Addressing pain in people living with cystic fibrosis: Cystic fibrosis foundation evidence-informed guidelines.

Autor: Dellon EP; Department of Pediatrics, Division of Pulmonology, University of North Carolina School of Medicine, Chapel Hill, NC, USA., Allada G; Department of Medicine, Division of Pulmonary and Critical Care Medicine, Oregon Health and Science University, Portland, Oregon, USA., Allgood SJ; Johns Hopkins University School of Nursing, Baltimore, MD, USA., Georgiopoulos AM; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, USA., Goggin JL; Pulmonary Service Line, UC San Diego Health, San Diego, CA, USA., Hadjiliadis D; Department of Medicine, Division of Pulmonary, Allergy, and Critical Care Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA., Lowman JD; Department of Physical Therapy and Adult Cystic Fibrosis Center, University of Alabama at Birmingham, Birmingham, AL, USA., Madge S; Adult Cystic Fibrosis Centre, Royal Brompton Hospital, London, UK., Middour-Oxler B; Department of Pediatrics, Emory University, and Children's Healthcare of Atlanta and Emory University Cystic Fibrosis Care Center, Atlanta, GA, USA., Muirhead C; Pediatric Cystic Fibrosis Center, Doernbecher Children's Hospital, Portland, Oregon, USA., Noel M; Department of Psychology, University of Calgary, and Alberta Children's Hospital Research Institute, Calgary, AB, Canada., Wilson P; Pharmacy Department, Nottingham University Hospitals NHS Trust, Nottingham, UK., Se H; Cystic Fibrosis Foundation, Bethesda, MD, USA., Faro A; Cystic Fibrosis Foundation, Bethesda, MD, USA., Kavalieratos D; Department of Family and Preventive Medicine, Division of Palliative Medicine, Emory University, Atlanta, GA, USA.

Publikováno v: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2024 Dec 06. Date of Electronic Publication: 2024 Dec 06.

Palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members.

Autor: Trandel ET; School of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania., Kavalieratos D; Department of Family and Preventive Medicine, Division of Palliative Medicine, Emory University, Atlanta, Georgia., Basile M; Center for Health Innovations and Outcomes Research, Feinstein Institutes for Medical Research, Northwell Health, Manhasset, New York., Hobler MR; Department of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, Seattle, Washington., Georgiopoulos AM; Department of Psychiatry, Massachusetts General Hospital, Boston, Massachusetts., Chen E; Department of Internal Medicine, Pulmonary, Critical Care, and Palliative Medicine, Rush University Medical Center, Chicago, Illinois., Goggin JL; Division of Pulmonary, Critical Care, and Sleep Medicine, University of California San Diego, San Diego, California., Goss CH; Department of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, Seattle, Washington., Hempstead SE; Cystic Fibrosis Foundation, Bethesda, Maryland., Faro A; Cystic Fibrosis Foundation, Bethesda, Maryland., Dellon EP; Department of Pediatrics, Division of Pulmonology, University of North Carolina, Chapel Hill, North Carolina.

Publikováno v: Pediatric pulmonology [Pediatr Pulmonol] 2020 Aug; Vol. 55 (8), pp. 2017-2024. Date of Electronic Publication: 2020 May 08.