Publikováno v: BMJ Open Respiratory Research, Vol 10, Iss Suppl 1 (2023)

Externí odkaz: https://doaj.org/article/65b02c409d7a4e48885579a9df14a91c

The impact of parent treatment preference and other factors on recruitment: lessons learned from a paediatric epilepsy randomised controlled trial

Autor: Bernie Carter, Lucy Bray, Nadia al-Najjar, Agnès Tort Piella, Catrin Tudur-Smith, Catherine Spowart, Amber Collingwood, Holly Crudgington, Janet Currier, Dyfrig A. Hughes, Eifiona Wood, Rachael Martin, Christopher Morris, Deborah Roberts, Alison Rouncefield-Swales, Heather Sutherland, Victoria Watson, Georgia Cook, Luci Wiggs, Paul Gringras, Deb Pal

Publikováno v: Trials, Vol 24, Iss 1, Pp 1-9 (2023)

Abstract Background In paediatric epilepsy, the evidence of effectiveness of antiseizure treatment is inconclusive for some types of epilepsy. As with other paediatric clinical trials, researchers undertaking paediatric epilepsy clinical trials face

Externí odkaz: https://doaj.org/article/07d0faba807b46b9bc1bed2c6a3b8ac5

Tento výsledek nelze pro nepřihlášené uživatele zobrazit.
K zobrazení výsledku je třeba se přihlásit.

Pharmacological management of narcolepsy in children and adolescents.

Autor: Plazzi G; IRCCS Istituto delle Scienze Neurologiche di Bologna, Bologna, Italy.; University of Modena and Reggio Emilia, Modena, Italy., Pizza F; IRCCS Istituto delle Scienze Neurologiche di Bologna, Bologna, Italy.; Department of Biomedical and Neuromotor Sciences (DIBINEM), University of Bologna, Bologna, Italy., Lecendreux M; Pediatric Sleep Disorders Center, AP-HP, Robert Debre Hospital, Paris, France.; National Reference Centre for Orphan Diseases, Narcolepsy, Idiopathic Hypersomnia and Kleine-Levin Syndrome, Paris, France., Gringras P; Children's Sleep Medicine Kings College, London, UK., Barateau L; National Reference Centre for Orphan Diseases, Narcolepsy, Idiopathic Hypersomnia, and Kleine-Levin Syndrome, Gui-de-Chauliac Hospital, CHU Montpellier, Montpellier, France.; Institute of Neurosciences of Montpellier, University of Montpellier, INSERM, Montpellier, France., Bruni O; Department of Developmental and Social Psychology, Sapienza University, Rome, Italy., Franco P; Pediatric Sleep Unit and National Reference Center for Narcolepsy, Mother-Children's Hospital, Hospices Civils de Lyon & U1028, Lyon Neuroscience Research Center (CRNL), University Lyon 1, Lyon, France.; National Reference Centre for Orphan Diseases, Narcolepsy, Idiopathic Hypersomnia, and Kleine-Levin Syndrome Lyon, Lyon, France., Iranzo A; Neurology Service, Sleep Disorders Centre, Hospital Clínic Barcelona, Universitat de Barcelona. IDIBAPS, CIBERNED: CB06/05/0018-ISCIII, Barcelona, Spain., Jennum P; Danish Center for Sleep Medicine, Department of Clinical Neurophysiology, Copenhagen, Denmark., Khatami R; Center for Sleep Medicine, Sleep Research and Epileptology, Clinic Barmelweid AG, Barmelweid, Switzerland.; Department of Neurology, Inselspital, Bern University Hospital and University of Bern, Bern, Switzerland., Knudsen-Heier S; Norwegian Center for Neurodevelopmental Disorders and Hypersomnias - NevSom, Department of Rare Disorders, Oslo University Hospital, Oslo, Norway.; Institute of Clinical Medicine, University of Oslo, Oslo, Norway., Miano S; Neurocenter of Southern Switzerland, Faculty of Biomedical Sciences, Università della Svizzera Italiana, Sleep Medicine Unit, Civic Hospital, Lugano, Switzerland., Nobili L; Child Neuropsychiatry Unit, IRCCS Istituto G. Gaslini, Genoa, Italy.; Department of Neuroscience - Rehabilitation - Ophthalmology - Genetics - Child and Maternal Health (DINOGMI), University of Genova, Genoa, Italy., Partinen M; Department of Neurosciences, Clinicum, University of Helsinki, Helsinki, Finland.; Helsinki Sleep Clinic, Terveystalo Healthcare, Helsinki, Finland., Reading P; Department of Neurology, The James Cook University Hospital, Middlesbrough, UK., Sonka K; Department of Neurology and Center for Clinical Neuroscience, First Faculty of Medicine, Charles University and General University Hospital in Prague, Prague, Czech Republic., Szakacs A; Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatrics, Halmstad County Hospital, Halmstad, Sweden., Zenti M; Associazione Italiana Narcolettici e Ipersonni, Florence, Italy.; European Narcolepsy Alliance for Patients, Bruxells, Belgium., Kallweit U; Center for Narcolepsy and Hypersomnias, Professorship for Narcolepsy and Hypersomnolence Research, Department of Medicine, University Witten/Herdecke, Witten, Germany.; Center for Biomedical Education and Research (ZBAF), University Witten/Herdecke, Witten, Germany., Lammers GJ; Stichting Epilepsie Instellingen Nederland (SEIN), Sleep-Wake Center, Heemstede, Netherlands.; Department of Neurology, Leiden University Medical Centre, Leiden, Netherlands., Dauvilliers Y; National Reference Centre for Orphan Diseases, Narcolepsy, Idiopathic Hypersomnia, and Kleine-Levin Syndrome, Gui-de-Chauliac Hospital, CHU Montpellier, Montpellier, France.; Institute of Neurosciences of Montpellier, University of Montpellier, INSERM, Montpellier, France., Bassetti CLA; Medical Faculty, University of Bern, Bern, Switzerland.; Department of Neurology, University Hospital (Inselspital), Bern, Switzerland.

Publikováno v: Journal of sleep research [J Sleep Res] 2024 Aug; Vol. 33 (4), pp. e14055. Date of Electronic Publication: 2023 Dec 04.