Zobrazeno 1 - 10
of 27
pro vyhledávání: '"Evert-Ben Van Veen"'
Publikováno v:
Open Research Europe, Vol 2 (2024)
Large European research consortia in the health sciences face challenges regarding the governance of personal data collected, generated and/or shared during their collective research. A controller in the sense of the GDPR is the entity which decides
Externí odkaz:
https://doaj.org/article/bd8cb90e86c14d7db5050002e9d6690a
Publikováno v:
Open Research Europe, Vol 2 (2022)
Large European research consortia in the health sciences face challenges regarding the governance of personal data collected, generated and/or shared during their collective research. A controller in the sense of the GDPR is the entity which decides
Externí odkaz:
https://doaj.org/article/bc1be95e41ee42e4ba8bff8facb527f7
Autor:
Boeckhout, Martin, Evert-Ben Van Veen
This deliverable aims at getting the conversation about data protection, ethics and governance within HEAP going. A common instrument for assessing and addressing data protection requirements involves conducting a data protection impact assessment (D
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::10ee31c10771426f6eddd141c290a7d1
Autor:
Evert-Ben van Veen, Daniel Groos
Publikováno v:
European Data Protection Law Review. 6:498-508
Autor:
Dorota Krekora-Zajac, Gauthier Chassang, Anastassia Negrouk, Evert-Ben van Veen, Jane Reichel, Katharina Ó Cathaoir, Anne Kjersti Befring, Maja Šutalo, Isabelle Huys, Michaela Th. Mayrhofer, Emmanuelle Rial-Sebbag, Carla Barbosa, Olga Tzortzatou, Anastasia Siapka, Mette Hartlev, Nils Hoppe, Kärt Pormeister, Jakub Pawlikowski, Peggy Valcke, Marta Tomasi, Jean-Jacques Derèze, Lukasz Kozera, Andreia da Costa Andrade, Ruth Falzon, Sofie Bekaert, Teodora Lalova, Michael Hisbergues, Radek Halouzka, Magnus Stenbeck, Laurent Dollé, Santa Slokenberga, Simone Penasa, Carlos M. Romeo-Casabona, Els Kindt, Tom Southerington, Annelies Debucquoy, Sonja Eaker Fält
Publikováno v:
GDPR and Biobanking ISBN: 9783030493875
GDPR and biobanking : individual rights, public interest and research regulation across Europe
GDPR and biobanking : individual rights, public interest and research regulation across Europe
This chapter seeks to provide an insight into how the regulatory discretion the GDPR has left to the Member States has been used. It reviews the biobank regulatory environment; whether and how derogations under Article 89(2) GDPR are enabled; the leg
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cd630310e34f5cc3608d6047cdf07df0
https://lirias.kuleuven.be/handle/123456789/667774
https://lirias.kuleuven.be/handle/123456789/667774
Publikováno v:
Computer
The aim of the third United Nations (UN) Sustainable Development Goal, dedicated to “Good Health and Well-Being,” is that all people can access the health services they need without facing financial hardship. The goal has three targets: 1) 1 bill
Akademický článek
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Autor:
Evert-Ben van Veen
Publikováno v:
European Journal of Cancer. 104:70-80
Insights into the incidence and survival of cancer, the influence of lifestyle and environmental factors and the interaction of treatment regimens with outcomes are hugely dependent on observational research, patient data derived from the healthcare
Publikováno v:
Medical Law Review, 27(1), 59-78. Oxford University Press
Medical law review
Medical law review
There is an inherent tension between critical care research and data protection. Becauseof their condition it is not possible to ask for the patients’ informed consent to be enrolled in observational research at the point of admission to the hospit
Autor:
Corina van den Hurk, Harry Comber, Stefano Rosso, Lidia Sacchetto, Hans H. Storm, Sabine Siesling, Roberto Zanetti, Evert Ben Van Veen, Janny Van Den Eijnden-Van Raaij, Marieke W. Louwman, Jan Willem Coebergh
Publikováno v:
European Journal of Cancer, 51(9), 1050-1063. Elsevier Ltd.
European journal of cancer, 51(9):9426, 1050-1063. Elsevier
European journal of cancer, 51(9):9426, 1050-1063. Elsevier
Currently about 160 population-based cancer registries (CRs) in Europe have extensive experience in generating valid information on variation in cancer risk and survival with time and place. Most CRs cover all cancers, but some are confined to specif