The importance of understanding minimal important difference for ALSFRS-R: A reply to 'Do we really need to calculate a minimal important difference for ALSFRS-R?' https://doi.org/10.1080/21678421.2023.2248199.

Autor: Fournier CN; Department of Neurology, Emory University, Atlanta, GA, USA., Glass JD; Department of Neurology, Emory University, Atlanta, GA, USA.

Publikováno v: Amyotrophic lateral sclerosis & frontotemporal degeneration [Amyotroph Lateral Scler Frontotemporal Degener] 2024 Feb; Vol. 25 (1-2), pp. 216-217. Date of Electronic Publication: 2024 Jan 23.

AIMing for Better Tools to Track Disease Progression.

Autor: Fournier CN; From the Department of Neurology (C.N.F.), Emory University; and Department of Neurology (C.N.F.), Veterans Affairs, Atlanta, GA. christina.nicole.fournier@emory.edu.

Publikováno v: Neurology [Neurology] 2023 Aug 08; Vol. 101 (6), pp. 243-244. Date of Electronic Publication: 2023 Jun 13.

Longitudinal comparison of the self-entry Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-RSE) and Rasch-Built Overall Amyotrophic Lateral Sclerosis Disability Scale (ROADS) as outcome measures in people with amyotrophic lateral sclerosis.

Autor: Johnson SA; Neurological Clinical Research Institute and Sean M. Healey & AMG Center for ALS, Massachusetts General Hospital, Boston, Massachusetts, USA., Burke KM; Neurological Clinical Research Institute and Sean M. Healey & AMG Center for ALS, Massachusetts General Hospital, Boston, Massachusetts, USA., Scheier ZA; Neurological Clinical Research Institute and Sean M. Healey & AMG Center for ALS, Massachusetts General Hospital, Boston, Massachusetts, USA., Keegan MA; Neurological Clinical Research Institute and Sean M. Healey & AMG Center for ALS, Massachusetts General Hospital, Boston, Massachusetts, USA., Clark AP; Neurological Clinical Research Institute and Sean M. Healey & AMG Center for ALS, Massachusetts General Hospital, Boston, Massachusetts, USA., Chan J; Massachusetts General Hospital, Biostatistics Center, Harvard Medical School, Boston, Massachusetts, USA., Fournier CN; Department of Neurology, Emory University, Atlanta, Georgia, USA.; Department of Neurology, Atlanta Veterans Administration Medical Center, Decatur, Georgia, USA., Berry JD; Neurological Clinical Research Institute and Sean M. Healey & AMG Center for ALS, Massachusetts General Hospital, Boston, Massachusetts, USA.

Publikováno v: Muscle & nerve [Muscle Nerve] 2022 Oct; Vol. 66 (4), pp. 495-502. Date of Electronic Publication: 2022 Aug 15.

Validation of the Italian version of the Rasch-Built Overall Amyotrophic Lateral Sclerosis Disability Scale (ROADS) administered to patients and their caregivers.

Autor: Manera U; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy.; SC Neurologia 1U, AOU Città della Salute e della Scienza of Torino, Turin, Italy., Solero L; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy., Fournier CN; Department of Neurology Emory University, Atlanta, GA, USA.; Department of Neurology, Atlanta VA Medical Center, Atlanta, GA, USA., Canosa A; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy.; SC Neurologia 1U, AOU Città della Salute e della Scienza of Torino, Turin, Italy., Vasta R; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy., Bombaci A; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy., Grassano M; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy., Palumbo F; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy., Torrieri MC; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy., Salamone P; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy., Casale F; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy., Fuda G; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy., Moglia C; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy.; SC Neurologia 1U, AOU Città della Salute e della Scienza of Torino, Turin, Italy., Calvo A; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy.; SC Neurologia 1U, AOU Città della Salute e della Scienza of Torino, Turin, Italy., Chiò A; ALS Centre, 'Rita Levi Montalcini' Department of Neuroscience, University of Torino, Turin, Italy.; SC Neurologia 1U, AOU Città della Salute e della Scienza of Torino, Turin, Italy.

Publikováno v: Amyotrophic lateral sclerosis & frontotemporal degeneration [Amyotroph Lateral Scler Frontotemporal Degener] 2022 Aug; Vol. 23 (5-6), pp. 424-429. Date of Electronic Publication: 2021 Dec 11.

Unintended Consequences of Approving Unproven Treatments-Hope, Hype, or Harm?

Autor: Glass JD; Department of Neurology, Emory University, Atlanta, Georgia., Fournier CN; Department of Neurology, Emory University, Atlanta, Georgia.

Publikováno v: JAMA neurology [JAMA Neurol] 2022 Feb 01; Vol. 79 (2), pp. 117-118.