Report of consensus panel 2 from the 11th international workshop on Waldenström's macroglobulinemia on the management of relapsed or refractory WM patients

Autor: D'Sa, S, Matous, JV, Advani, R, Buske, C, Castillo, JJ, Gatt, M, Kapoor, P, Kersten, MJ, Leblond, V, Leiba, M, Palomba, ML, Paludo, J, Qiu, L, Sarosiek, S, Shadman, M, Talaulikar, D, Tam, CS, Tedeschi, A, Thomas, SK, Tohidi-Esfahani, I, Trotman, J, Varettoni, M, Vos, JMI, Garcia-Sanz, R, San-Miguel, J, Dimopoulos, MA, Treon, SP, Kastritis, E

Publikováno v: In Seminars in Hematology March 2023 60(2):80-89

Prevalence of Congenital Ocular Anomalies in 15 Countries of Europe: Results From the Medikeye Study.

Autor: Dubucs C; Unité de Pharmacoépidémiologie, UMR CERPOP, INSERM, Université de Toulouse, Toulouse, France.; Département d'Anatomie et Cytologie Pathologiques, IUCT-Oncopole, Toulouse, France.; Faculté de Santé, Département MMP, Toulouse, France., Caillet A; Unité de Pharmacoépidémiologie, UMR CERPOP, INSERM, Université de Toulouse, Toulouse, France., Frémont F; Service d'ophtalmologie, Hôpital Pierre-Paul Riquet, CHU Toulouse-Purpan, Toulouse, France.; Clinique Honoré Cave, Montauban, France., Delteil L; Unité de Pharmacoépidémiologie, UMR CERPOP, INSERM, Université de Toulouse, Toulouse, France., N'Go V; Unité de Pharmacoépidémiologie, UMR CERPOP, INSERM, Université de Toulouse, Toulouse, France., Neville AJ; Centre for Clinical and Epidemiological Research, University of Ferrara and Azienda, Ospedaliero Universitario di Ferrara, Ferrara, Italy., Ballardini E; Neonatal Intensive Care Unit, University Hospital of Ferrara, IMER Registry (Emilia Romagna Registry of Birth Defects), Ferrara, Italy.; Department of Medical Sciences, University of Ferrara, Ferrara, Italy., Dolk H; School of Medicine, Ulster University, Belfast, Northern Ireland, UK., Loane M; Institute of Nursing and Health Research, Ulster University, Belfast, Northern Ireland, UK., Garne E; Department of Paediatrics and Adolescent Medicine, Lillebaelt Hospital, University Hospital of Southern Denmark, Kolding, Denmark., Khoshnood B; INSERM U953, Hopital Saint Vincent de Paul, Paris, France., Lelong N; INSERM U953, Hopital Saint Vincent de Paul, Paris, France., Rissmann A; Malformation Monitoring Centre Saxony-Anhalt, Medical Faculty Otto-von-Guericke-University Magdeburg, Magdeburg, Germany., O'Mahony M; Department of Public Health, St. Finbarr's Hospital, Cork, Ireland., Pierini A; Unit of Epidemiology of Rare Diseases and CA, Institute of Clinical Physiology-National Research Council, Pisa, Italy., Gatt M; Malta CA Register, Directorate for Health Information and Research, Pietà, Malta., Bergman J; Department of Genetics, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands., Krawczynski MR; Department of Medical Genetics, Poznan University of Medical Science, Poznan, Poland., Latos Bielenska A; Department of Medical Genetics, Poznan University of Medical Science, Poznan, Poland., Echevarría González de Garibay LJ; Department of Health of the Basque Government, Vitoria-Gasteiz, Spain., Cavero-Carbonell C; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain., Addor MC; Department of Woman-Mother-Child, Centre Hospitalier Universitaire Vaudois (CHUV), Lausanne, Switzerland., Tucker D; Public Health Wales, Public Health Knowledge and Research, Singleton Hospital, Swansea, Wales, UK., Jordan S; Faculty of Medicine, Health and Life Science, Swansea University, Swansea, Wales, UK., Den Hond E; Provincial Institute of Hygiene, Antwerp, Belgium., Nelen V; Provincial Institute of Hygiene, Antwerp, Belgium., Barisic I; Centre of Excellence for Reproductive and Regenerative Medicine, Medical School University of Zagreb, Zagreb, Croatia., Rouget F; Department of Neonatology, University Hospital, Rennes, France., Randrianaivo H; Unit of Congenital Malformations, REMACOR-Medical School University of La Réunion St. Pierre, Sainte-Clotilde/Register of Reunion Island CHU LA REUNION, Réunion, France., Hoareau J; Unit of Congenital Malformations, REMACOR-Medical School University of La Réunion St. Pierre, Sainte-Clotilde/Register of Reunion Island CHU LA REUNION, Réunion, France., Perthus I; Génétique médicale, CHU Estaing, Centre d'Etude Des Malformations Congénitales en Auvergne, Clermont-Ferrand, France., Hurault-Delarue C; Unité de Pharmacoépidémiologie, UMR CERPOP, INSERM, Université de Toulouse, Toulouse, France., Courtade-Saïdi M; Département d'Anatomie et Cytologie Pathologiques, IUCT-Oncopole, Toulouse, France.; Faculté de Santé, Département MMP, Toulouse, France., Damase-Michel C; Unité de Pharmacoépidémiologie, UMR CERPOP, INSERM, Université de Toulouse, Toulouse, France.; Service de Pharmacologie Clinique, Faculté de Médecine, Université de Toulouse, CHU de Toulouse, Toulouse, France.

