Secondary use of patient data within decentralized studies using the example of rare diseases in Germany: A data scientist's exploration of process and lessons learned

Autor: Michele Zoch, Christian Gierschner, Anne-Katrin Andreeff, Elisa Henke, Martin Sedlmayr, Gabriele Müller, Jenny Tippmann, Helge Hebestreit, Daniela Choukair, Georg F. Hoffmann, Fleur Fritz-Kebede, Nicole Toepfner, Reinhard Berner, Stephanie Biergans, Raphael Verbücheln, Jannik Schaaf, Julia Fleck, Felix Nikolaus Wirth, Josef Schepers, Fabian Prasser

Publikováno v: Digital Health, Vol 10 (2024)

Objective Unlocking the potential of routine medical data for clinical research requires the analysis of data from multiple healthcare institutions. However, according to German data protection regulations, data can often not leave the individual ins

Externí odkaz: https://doaj.org/article/6640c4e05bff445292a3e4d25a2ab079

Sialochemical analysis in polytraumatized patients in intensive care units

Autor: João Armando Brancher, Aline Cristina Batista Rodrigues Johann, Renata Iani Werneck, Paulo Henrique Couto Souza, Amanda Rebeca da Silveira Wolf, Patrícia Vida Cassi Bettega, Danielle Nawcki, Marlene Barros, Luana Alves Tannous, Gabriele Muller Feustel, Kelly Aline Lima Nascimento, Sérgio Aparecido Ignácio, Maria Heloisa Madruga Chaves

Publikováno v: Repositório Científico de Acesso Aberto de Portugal
Repositório Científico de Acesso Aberto de Portugal (RCAAP)
instacron:RCAAP
PLoS ONE, Vol 14, Iss 10, p e0222974 (2019)
PLoS ONE

The profiles of polytraumatized patients in intensive care units were characterized. Serum and salivary markers were compared with normality between Classes I and II of APACHE II and between periods of hospitalization; these results were correlated.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cdbc65e09a864783de1046a43ee41e66
https://ciencia.ucp.pt/en/publications/e49179e9-01b1-454b-b75b-e6abbde7bdb5

Transition for adolescents with a rare disease: results of a nationwide German project

Autor: Corinna Grasemann, Jakob Höppner, Peter Burgard, Michael M. Schündeln, Nora Matar, Gabriele Müller, Heiko Krude, Reinhard Berner, Min Ae Lee-Kirsch, Fabian Hauck, Kerstin Wainwright, Sylvana Baumgarten, Janet Atinga, Jens J. Bauer, Eva Manka, Julia Körholz, Cordula Kiewert, André Heinen, Tanita Kretschmer, Tobias Kurth, Janna Mittnacht, Christoph Schramm, Christoph Klein, Holm Graessner, Olaf Hiort, Ania C. Muntau, Annette Grüters, Georg F. Hoffmann, Daniela Choukair

Publikováno v: Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-9 (2023)

Abstract Purpose The transition process from paediatric/adolescent to adult medical care settings is of utmost importance for the future health of adolescents with chronic diseases and poses even more difficulties in the context of rare diseases (RDs

Externí odkaz: https://doaj.org/article/ef5f9b76b7484569ab9e82d3e5536374

Acinetobacter baumanniiin Localised Cutaneous Mycobacteriosis in Falcons

Autor: Ancy Rajeev George, Julia Walochnik, Margit Gabriele Muller

Publikováno v: Veterinary Medicine International, Vol 2010 (2010)
Veterinary Medicine International

Between May 2007 and April 2009, 29 falcons with identically localized, yellowish discolored cutaneous lesions in the thigh and lateral body wall region were presented at Abu Dhabi Falcon Hospital. Out of 18 falcons integrated in this study, 16 teste

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::479856d29a6868a1b7488a03f9a19633
https://doi.org/10.4061/2010/321797

Providing palliative care for residents in LTC facilities: an analysis of routine data of LTC facilities in Lower Saxony, Germany

Autor: Wenke Walther, Gabriele Müller-Mundt, Birgitt Wiese, Nils Schneider, Stephanie Stiel

Publikováno v: BMC Palliative Care, Vol 21, Iss 1, Pp 1-9 (2022)

Abstract Background Demographic trends show an increasing number of elderly people and thus a growing need for palliative care (PC). Such care is increasingly being provided by long-term care (LTC) facilities. The present study aimed at exploring PC

Externí odkaz: https://doaj.org/article/89a3804d51f14c95b1e7ef2cd06476a2