Patient involvement in basic rheumatology research at Nijmegen: a three year’s responsive evaluation of added value, pitfalls and conditions for success

Autor: Maarten P. T. de Wit, M. I. Koenders, Y. Neijland, F. H. J. van den Hoogen, P. M. van der Kraan, F. A. J. van de Loo, H. Berkers, M. Lieon, A. van Caam, C. van den Ende

Publikováno v: BMC Rheumatology, Vol 6, Iss 1, Pp 1-12 (2022)

Abstract Background Empirical evidence for effective patient-researcher collaboration in basic research is lacking. This study aims to explore good working models and impact of patient involvement in basic rheumatology research and to identify barrie

Externí odkaz: https://doaj.org/article/3651b2259dac4643a7c46697d05bcdbd

Frequency and impact of disease symptoms experienced by patients with systemic sclerosis from five European countries

Autor: L M, Willems, L, Kwakkenbos, C C, Leite, B D, Thombs, F H J, van den Hoogen, A C, Maia, T P M, Vliet Vlieland, C H M, van den Ende

Publikováno v: Clinical and experimental rheumatology. 32(6 Suppl 86)

Knowledge about the nature and impact of symptoms faced by patients with systemic sclerosis (SSc) is needed to identify targets for research and treatment. The aim of this study was to assess and compare the frequency and impact on everyday activitie

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::51be9d7f41eccdc7ee6918e4d7ca5379
https://pubmed.ncbi.nlm.nih.gov/25372793

Molecular Heterogeneity of Second and Fourth Components of Complement and Their Genes in Systemic Sclerosis and Association of HLA Alleles A1, B8 and DR3 with Limited and DR5 with Diffuse Systemic Sclerosis

Autor: R. F. H. J. Hulsmans, L.P. de Waal, F. H. J. Van Den Hoogen, Jan D. Bos, A. M. T. Boerbooms, Syed S. Asghar, M. de Kok-Nazaruk, G.T. Venneker, M. van Meegen

Publikováno v: Experimental and clinical immunogenetics, 15(2), 90-99. S. Karger AG
Experimental and Clinical Immunogenetics, 15, 90-99
Experimental and Clinical Immunogenetics, 15, pp. 90-99

Deficiency of the complement component C4 at the functional, protein and gene level and deficiency of complement component C2 at the functional level were investigated and HLA analysis was performed on patients with limited and diffuse systemic scler

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e69ef1837fdb3d174d99a6639f75297b
https://hdl.handle.net/2066/138828

Hypothalamic-pituitary-adrenal axis activity in patients with rheumatoid arthritis

Autor: A M M, Eijsbouts, F H J, van den Hoogen, R F J M, Laan, A R M M, Hermus, C G J, Sweep, L B A, van de Putte

Publikováno v: Clinical and experimental rheumatology. 23(5)

To study the hypothalamic-pituitary-adrenal (HPA) axis in patients with rheumatoid arthritis (RA).Fifty patients with RA participated in 3 groups: recent onset active RA (n = 20), longstanding active RA (n = 20) and long-standing RA in remission (n =

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::e41b9c1515b0b48014ae6df7a145c625
https://pubmed.ncbi.nlm.nih.gov/16173242

Appearance self-esteem in systemic sclerosis—subjective experience of skin deformity and its relationship with physician-assessed skin involvement, disease status and psychological variables.

Autor: W. G. J. M. van Lankveld, M. C. Vonk, H. Teunissen, F. H. J. van den Hoogen

Publikováno v: Rheumatology; May2007, Vol. 46 Issue 5, p872-876, 5p