Publikováno v: Birth defects research [Birth Defects Res] 2024 Nov; Vol. 116 (11), pp. e2414.

Socioeconomic disparities in changes to preterm birth and stillbirth rates during the first year of the COVID-19 pandemic: a study of 21 European countries.

Autor: Zeitlin J; Obstetrical, Perinatal and Pediatric Epidemiology Research Team (EPOpé), Centre for Research in Epidemiology and Statistics (CRESS), INSERM, INRAE, Paris Cité University, Paris, France., Philibert M; Obstetrical, Perinatal and Pediatric Epidemiology Research Team (EPOpé), Centre for Research in Epidemiology and Statistics (CRESS), INSERM, INRAE, Paris Cité University, Paris, France., Barros H; EPIUnit, University of Porto, Porto, Portugal., Broeders L; The Netherlands Perinatal Registry (Perined), Utrecht, Netherlands., Cap J; National Health Information Center, Bratislava, Slovakia., Draušnik Ž; Division of Public Health, Croatian Institute of Public Health, Zagreb, Croatia., Engjom H; Division of Mental and Physical Health, Norwegian Institute of Public Health, Bergen, Norway., Farr A; Division of Obstetrics and Feto-Maternal Medicine, Department of Obstetrics and Gynecology, Medical University of Vienna, Vienna, Austria., Fresson J; Department for Research, Studies, Assessment and Statistics (DREES), French Ministry of Health, Paris, France., Gatt M; National Obstetric Information System, Directorate for Health Information and Research, Pieta, Malta., Gissler M; Department of Knowledge Brokers, THL Finnish Institute for Health and Welfare, Helsinki, Finland.; Institute of Molecular Medicine and Surgery, Karolinska Institute, Stockholm, Sweden., Heller G; Social Data Department, Institute for Quality Assurance and Transparency in Healthcare (IQTIG), Berlin, Germany., Isakova J; Health Statistics Department, Health Information Centre, Institute of Hygiene, Vilnius, Lithuania., Källén K; Department of Evaluation and Analysis, Epidemiology and Methodological Support Unit, Karolinska Institute, Stockholm, Sweden., Kyprianou T; Health Monitoring Unit, Ministry of Health, Nicosia, Cyprus., Loghi M; Directorate for Social Statistics and Welfare, Italian Statistical Institute (ISTAT), Rome, Italy., Monteath K; Information Services Division, Public Health Scotland, Edinburgh, UK.; Department of Child Life and Health, University of Edinburgh, Edinburgh, UK., Mortensen L; Department of Public Health, University of Copenhagen, Copenhagen, Denmark.; Denmark Statistics, Copenhagen, Denmark., Rihs T; Federal Statistical Office (FSO), Neuchâtel, Switzerland., Sakkeus L; Estonian Institute for Population Studies, Tallinn University, Tallinn, Estonia., Sikora I; The National Perinatal Reporting System, Health Pricing Office, Dublin, Ireland., Szamotulska K; Department of Epidemiology and Biostatistics, National Research Institute of Mother and Child, Warsaw, Poland., Velebil P; Institute for the Care of Mother and Child, Prague, Czechia.; 3rd Faculty of Medicine, Charles University, Prague, Czechia., Verdenik I; Department of Obstetrics & Gynecology-Research Unit, University Medical Centre, Ljubljana, Slovenia., Weber G; Department of Epidemiology and Statistics, Directorate of Health, Luxembourg, Luxembourg., Zile I; The Centre for Disease Prevention and Control of Latvia, Riga, Latvia., Zurriaga O; Public Health General Directorate, Valencia Regional Public Health Authority, Valencia, Spain.; Public Health and Preventive Medicine Department, University of Valencia, Valencia, Spain.; Centre for Network Biomedical Research in Epidemiology and Public Health (CIBERESP), Madrid, Spain., Smith L; Department of Health Sciences, College of Life Sciences, University of Leicester, Leicester, UK.

