A Hybrid Architecture (CO-CONNECT) to Facilitate Rapid Discovery and Access to Data Across the United Kingdom in Response to the COVID-19 Pandemic: Development Study

Autor: Emily Jefferson, Christian Cole, Shahzad Mumtaz, Samuel Cox, Thomas Charles Giles, Sam Adejumo, Esmond Urwin, Daniel Lea, Calum Macdonald, Joseph Best, Erum Masood, Gordon Milligan, Jenny Johnston, Scott Horban, Ipek Birced, Christopher Hall, Aaron S Jackson, Clare Collins, Sam Rising, Charlotte Dodsley, Jill Hampton, Andrew Hadfield, Roberto Santos, Simon Tarr, Vasiliki Panagi, Joseph Lavagna, Tracy Jackson, Antony Chuter, Jillian Beggs, Magdalena Martinez-Queipo, Helen Ward, Julie von Ziegenweidt, Frances Burns, Joanne Martin, Neil Sebire, Carole Morris, Declan Bradley, Rob Baxter, Anni Ahonen-Bishopp, Paul Smith, Amelia Shoemark, Ana M Valdes, Benjamin Ollivere, Charlotte Manisty, David Eyre, Stephanie Gallant, George Joy, Andrew McAuley, David Connell, Kate Northstone, Katie Jeffery, Emanuele Di Angelantonio, Amy McMahon, Mat Walker, Malcolm Gracie Semple, Jessica Mai Sims, Emma Lawrence, Bethan Davies, John Kenneth Baillie, Ming Tang, Gary Leeming, Linda Power, Thomas Breeze, Duncan Murray, Chris Orton, Iain Pierce, Ian Hall, Shamez Ladhani, Natalie Gillson, Matthew Whitaker, Laura Shallcross, David Seymour, Susheel Varma, Gerry Reilly, Andrew Morris, Susan Hopkins, Aziz Sheikh, Philip Quinlan

Publikováno v: Journal of Medical Internet Research, Vol 24, Iss 12, p e40035 (2022)

BackgroundCOVID-19 data have been generated across the United Kingdom as a by-product of clinical care and public health provision, as well as numerous bespoke and repurposed research endeavors. Analysis of these data has underpinned the United Kingd

Externí odkaz: https://doaj.org/article/54ca7e259fa5437b93518def8143ad8f

Embracing Sensitivity, Enhancing Impact: Developing A Co-Production Model of Public Engagement for Administrative Data Research

Autor: Elizabeth Nelson, Frances Burns

Publikováno v: International Journal of Population Data Science, Vol 5, Iss 5 (2020)

Introduction Public engagement and impact are important to research funders. But how these are done successfully in administrative data research is less established than in research where engagement mechanisms are more embedded. As admin data researc

Externí odkaz: https://doaj.org/article/fd5a39d3aef243379244c9ba9c2148c1

Using record linkage to test representativeness of an ageing cohort

Autor: Frances Burns, Mische McKelvie, Sharon Cruise, Dermot O'Reilly

Publikováno v: International Journal of Population Data Science, Vol 4, Iss 3 (2019)

Background with rationale The numbers of older people are rising faster than any other group in society and Governments need to develop policies that will help older people stay as healthy and independent as possible for as long as possible. To do th

Externí odkaz: https://doaj.org/article/3cd8620fefae490cb389372323ffd8a1

CO-CONNECT: A hybrid architecture to facilitate rapid discovery and access to UK wide data in the response to the COVID-19 pandemic (Preprint)

Autor: Emily Jefferson, Christian Cole, Shahzad Mumtaz, Sam Cox, Tom Giles, Samuel Adejumo, Esmond Urwin, Daniel Lea, Calum McDonald, Joseph Best, Erum Masood, Gordon Milligan, Jenny Johnston, Scott Horban, Ipek Birced, Christopher Hall, Aaron Jackson, Clare Collins, Sam Rising, Charlotte Dodsley, Jill Hampton, Andrew Hadfield, Roberto Santos, Simon Tarr, Vasiliki Panagi, Joseph Lavagna, Tracy Jackson, Antony Chuter, Jillian Beggs, Magdalena Martinez-Queipo, Helen Ward, Julie von Ziegenweidt, Frances Burns, Jo Martin, Neil Sebire, Carole Morris, Declan Bradley, Rob Baxter, Anni Ahonen-Bishop, Amelia Shoemark, Ana Valdes, Benjamin J Ollivere, Charlotte Manisty, David William Eyre, Stephanie Gallant, George Joy, Andrew McAuley, David W Connell, Kate Northstone, Katie JM Jeffery, Emanuele Di Angelantonio, Amy McMahon, Matthew Walker, Malcolm Gracie Semple, Jessica Mai Sims, Emma Lawrence, Bethan Davies, J Kenneth Baillie, Ming Tang, Gary Leeming, Linda Power, Thomas Breeze, Natalie Gilson, Duncan J Murray, Chris Orton, Iain Pierce, Ian Hall, Shamez Ladhani, Matthew Whitaker, Laura Shallcross, David Seymour, Susheel Varma, Gerry Reilly, Andrew Morris, Susan Hopkins, Aziz Sheikh, Philip Quinlan

BACKGROUND COVID-19 data have been generated across the UK as a by-product of clinical care and public health provision, and numerous bespoke and repurposed research endeavours. Analysis of these data has underpinned the UK’s response to the pandem

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::2036757b72bbe664da4877213212529e
https://doi.org/10.2196/preprints.40035

Impact through engagement: Co-production of administrative data research and the approach of the Administrative Data Research Centre Northern Ireland

Autor: Frances Burns, Elizabeth Nelson

Publikováno v: Nelson, E & Burns, F 2020, ' Impact through engagement: Co-production of administrative data research and the approach of the Administrative Data Research Centre Northern Ireland ', International Journal of Population Data Science, vol. 5, no. 3, 8 . https://doi.org/10.23889/ijpds.v5i3.1369
International Journal of Population Data Science

Background The Administrative Data Research Centre Northern Ireland (ADRC NI) is a research partnership between Queen's University Belfast and Ulster University to facilitate access to linked administrative data for research purposes for public benef

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::df9c62ef4a060e26518e10bb150d05ef
https://pure.qub.ac.uk/en/publications/impact-through-engagement-coproduction-of-administrative-data-research-and-the-approach-of-the-administrative-data-research-centre-northern-ireland(3bbe0108-ae16-4942-9239-4934f01e7c3f).html