Impact of first COVID‐19 lockdown on paediatric and adult haemophilia patients treated in a French Haemophilia Comprehensive Care Centre

Autor: Fabienne Volot, Agnes Soudry‐Faure, Anamaria Callegarin, Eléa Ksiazek, Stephanie Delienne, Yves Cottin, Marc Maynadié, Mathieu Boulin

Publikováno v: Haemophilia. 28:462-471

The coronavirus disease 2019 (COVID-19) pandemic has created an unprecedented global health crisis.To investigate the impact of the 1A prospective cross-sectional phone survey using a two-part questionnaire was conducted in haemophilia patients (adul

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5e7d552c9ca3dcb469ce79cf308871cd
https://doi.org/10.1111/hae.14526

COVID-19 Lockdown in Patients with Chronic Diseases: A Cross-Sectional Study

Autor: Mathieu Boulin, Amélie Cransac-Miet, Marc Maynadié, Fabienne Volot, Catherine Creuzot-Garcher, Jean-Christophe Eicher, Frédéric Chagué, Eléa Ksiazek, Guillaume Beltramo, Philippe Bonniaud, Thibault Moreau, Bernard Bonnotte, Edith Sales-Wuillemin, Agnès Soudry-Faure, Marianne Zeller, Yves Cottin

Publikováno v: International Journal of Environmental Research and Public Health
International Journal of Environmental Research and Public Health, MDPI, 2022, 19 (7), pp.3957. ⟨10.3390/ijerph19073957⟩
International Journal of Environmental Research and Public Health; Volume 19; Issue 7; Pages: 3957

Background: We aimed to investigate the impact of the first COVID-19 lockdown on medication adherence, physician access, lifestyle behaviours, and mental health in patients with chronic conditions. Methods: A cross-sectional phone survey was conducte

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fc1ae7834c182e163ff20199b37e1331
https://pubmed.ncbi.nlm.nih.gov/35409640

Age at diagnosis is delayed in women/girls with haemophilia compared to men/boys: a FranceCoag report

Autor: Marie, Viprey, Fabienne, Volot, Céline, Falaise, Guillaume, Mourey, Benjamin, Gillet, Yoann, Huguenin, Sandrine, Meunier, Noémie De, Gunzburg, Virginie, Barbay, Sophie, Bayart, Cécile, Bally, Marc, Trossaert, Ségolène, Claeyssens, Valérie, Gay, Anne-Lise, Voyer, Placide, Nyombe, Yves, Gruel, Aurélien, Lebreton, Yohan, Demay, Vanessa, Milien, Mohamed, Boucekine, Yannick, Collé, Hervé, Chambost, Roseline, d'Oiron

Publikováno v: Connecting the Global Bleeding Disorders Community
Connecting the Global Bleeding Disorders Community, World Federation of Hemophilia, Jun 2020, Virtual Summit, France. pp.79-80, ⟨10.1111/hae.13941⟩

International audience

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::43be1a4efdd808858c69f6714ca76366
https://hal.inrae.fr/hal-03170384

