Zobrazeno 1 - 10 of 147 pro vyhledávání: '"Graeme Laurie"'
1
Akademický článek
Clarifying how to deploy the public interest criterion in consent waivers for health data and tissue research
Autor: G. Owen Schaefer, Graeme Laurie, Sumytra Menon, Alastair V. Campbell, Teck Chuan Voo
Publikováno v: BMC Medical Ethics, Vol 21, Iss 1, Pp 1-10 (2020)
Abstract Background Several jurisdictions, including Singapore, Australia, New Zealand and most recently Ireland, have a public interest or public good criterion for granting waivers of consent in biomedical research using secondary health data or ti
Externí odkaz: https://doaj.org/article/91b983562d1846ce95236f7c81d4e803
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2
Akademický článek
Biomedicine, self and society: An agenda for collaboration and engagement [version 1; referees: 2 approved]
Autor: Martyn Pickersgill, Sarah Chan, Gill Haddow, Graeme Laurie, Devi Sridhar, Steve Sturdy, Sarah Cunningham-Burley
Publikováno v: Wellcome Open Research, Vol 4 (2019)
The commitment of massive resources – financial, social, organisational, and human – drives developments in biomedicine. Fundamental transformations in the generation and application of knowledge are challenging our understandings and experiences
Externí odkaz: https://doaj.org/article/a50abf902d54429eb4ef0e09cc86f07c
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3
Akademický článek
From a culture of caution to a culture of confidence: facilitating the good governance of administrative data in the UK
Autor: Leslie Stevens, Graeme Laurie
Publikováno v: International Journal of Population Data Science, Vol 1, Iss 1 (2017)
ABSTRACT Objectives This talk unpacks the culture of caution surrounding the use and sharing of administrative data in the UK and suggests the adoption of the authors’ novel decision-making tool and organisational strategy based on the public in
Externí odkaz: https://doaj.org/article/9364ce3834bd4049b1c6c0cdcc89cc95
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4
Akademický článek
The other side of the coin: harm due to the non-use of health-related data
Autor: Kerina Jones, Graeme Laurie, Leslie Stevens, Christine Dobbs, David Ford, Nathan Lea
Publikováno v: International Journal of Population Data Science, Vol 1, Iss 1 (2017)
ABSTRACT Objectives It is widely acknowledged that breaches and misuses of health-related data can have serious implications and consequently they often carry penalties. However, harm due to the omission of health data usage, or data non use, is a s
Externí odkaz: https://doaj.org/article/4345aabd5310457ea7d1700972d55a08
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5
Akademický článek
Should There Be an Obligation of Disclosure of Origin of Genetic Resources in Patent Applications? – Learning Lessons from Developing Countries
Autor: Graeme Laurie
Publikováno v: SCRIPTed: A Journal of Law, Technology & Society, Vol 2, Iss 2, Pp 265-272 (2005)
In the lead-up to two meetings in June 2005 which will address the question of whether there should be an obligation of disclosure of origin of genetic resources in patent applications, this paper uses the on-going international policy debate in this
Externí odkaz: https://doaj.org/article/2540a4748764456fb1c539b48fc66e79
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6
Elektronická kniha
Genetic Privacy : A Challenge to Medico-Legal Norms
Autor: Graeme Laurie
The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individua
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8
Beyond categorisation: refining the relationship between subjects and objects in health research regulation
Autor: Graeme Laurie, Annie Sorbie, Nayha Sethi, Catriona McMillan, Emily Postan, Edward S. Dove
Publikováno v: Law, Innovation and Technology
article-version (VoR) Version of Record
Mcmillan, C, Dove, E, Laurie, G, Postan, E, Sethi, N & Sorbie, A 2021, ' Beyond categorisation : Refining the relationship between subjects and objects in health research regulation ', Law, Innovation and Technology, vol. 13, no. 1, pp. 194-222 . https://doi.org/10.1080/17579961.2021.1898314
In this article, we argue that the relationship between 'subject' and 'object' is poorly understood in health research regulation (HRR), and that it is a fallacy to suppose that they can operate in separate, fixed silos. By seeking to perpetuate this
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cad41f22e8a4262e1a283e75c466d1e8
http://europepmc.org/articles/PMC8460358
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10
Fail to Prepare and you Prepare to Fail: the Human Rights Consequences of the UK Government’s Inaction during the COVID-19 Pandemic
Autor: Graeme Laurie, Edward S. Dove, Rhiannon Frowde
Publikováno v: Asian Bioethics Review
Frowde, R, Dove, E S & Laurie, G 2020, ' Fail to prepare and you prepare to fail : The human rights consequences of the UK Government’s inaction during the COVID-19 Pandemic ', Asian Bioethics Review . https://doi.org/10.1007/s41649-020-00151-1
As the sustained and devastating extent of the coronavirus disease 2019 (COVID-19) pandemic becomes apparent, a key focus of public scrutiny in the UK has centred on the novel legal and regulatory measures introduced in response to the virus. When th
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::54c45f20fe532c59f6d456e208db5cdb
http://europepmc.org/articles/PMC7604329
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