Publikováno v: European journal of public health [Eur J Public Health] 2024 Jul 01; Vol. 34 (Supplement_1), pp. i58-i66.

Surveillance of multiple congenital anomalies; searching for new associations.

Autor: Morris JK; Population Health Research Institute, St George's, University of London, London, UK. jmorris@sgul.ac.uk., Bergman JEH; Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands., Barisic I; Children's Hospital Zagreb, Centre of Excellence for Reproductive and Regenerative Medicine, Medical School University of Zagreb, Zagreb, Croatia., Wellesley D; Clinical Genetics, University of Southampton and Wessex Clinical Genetics Service, Princess Anne Hospital, Southampton, UK., Tucker D; Congenital Anomaly Register & Information Service for Wales (CARIS) Public Health Knowledge and Research, Public Health Wales, Swansea, Wales, UK., Limb E; Population Health Research Institute, St George's, University of London, London, UK., Addor MC; Department of Woman-Mother-Child, University Medical Center CHUV, Lausanne, Switzerland., Cavero-Carbonell C; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain., Matias Dias C; Epidemiology Department, National Institute of Health Doutor Ricardo Jorge, Lisboa, Portugal., Draper ES; Department of Population Health Sciences, Georg Davies Centre, University of Leicester, Leicester, UK., Echevarría-González-de-Garibay LJ; Department of Health of the Basque Government, Vitoria-Gasteiz, Spain., Gatt M; Malta Congenital Anomalies Registry, Directorate for Health Information and Research, Guardamangia, Malta., Klungsøyr K; Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway.; Division of Mental and Physical Health, Norwegian Institute of Public Health, Bergen, Norway., Lelong N; Université Paris Cité, CRESS, Équipe de recherche en épidémiologie obstétricale périnatale et pédiatrique (EPOPé), INSERM, INRA, Paris, France., Luyt K; South West Congenital Anomaly Register, Bristol Medical School, University of Bristol, Bristol, UK., Materna-Kiryluk A; Polish Registry of Congenital Malformations, Chair and Department of Medical Genetics, University of Medical Sciences, 61-701, Poznan, Poland., Nelen V; Provincial Institute for Hygiene, Antwerp, Belgium., Neville A; Center for Clinical and Epidemiological Research, University of Ferrara, Ferrara, Italy., Perthus I; Auvergne Registry of Congenital Anomalies (CEMC-Auvergne), Department of Clinical Genetics, Centre de Référence des Maladies Rares, University Hospital of Clermont-Ferrand, Clermont-Ferrand, France., Pierini A; Unit of Epidemiology of Rare diseases and Congenital anomalies, Institute of Clinical Physiology, National Research Council, Pisa, Italy., Randrianaivo-Ranjatoelina H; Service de Génétique Médicale et d'oncogénétique, Registre des Malformations Congénitales, Saint Pierre, La Réunion, France., Rankin J; Population Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UK., Rissmann A; Malformation Monitoring Centre Saxony-Anhalt, Medical Faculty Otto-von-Guericke University-Magdeburg, Magdeburg, Germany., Rouget F; Brittany Registry of Congenital Anomalies, CHU Rennes, Univ Rennes, Inserm, EHESP, Irset (Institut de recherche en santé, environnement et travail) - UMR_S 1085, F-35000, Rennes, France., Sayers G; Health Intelligence, Research and Development Health Service Executive, Dublin, Ireland., Wertelecki W; OMNI-Net Ukraine Programs, Rivne, Ukraine., Kinsner-Ovaskainen A; European Commission, Joint Research Centre, Ispra, Italy., Garne E; Department of Paediatrics and Adolescent Medicine, Lillebaelt Hospital, University Hospital of Southern Denmark, Kolding, Denmark.

Publikováno v: European journal of human genetics : EJHG [Eur J Hum Genet] 2024 Apr; Vol. 32 (4), pp. 407-412. Date of Electronic Publication: 2023 Dec 05.

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