Zobrazeno 1 - 3
of 3
pro vyhledávání: '"Eva Stumpe"'
Autor:
Thorsten Langer, Nicole Gusset, Astrid Pechmann, Eva Stumpe, Susanne Dürr, Annette Mund, Julia Matilainen, Sylvia Meyer, Michael Barth, Anneke Haddad
Publikováno v:
Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen. 173:98-105
Publikováno v:
European Journal of Paediatric Neurology, 30, 105-107. W.B. Saunders Ltd
Response to letter: A decision for life – Treatment decisions in newly diagnosed families with spinal muscular atrophy, European Journal of Paediatric Neurology, Volume 30, January 2021, Pages 103-104
Autor:
Nicole Gusset, Caroline Stalens, Mencia de Lemus, Marie-Christine Ouillade, Eva Stumpe, Alexandre Mejat, Lori Klouvi
Publikováno v:
Neuromuscular disorders : NMD. 31(5)
Following the 2017 approval of a first spinal muscular atrophy (SMA) treatment by the European Medicines Agency, SMA Europe launched a Europe-wide survey with the goal of understanding patients' treatment expectations, realities of daily living and a