A Road Map for Remote Digital Health Technology for Motor Neuron Disease

Autor: Ruben P A van Eijk, Anita Beelen, Esther T Kruitwagen, Deirdre Murray, Ratko Radakovic, Esther Hobson, Liam Knox, Jochem Helleman, Tom Burke, Miguel Ángel Rubio Pérez, Evy Reviers, Angela Genge, Frederik J Steyn, Shyuan Ngo, John Eaglesham, Kit C B Roes, Leonard H van den Berg, Orla Hardiman, Christopher J McDermott

Publikováno v: Journal of Medical Internet Research, Vol 23, Iss 9, p e28766 (2021)

Despite recent and potent technological advances, the real-world implementation of remote digital health technology in the care and monitoring of patients with motor neuron disease has not yet been realized. Digital health technology may increase the

Externí odkaz: https://doaj.org/article/4eaeac49fb7e4270b5a96f17f524d2c2

Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study

Autor: Remko M. van Eenennaam, Loulou S. Koppenol, Willeke J. Kruithof, Esther T. Kruitwagen-van Reenen, Sotice Pieters, Michael A. van Es, Leonard H. van den Berg, Johanna M. A. Visser-Meily, Anita Beelen

Publikováno v: Brain Sciences, Vol 11, Iss 12, p 1597 (2021)

The ENCALS survival prediction model offers patients with amyotrophic lateral sclerosis (ALS) the opportunity to receive a personalized prognosis of survival at the time of diagnosis. We explored experiences of patients with ALS, caregivers, and phys

Externí odkaz: https://doaj.org/article/5a9491b0333d498d83c907bf4f11acd9

Differences in Societal Participation Across Diagnostic Groups: Secondary Analyses of 8 Studies Using the Utrecht Scale for Evaluation of Rehabilitation-Participation

Autor: Nienke ter Hoeve, Tanja I. Mol, Marcel W M Post, Coen A M van Bennekom, Vera P. M. Schepers, Esther T. Kruitwagen-van Reenen, Johanna M A Visser-Meily

Publikováno v: Archives of Physical Medicine and Rehabilitation, 102(9), 1735-1745. W.B. Saunders
Archives of Physical Medicine and Rehabilitation, 102(9), 1735-1745. W B SAUNDERS CO-ELSEVIER INC
Archives of physical medicine and rehabilitation, 102(9), 1735-1745. W.B. Saunders Ltd

OBJECTIVE: To determine differences in participation problems between diagnostic groups and to examine diagnosis as a determinant of participation with and without statistically accounting for confounders.DESIGN: Secondary analyses of data from 8 stu

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5a9afe097c8b0e46b9c2b10cbe589bc4
https://doi.org/10.1016/j.apmr.2021.02.024

Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study

Autor: Michael A. van Es, Anita Beelen, Loulou S. Koppenol, Esther T. Kruitwagen-van Reenen, Willeke J. Kruithof, Johanna M A Visser-Meily, Sotice Pieters, Remko M. van Eenennaam, Leonard H. van den Berg

Publikováno v: Brain Sciences, Vol 11, Iss 1597, p 1597 (2021)
Brain Sciences
Brain Sciences; Volume 11; Issue 12; Pages: 1597

The ENCALS survival prediction model offers patients with amyotrophic lateral sclerosis (ALS) the opportunity to receive a personalized prognosis of survival at the time of diagnosis. We explored experiences of patients with ALS, caregivers, and phys

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::47d673fc01d38c9ba458c839786a9459
https://www.mdpi.com/2076-3425/11/12/1597

Electrophysiology of fatigue in chronic inflammatory demyelinating polyneuropathy: Can it be useful?

Autor: Willeke J. Kruithof, H. Stephan Goedee, Jaap N E Bakers, Esther T. Kruitwagen-van Reenen, W. Ludo van der Pol, Boudewijn T.H.M. Sleutjes

Publikováno v: Clinical Neurophysiology. 131:2912-2914

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a9e599205a30dc12b36090a356f17b82
https://doi.org/10.1016/j.clinph.2020.09.014