Compliance with Early Long-Term Prophylaxis Guidelines for Severe Hemophilia A

Autor: Paul Saultier, Yves Guillaume, Virginie Demiguel, Claire Berger, Annie Borel-Derlon, Ségolène Claeyssens, Annie Harroche, Caroline Oudot, Anne Rafowicz, Marc Trossaert, Bénédicte Wibaut, Christine Vinciguerra, Mohamed Boucekine, Karine Baumstarck, Sandrine Meunier, Thierry Calvez, Hervé Chambost, Achille Aouba, Faezeh Legrand, Chantal Rothschild, Marie-Françoise Torchet, Roseline d’Oiron, Thierry Lambert, Yves Laurian, Jennifer Biernat, Jenny Goudemand, Armelle Parquet, Véronique Tintillier, Anne Durin Assollant, Claude Négrier, Sabine Castet, Viviane Guérin, Yohann Huguenin, Marguerite Micheau, Anne Ryman, Hérve Chambost, Céline Falaise, Marie Françoise Thiercelin-Legrand, Marianne Fiks-Sigaud, Marc Fouassier, Edith Fressinaud, Sophie Voisin, Albert Faradji, Patrick Lutz, Marie Elisabeth Briquel, Birgit Frotscher, Béatrice Fimbel, Yves Gruel, Claude Guerois, Sandra Regina, Jean Baptiste Valentin, Christine Biron Andreani, Philippe Codine, Daniel Donadio, Robert Navarro, Paola Rospide, Jean-François Schved, Bénédicte Collet, Annie Borel Derlon, Philippe Gautier, Sophie Bayart, Ben⊚ıt Guillet, JeanneYvonne Borg, Cécile Dumesnil, Charline Normand, Pascale Schneider, Philippe Tron, Jean-Pierre Vannier, Fabienne Dutrillaux, Fabienne Volot, Piotr Gembara, Alain Marques-Verdier, Dalila Adjaoud, Claire Barro, Gilles Pernod, Ben⊚ıt Polack, Patricia Pouzol, Nadra Ounnoughene, Patricia Paugy, Valérie Robert, Natalie Stieltjes, Brigitte Bastenaire, Emmanuelle de Raucourt, Jocelyne Peynet, Valérie Li-Thiao-Te, Brigitte Pautard, Catherine Behar, Stéphanie Gorde, Martine Munzer, Valérie Gay, Elisabeth Benz Lemoine, Laurent Macchi, Lionel De Lumley, Solange Gaillard, Anne Deville, Fabrice Monpoux, Marie Anne Bertrand, Brigitte Pan-Petesch, Abel Hassoun, Brigitte Coatmelec, Philippe Beurrier, Michèle Damay, Philippe Moreau, Odile Pouille-Lievin, Caroline Schoepfer, Eliane Tarral, Monique Bianchin, Joël Nguyen, Olivier Pincemaille, Marie-Odile Peter

Publikováno v: The Journal of Pediatrics
The Journal of Pediatrics, 2021, 234, pp.212-219.e3. ⟨10.1016/j.jpeds.2021.02.071⟩

International audience; Objectives: To evaluate the applicability and compliance with guidelines for early initiation of long-term prophylaxis in infants with severe hemophilia A and to identify factors associated with guideline compliance.Study desi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a04ba22efe053930d53178ae033337db
https://doi.org/10.1016/j.jpeds.2021.02.071

Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): study protocol for a multicentric French national observational cross-sectional study

Autor: Noémie Resseguier, Natacha Rosso-Delsemme, Any Beltran Anzola, Karine Baumstarck, Vanessa Milien, Laurent Ardillon, Sophie Bayart, Claire Berger, Marie-Anne Bertrand, Christine Biron-Andreani, Annie Borel-Derlon, Sabine Castet, Pierre Chamouni, Ségolène Claeyssens Donadel, Emmanuelle De Raucourt, Dominique Desprez, Céline Falaise, Birgit Frotscher, Valérie Gay, Jenny Goudemand, Yves Gruel, Benoît Guillet, Annie Harroche, Abel Hassoun, Yoann Huguenin, Thierry Lambert, Aurélien Lebreton, Anne Lienhart, Michèle Martin, Sandrine Meunier, Fabrice Monpoux, Guillaume Mourey, Claude Negrier, Philippe Nguyen, Placide Nyombe, Caroline Oudot, Brigitte Pan-Petesch, Benoît Polack, Anne Rafowicz, Antoine Rauch, Delphine Rivaud, Pascale Schneider, Alexandra Spiegel, Cecile Stoven, Brigitte Tardy, Marc Trossaërt, Jean-Baptiste Valentin, Stéphane Vanderbecken, Fabienne Volot, Annelise Voyer-Ebrard, Bénédicte Wibaut, Tanguy Leroy, Thomas Sannie, Hervé Chambost, Pascal Auquier

Publikováno v: BMJ Open
BMJ Open, 2018, 8 (7), pp.e022409. ⟨10.1136/bmjopen-2018-022409⟩
BMJ Open, BMJ Publishing Group, 2018, 8 (7), pp.e022409. ⟨10.1136/bmjopen-2018-022409⟩

IntroductionSevere haemophilia is a rare disease characterised by spontaneous bleeding from early childhood, which may lead to various complications, especially in joints. It is nowadays possible to avoid these complications thanks to substitutive th

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::19abf58965c9f1dd82b8b193cf3b48f3
https://pubmed.ncbi.nlm.nih.gov/30049701