Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Autor: Scheible, Raphael, Kadioglu, Dennis, Ehl, Stephan, Blum, Marco, Boeker, Martin, Folz, Michael, Grimbacher, Bodo, Göbel, Jens, Klein, Christoph, Nieters, Alexandra, Rusch, Stephan, Kindle, Gerhard, Storf, Holger

Publikováno v: JMIR Medical Informatics, Vol 8, Iss 10, p e17420 (2020)

BackgroundThe German Network on Primary Immunodeficiency Diseases (PID-NET) utilizes the European Society for Immunodeficiencies (ESID) registry as a platform for collecting data. In the context of PID-NET data, we show how registries based on custom

Externí odkaz: https://doaj.org/article/664d636000dc49a5835f0918d8e29923

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Software deployment for a multicentric IT-infrastructure

Autor: Senghas, Karsten, Koch, Christian, Folz, Michael, Juárez, David, Schmidt, Esther, Ückert, Frank, Lablans, Martin

Publikováno v: 62. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e.V. (GMDS); 20170917-20170921; Oldenburg; DOCAbstr. 289 /20170829/

Introduction (incl. Objective / Requirements): For the last five years, we have designed and developed the IT backbone of the German Cancer Consortium (DKTK), comprised of more than 20 institutions and teaching hospitals [ref:1]. Our software is desi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0b6e6754c38f7160029a1bc271c64923

Czechoslovakia: Autumn in Prague

Autor: Folz, Michael

Publikováno v: Harvard International Review, 1982 May 01. 4(7), 33-33.

Externí odkaz: https://www.jstor.org/stable/42763785

Proof-of-Concept Integration of Heterogeneous Biobank IT Infrastructures into a Hybrid Biobanking Network

Autor: Mate, Sebastian, Kadioglu, Dennis, Majeed, Raphael W, Stöhr, Mark R, Folz, Michael, Vormstein, Patric, Storf, Holger, Brucker, Daniel P, Keune, Dietmar, Zerbe, Norman, Hummel, Michael, Senghas, Karsten, Hans-Ulrich Prokosch, Lablans, Martin

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::b5c0cf58a2ce25d82965ac96af52c22f