Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study

Autor: Thierry Martin, Carter Thorne, Brett D Thombs, Vincent Poindron, John Varga, Isabelle Boutron, Linda Kwakkenbos, Marie-Eve Carrier, Karen Nielsen, Alexandra Portales, Susan J Bartlett, Vanessa L Malcarne, Karen Gottesman, Warren R Nielson, Robert Riggs, Maureen Sauve, Fredrick Wigley, Shervin Assassi, Angela Costa Maia, Ghassan El-Baalbaki, Carolyn Ells, Catherine Fortune, Dominique Godard, Ann Impens, Yeona Jang, Ann Tyrell Kennedy, Annett Körner, Maggie Larche, Catarina Leite, Carlo Marra, Janet Pope, Tatiana Sofia Rodriguez Reyna, Joep Welling, Durhane Wong-Rieger, Alexandra Albert, Marc André, Guylaine Arsenault, Ilham Benzidia, Lyne Bissonnette, Gilles Boire, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Pascal Cohen, Pierre Dagenais, Christopher Denton, Robyn Domsic, Sandrine Dubois, Bertrand Dunogue, Alexia Esquinca, Regina Fare, Dominique Farge-bancel, Anna Gill, Jessica Gordon, Brigitte Granel-Rey, Genevieve Gyger, Pierre-Yves Hatron, Ariane L Herrick, Adrian Hij, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Patrick Liang, Joanne Manning, Maria Martin, Ariel Masetto, Sheila Melchor, David Robinson, Esther Rodriguez, Sophie Roux, Perrine Smets, Doug Smith, Robert Spiera, Evelyn Sutton, Benjamin Terrier, Pearce Wilcox, Michelle Wilson, Julie Cumin, François Rannou, Daniel E. Furst, Maureen D. Mayes, Lindsay Cronin, Stephen Elrod, Cornelia van den Ende, Amy Gietzen, Daphna Harel Geneviève Guillot, Shirley Haslam, Sindhu R. Johnson, Christelle Nguyen, Michelle Richard, Ken Rozee, Anne A. Schouffoer, Russell J. Steele, Nancy Stephens, Maria E. Suarez-Almazor, Chase Correia, James V. Dunne, Paul R. Fortin, Artur Jose de B. Fernandes, Nancy Maltez, Isabelle Marie, Kylene Anne Aguila, Mara Cañedo Ayala, Andrea Carboni-Jiménez, Claire Fedoruk, Lydia Tao, Kimberly Turner, Sami Harb, Mekinian Arsene, Nikpour Mandana, Gholizadeh Shadi

Publikováno v: BMJ Open, Vol 9, Iss 10 (2019)

Objectives The Scleroderma Patient-centered Intervention Network (SPIN) Cohort uses the cohort multiple randomised controlled trial design to embed trials of online self-care interventions for people living with systemic sclerosis (SSc; scleroderma).

Externí odkaz: https://doaj.org/article/cbae4e695cfa46f89f3d6e4456d53273

The Scleroderma Patient-Centered Intervention Network Self-Management Program: Protocol for a Randomized Feasibility Trial

Autor: Carrier, Marie-Eve, Kwakkenbos, Linda, Nielson, Warren R, Fedoruk, Claire, Nielsen, Karen, Milette, Katherine, Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Hummers, Laura, Johnson, Sindhu R, Piotrowski, Pamela, Jewett, Lisa, Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Turner, Kimberly A, Cumin, Julie, Welling, Joep, Fortune, Catherine, Leite, Catarina, Gottesman, Karen, Sauve, Maureen, Rodríguez-Reyna, Tatiana S, Hudson, Marie, Larche, Maggie, van Breda, Ward, Suarez-Almazor, Maria E, Bartlett, Susan J, Malcarne, Vanessa L, Mayes, Maureen D, Boutron, Isabelle, Mouthon, Luc, Wigley, Fredrick, Thombs, Brett D

Publikováno v: JMIR Research Protocols, Vol 9, Iss 4, p e16799 (2020)

BackgroundSystemic sclerosis (SSc), or scleroderma, is a rare disease that often results in significant disruptions to activities of daily living and can negatively affect physical and psychological well-being. Because there is no known cure, SSc tre

Externí odkaz: https://doaj.org/article/4d361638a1064ae69d44627a153c54dc

The many wounds of war: The association of service-related and clinical characteristics with problems with the law in Iraq and Afghanistan veterans

Autor: Backhaus, Autumn, Gholizadeh, Shadi, Godfrey, Kathryn M., Pittman, James, Afari, Niloofar

Publikováno v: In International Journal of Law and Psychiatry November-December 2016 49 Part B:205-213

Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program

Autor: Kwakkenbos, Linda, Østbø, Nora, Carrier, Marie-Eve, Nielson, Warren R., Fedoruk, Claire, Levis, Brooke, Henry, Richard S., Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Johnson, Sindhu R., Piotrowski, Pamela, Jewett, Lisa R., Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Tao, Lydia, Turner, Kimberly A., Cumin, Julie, Welling, Joep, Fortuné, Catherine, Leite, Catarina, Gottesman, Karen, Sauvé, Maureen, Reyna, Tatiana S. R., Hudson, Marie, Larche, Maggie, Van Breda, Ward, Suarez-Almazor, Maria E., Bartlett, Susan J., Malcarne, Vanessa L., Mayes, Maureen D., Boutron, Isabelle, Mouthon, Luc, Benedetti, Andrea, Thombs, Brett D.

Background The Scleroderma Patient-centered Intervention Network (SPIN) developed an online self-management program (SPIN-SELF) designed to improve disease-management self-efficacy in people with systemic sclerosis (SSc, or scleroderma). The aim of t

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::23b3572fda647ad69658d4f6d478ec2d

Mental and Physical Health Concerns in the Context of COVID-19: Opportunities and Applications for Behavioral Medicine.

Autor: Merz, Erin L., Gholizadeh, Shadi

Publikováno v: Focus: The Journal of Lifelong Learning in Psychiatry; Summer202, Vol. 20 Issue 3, p292-300, 9p