The most problematic symptoms of prion disease - an analysis of carer experiences

Autor: Ford, Liz, Rudge, Peter, Robinson, Kathy, Collinge, John, Gorham, Michele, Mead, Simon

Objectives:\ud Prion diseases are rare dementias that most commonly occur sporadically, but can be inherited or acquired, and for which there is no cure. We sought to understand which prion disease symptoms are most problematic for carers, to inform

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=core_ac_uk__::7d98e738d1d34929fa0e15f1387fb3af
http://oro.open.ac.uk/57542/1/57542.pdf

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Invited.21: Stratified medicine approach in sporadic Creutzfeldt-Jakob disease greatly increases power in simulated clinical trials.

Autor: Mead, Simon, Burnell, Matthew, Lowe, Jessica, Lukic, Ana, Porter, Marie-Claire, Thompson, Andrew, Carswell, Christopher, Kaski, Diego, Kenny, Janna, Bjurgsrom, Nina, Gorham, Michele, Druyeh, Ron, Wadsworth, Jonathan, Brandner, Sebastian, Hyare, Harpreet, Walker, A. Sarah, Rudge, Peter, Collinge, John

Publikováno v: Prion; 2014 Supplement, Vol. 8, p10-10, 1/3p

The most problematic symptoms of prion disease - an analysis of carer experiences.

Autor: Ford L; NHS National Prion Clinic, National Hospital for Neurology and Neurosurgery, University College London (UCL) Hospitals NHS Foundation Trust, London, UK., Rudge P; NHS National Prion Clinic, National Hospital for Neurology and Neurosurgery, University College London (UCL) Hospitals NHS Foundation Trust, London, UK.; MRC Prion Unit at UCL, Institute of Prion Diseases, UCL, London, UK., Robinson K; The Open University, Milton Keynes, UK., Collinge J; NHS National Prion Clinic, National Hospital for Neurology and Neurosurgery, University College London (UCL) Hospitals NHS Foundation Trust, London, UK.; MRC Prion Unit at UCL, Institute of Prion Diseases, UCL, London, UK., Gorham M; NHS National Prion Clinic, National Hospital for Neurology and Neurosurgery, University College London (UCL) Hospitals NHS Foundation Trust, London, UK., Mead S; NHS National Prion Clinic, National Hospital for Neurology and Neurosurgery, University College London (UCL) Hospitals NHS Foundation Trust, London, UK.; MRC Prion Unit at UCL, Institute of Prion Diseases, UCL, London, UK.

Publikováno v: International psychogeriatrics [Int Psychogeriatr] 2019 Aug; Vol. 31 (8), pp. 1181-1190.