Výsledky vyhledávání

Akademický článek

Transition us together: development of a parent-centered toolkit to support adolescents with rheumatic disease transition to adult care

Autor: Dushnicky Molly J., Scott Jessica, McCauley Dayle, Gorter Jan Willem, Beattie Karen A., Batthish Michelle

Publikováno v: Journal of Transition Medicine, Vol 3, Iss 1, Pp 504-12 (2022)

While the transition period can be a difficult time for adolescents with chronic health conditions, parents also face challenges in understanding their changing role and how to support their children. To date, minimal interventions have focused on su

Externí odkaz: https://doaj.org/article/30c77e64ef6a477abc1c5d4025109a5d

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Akademický článek

The role of family adaptation in the transition to adulthood for youth with medical complexity: a qualitative case study protocol

Autor: Li Lin, Carter Nancy, Ploeg Jenny, Gorter Jan Willem, Strachan Patricia H.

Publikováno v: Journal of Transition Medicine, Vol 3, Iss 1, Pp 529-38 (2022)

For youth with medical complexity and their families, the transition to adulthood is a stressful and disruptive period that is further complicated by the transfer from relatively integrated and familiar pediatric services to more fragmented and unfam

Externí odkaz: https://doaj.org/article/c793ac5481b647b6a98559271c9bd730

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Akademický článek

Protocol of the BEST SIBS study: a qualitative case study to investigate the roles and responsibilities of siblings of youth with a neurodisability during health care transition

Autor: Nguyen Linda, Jack Susan M., Di Rezze Briano, Ketelaar Marjolijn, Gorter Jan Willem

Publikováno v: Journal of Transition Medicine, Vol 3, Iss 1, Pp 169-73 (2021)

Children and youth with neurodisabilities may experience different challenges during their transition to adulthood, such as pursuing postsecondary education, finding employment, and navigating a new adult health care system. Families, including sibli

Externí odkaz: https://doaj.org/article/66daee81f2b945a38da18ccf3fed8517

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Akademický článek

The transition from pediatric to adult rheumatology care through creating positive and productive patient-provider relationships: an opportunity often forgotten

Autor: Semalulu Teresa, McColl Jeanine, Alam Arzoo, Thomas Steffy, Herrington Julie, Gorter Jan Willem, Cellucci Tania, Garner Stephanie, Heale Liane, Matsos Mark, Beattie Karen A., Batthish Michelle

Publikováno v: Journal of Transition Medicine, Vol 3, Iss 1, Pp 1521-8 (2021)

The transition of patients with a chronic rheumatic disease from pediatric to adult care has been characterized by poor medical and patient-centered outcomes due to the lack of comprehensive transition programs and the paucity of evidence to guide pr

Externí odkaz: https://doaj.org/article/8ef480d0092c4421852c2c01264669ed

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Akademický článek

Experiences of youth with medical complexity and their families during the transition to adulthood: a meta-ethnography

Autor: Li Lin, Bird Marissa, Carter Nancy, Ploeg Jenny, Gorter Jan Willem, Strachan Patricia H.

Publikováno v: Journal of Transition Medicine, Vol 2, Iss 1, Pp 529-38 (2020)

Youth with medical complexity (YMC) are a small subset of youth who have a combination of severe functional limitations and extensive health service use. As these youth become adults, they are required to transition to adult health, education, and so

Externí odkaz: https://doaj.org/article/aad44af023f747b5992d9f92d9664c68

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Akademický článek

Transition of adolescents with congenital heart disease from pediatric to adult congenital cardiac care: lessons from a retrospective cohort study

Autor: Mondal Tapas K., Muddaluru Varun, Jaafar Ahmad, Gupta-Bhatnagar Shikha, Greville Lucas J., Gorter Jan Willem

Publikováno v: Journal of Transition Medicine, Vol 2, Iss 1, Pp 1890-900 (2020)

The transfer from pediatric to adult care is a key milestone for adolescents living with chronic health conditions. Over the past few decades, pediatric cardiac care has witnessed outstanding advancements leading to a dramatic increase in the number

Externí odkaz: https://doaj.org/article/c927f7e8977e4dbaa2d8410143c0416e

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Akademický článek

Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review

Autor: Freeman Matthew, Stewart Debra, Cunningham Charles E., Gorter Jan Willem

Publikováno v: Journal of Transition Medicine, Vol 1, Iss 1, Pp 469-80 (2018)

The transition to adulthood is a developmental phase which occurs as young people move from adolescence into adulthood. Young people with disabilities, including cerebral palsy (CP), and their families have reported challenges during the transition t

Externí odkaz: https://doaj.org/article/af2091525b844f0a9433108ac6cbcb7d

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Akademický článek

The use of the Rotterdam Transition Profile: 10 years in review

Autor: Zhang-Jiang Sofía, Gorter Jan Willem

Publikováno v: Journal of Transition Medicine, Vol 1, Iss 1, Pp 1307-14 (2018)

The aim of this literature review was to describe the use and utility of the Rotterdam Transition Profile (RTP), as we near the tenth year since its publication in 2008. It is a tool to summarize a youth’s transition process to adulthood by classif

Externí odkaz: https://doaj.org/article/0a2a01b7657941a19ddf3baddcf8ed59

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