Zobrazeno 1 - 6
of 6
pro vyhledávání: '"Eva Vroonland"'
Autor:
Casper G. Schoemaker, Inge Schalkers, Brigit A. de Jong, Wilma Wissink, Sacha le Loux, Ronald A. M. Buijsen, Klaas Russcher, Frank A. M. van der Steeg, Janine Blom, Eva Vroonland
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-13 (2024)
Abstract Background Patient involvement is most common during the first phases of a research project. Despite good intentions, maintaining meaningful collaborations throughout the research process doesn't seem easy. Several training programmes for re
Externí odkaz:
https://doaj.org/article/ee6e3845f807453e807ac51baf83caf1
The most important problems and needs of rasopathy patients with a noonan syndrome spectrum disorder
Autor:
Dagmar K. Tiemens, Lotte Kleimeier, Erika Leenders, Ellen Wingbermühle, Renee L. Roelofs, Barbara Sibbles, Floor S.M. Oostwegel, Eva Vroonland, Conny van Leeuwen, Hanneke Niessen, Paul Sonnega, Anniek Duursma, Michel A. A. P. Willemsen, Jos M. T. Draaisma, Carina A.C.M. Pittens
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-13 (2023)
Abstract Background Noonan syndrome spectrum disorders (NSSDs) constitute a group within the Rasopathies, and are one of the largest groups of syndromes with impact on multi-organ involvement known. The extreme variability of the clinical phenotype i
Externí odkaz:
https://doaj.org/article/8e92a1191a724fcd889347982f848af1
Publikováno v:
Research Involvement and Engagement, Vol 5, Iss 1, Pp 1-13 (2019)
Abstract Background & Objective Involving patients in scientific research has been shown to improve the relevance of the research, as well as its quality and applicability. Harteraad, the Dutch patient organization for people with cardiovascular dise
Externí odkaz:
https://doaj.org/article/abae5ee14e854bb580331dd5dbbd1d22
Publikováno v:
Frontiers in Medicine, Vol 7 (2020)
Background: Involving patients' representatives in the research and development of medicinal products (medicines R&D) leads to better medical treatment. In 2014, the European Patients' Academy on Therapeutic Innovation (EUPATI) was started with the g
Externí odkaz:
https://doaj.org/article/cff75b401e554413b96cbe92f4fca5d8
Autor:
Simone Harmsen, Carina A C M Pittens, Eva Vroonland, Annemiek J M L van Rensen, Jacqueline E W Broerse
Publikováno v:
Harmsen, S, Pittens, C A C M, Vroonland, E, Rensen, A J M L V & Broerse, J E W 2022, ' Supporting health researchers to realize meaningful patient involvement in research: Exploring researchers’ experiences and needs ', Science and Public Policy, vol. 49, no. 5, pp. 751-764 . https://doi.org/10.1093/scipol/scac024
Science and Public Policy, 49(5), 751-764. Beech Tree Publishing
Science and Public Policy, 49(5), 751-764. Beech Tree Publishing
Involving patients in health research requires a new way of working for all stakeholders involved, including researchers. This research aimed (1) to gain deeper insight into the experiences and needs of researchers regarding meaningful patient involv
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c1e31b2a072a6b64b3b926c12a8f0ae8
https://doi.org/10.1093/scipol/scac024
https://doi.org/10.1093/scipol/scac024
Publikováno v:
Vroonland, E, Schalkers, I, Bloemkolk, D & Dedding, C 2019, ' Patient involvement in cardiovascular research: a qualitative impact evaluation ', Research Involvement and Engagement, vol. 5, no. 29 . https://doi.org/10.1186/s40900-019-0165-z
Research Involvement and Engagement, 5(29). BioMed Central Ltd.
Research Involvement and Engagement, Vol 5, Iss 1, Pp 1-13 (2019)
Research Involvement and Engagement
Research Involvement and Engagement, 5(29). BioMed Central Ltd.
Research Involvement and Engagement, Vol 5, Iss 1, Pp 1-13 (2019)
Research Involvement and Engagement
Background & Objective Involving patients in scientific research has been shown to improve the relevance of the research, as well as its quality and applicability. Harteraad, the Dutch patient organization for people with cardiovascular diseases, has
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a667bf36ff2c80f65556b727cc5e5649
https://research.vumc.nl/en/publications/07dc688c-72f6-4db8-b7ec-08a55b4cdd1e
https://research.vumc.nl/en/publications/07dc688c-72f6-4db8-b7ec-08a55b4cdd1e
