Efficacy of videogames and exergames in pediatric neurorehabilitation: a systematic review.

Autor: POLIZZI, Agata, RINELLA, Sergio, RUGGIERI, Martino, GENTILE, Amalia E., VERRELLI, Cristiano M., IOSA, Marco

Publikováno v: Minerva Pediatrics; Oct2024, Vol. 76 Issue 5, p690-702, 13p

Centres of Expertise and European Reference Networks: key issues in the field of rare diseases. The EUCERD Recommendations

Autor: Taruscio, Domenica, Gentile, Amalia E., Evangelista, Teresinha, Frazzica, Rosa G., Bushby, Kate, Montserrat, Antoni Moliner

Rare diseases, because of their intrinsic characteristics - large number of disorders and syndromes, low individual prevalence, severity, often limited information, lack of therapies - can benefit from collaboration and sharing of expertise while max

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::119f52ab549a5120eca5e700b65df483
https://europepmc.org/articles/PMC4044812/

The Italian National Centre for Rare Diseases: where research and public health translate into action.

Autor: Taruscio D; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Agresta L; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Amato A; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Bernardo G; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Bernardo L; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Braguti F; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Carbone P; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Carta C; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Ceccarini M; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Censi F; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Coppola S; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Crialese P; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., De Santis M; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Diemoz S; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Donati C; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Gainotti S; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Ferrari G; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Floridia G; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Frank C; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Frazzica RG; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Gentile AE; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Granata O; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Kodra Y; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Latrofa M; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Laricchiuta P; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Magrelli A; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Morciano C; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Polizzi A; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Razeto S; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Salvatore M; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Sanseverino A; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Savini D; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Torreri P; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Tosto F; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Villani F; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Vincenti G; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Vittozzi L; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy.

Publikováno v: Blood transfusion = Trasfusione del sangue [Blood Transfus] 2014 Apr; Vol. 12 Suppl 3, pp. s591-605.