Výsledky vyhledávání - "Flóra Raffai"

Autor: O Timmis, Flóra Raffai

Publikováno v: Gene therapy. 24(9)

There are many challenges in conducting rare disease research. The conditions are often poorly understood, small patient populations are dispersed around the world, and there are limited funding opportunities. Patient groups can serve as a key partne

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::001291abc711aa4b90a252a0bbffd85f
https://pubmed.ncbi.nlm.nih.gov/28467403

Zobrazit plný text záznamu

Findacure: empowering patient groups for drug development

Autor: Anthony K Hall, Flóra Raffai, Nicolas Sireau

Publikováno v: Expert Opinion on Orphan Drugs. 2:1175-1179

There is a large unmet need for helping rare disease patient groups and Findacure aims to empower these groups to become effective campaigners for change. Through its scientific meetings, Findacure also aims to gain the support of the scientific comm

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::12182a7164e1cbd9bf835eabf9234a81
https://doi.org/10.1517/21678707.2014.974552

Zobrazit plný text záznamu

Vyhledávací nástroje:

Upřesnit hledání