Patient satisfaction and acceptability of an on-demand and on-prophylaxis device for factor VIII delivery in patients with hemophilia A

Autor: Di Minno G, Santagostino E, Morfini M, Ettorre C, Cultrera D, Baldacci E, Russo E, Gallucci C

Publikováno v: Patient Preference and Adherence, Vol Volume 13, Pp 233-240 (2019)

Giovanni Di Minno,1 Elena Santagostino,2 Massimo Morfini,3 Cosimo Ettorre,4 Dorina Cultrera,5 Erminia Baldacci,6 Eleonora Russo,7 Cristiano Gallucci7 On behalf of the Italian FusENGO B1831081 Study Group 1Department of Clinical Medicine and Surgery,

Externí odkaz: https://doaj.org/article/c1eafd6b3cd244b185e6c1edde08d27f

Consensus statements on vaccination in patients with haemophilia—Results from the Italian haemophilia and vaccinations (HEVA) project

Autor: Santagostino E., Riva A., Cesaro S., Esposito S., Matino D., Mazzucchelli R. I., Molinari, Angelo Claudio, Mura R., Notarangelo L. D., Tagliaferri A., Di Minno G., Clerici M., Ambaglio C., Brigida Aru A., Baldacci E., Barillari G., Basso M., Bernasconi S., Bertamino M., Bertoni E., Biasoli C., Federica Biguzzi E., Bonetti E., Borchiellini A., Bulgarelli S., Cabibbo S., Cantori I., Castaman G., Castiglia P., Coluccia A., Coppetelli U., Coppola A., Cultrera D., De Candia E., Delios G., Di Gennaro L., Di Gregorio P., Di Minno M., Dragani A., Pietro Ettorre C., Franchini M., Galli M., Gallo G., Giordano P., Giuffrida G., Iannaccaro P., Lassandro G., Lazzareschi I., Linari S., Luciani M., Macchi S., Malcangi G., Malizia R., Marietta M., Marino R., Massoud M., Gabriella Mazzucconi M., Milan M., Morfini M., Napolitano M., Pasca S., Pedrazzi P., Peyvandi F. A., Piscitelli L., Pollio B., Preti P., Quintavalle G., Radossi P., Raso S., Ricca I., Rocino A., Santoro C., Carlotta Santoro R., Sarolo L., Schiavoni M., Schiavulli M., Sciancalepore P., Luisa Serino M., Mario Siragusa S., Sottilotta G., Svahn J., Valdre L., Cristina Vedovati M., Zanon E.

Publikováno v: Haemophilia

Vaccination against communicable diseases is crucial for disease prevention, but this practice poses challenges to healthcare professionals in patients with haemophilia. Poor knowledge of the vaccination requirements for these patients and safety con

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8004efd0a80799fd4186bbe2e9c69834
http://hdl.handle.net/11391/1450867

Fostering drug storage, preparation and treatment modalities improves adherence to treatment with turoctocog-alfa in patients with haemophilia A: Results from a short-term follow-up

Autor: Napolitano, M, Marino, R, Baldacci, E, Coluccia, A, Cultrera, D, Luciani, M, Pasca, S, Pieri, L, Ricca, I, Barillari, G, Ettorre, C, Linari, S, Valeri, F, Siragusa, S, Rocino, A

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=od______3657::13a19ed21b43f89a047fdd565832b7b0
http://hdl.handle.net/11577/3397999

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Replacement therapy with recombinant factor IX. A multicentre evaluation of current dosing practices in Italy

Autor: Rocca A, Pizzinelli S, Oliovecchio E, Santagostino E, Rocino A, Iorio A, Contino L, Accorsi A, Ettorre C, Scaraggi FA, Rodorigo G, Valdrè L, Targhetta R, Tagariello G, Radossi P, Muleo G, Biasioli C, Morfini M, Molinari AC, Mariani G, Carloni MT, Cantori I, Mannucci PM, Coppola A, Schiavulli M, Zanon E, Tagliaferri A, Rivolta F, Marchesini E, Marcucci M, Dragani A, D'Inca M, Luciani M, Mazzucconi MG, Santoro C, Schinco P, Rossetti G, Barillari G, Gandini G, Castaman G., DI MINNO, GIOVANNI

Background: The in vivo recovery of recombinant factor IX (rFIX) is reported to be lower than that of plasma-derived products, with potential clinical implications for dosing. In clinical practice, a conversion (augmentation) factor is suggested to c

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=od______3730::d9e77be2a8df714b159e962174fdc7a6
http://hdl.handle.net/11588/477006