Zobrazeno 1 - 6
of 6
pro vyhledávání: '"G. Jaega"'
Autor:
K. Martin, S. Geuens, J. K. Asche, R. Bodan, F. Browne, A. Downe, N. García García, G. Jaega, B. Kennedy, P. J. Mauritz, F. Pérez, K. Soon, V. Zmazek, K. M. Mayre-Chilton
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-21 (2019)
Abstract Epidermolysis Bullosa (EB) is a group of rare genetic disorders resulting in skin fragility and other symptoms. Commissioned by DEBRA International and funded by DEBRA Norway, this evidence-bases guideline provides recommendations to optimis
Externí odkaz:
https://doaj.org/article/7348f2b52f4c44d4b0b09e02b78d5b6b
Autor:
Florencia Pérez, K. Martin, B. Kennedy, Petra J. Mauritz, Kristina Soon, J. K. Asche, G. Jaega, F. Browne, K. M. Mayre-Chilton, Rebecca Cross Bodán, S. Geuens, N. García García, V. Zmazek, A. Downe
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-21 (2019)
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases
Epidermolysis Bullosa (EB) is a group of rare genetic disorders resulting in skin fragility and other symptoms. Commissioned by DEBRA International and funded by DEBRA Norway, this evidence-bases guideline provides recommendations to optimise psychos
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b6bb01696b770950e0a1835bd6ede188
http://link.springer.com/article/10.1186/s13023-019-1086-5
http://link.springer.com/article/10.1186/s13023-019-1086-5
Autor:
K. Martin, S. Geuens, J. Asche, R. Bodan, F. Browne, A. Downe, N. GarcĂA GarcĂA, G. Jaega, B. Kennedy, P. Mauritz, F. PĂŠrez, K. Soon, V. Zmazek, K. Mayre-Chilton
Author and Review Panel Membership. (PDF 422 kb)
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2c796e570ef6632ebedb88a83a81f6da
Autor:
K. Martin, S. Geuens, J. Asche, R. Bodan, F. Browne, A. Downe, N. GarcĂA GarcĂA, G. Jaega, B. Kennedy, P. Mauritz, F. PĂŠrez, K. Soon, V. Zmazek, K. Mayre-Chilton
CPG Evaluation Form: Pre implementation. (PDF 138 kb)
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::144a646cd8d8047b36bb0ed6139f38be
Autor:
K. Martin, S. Geuens, J. Asche, R. Bodan, F. Browne, A. Downe, N. GarcĂA GarcĂA, G. Jaega, B. Kennedy, P. Mauritz, F. PĂŠrez, K. Soon, V. Zmazek, K. Mayre-Chilton
Copy of Appraisal and bias Tool. (PDF 638 kb)
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a77fff117c7056de8d88133b74b9bb63
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