Zobrazeno 1 - 10
of 10
pro vyhledávání: '"Estefany Saez-Flores"'
Publikováno v:
Training and Education in Professional Psychology. 14:176-184
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::ba9e8dd7d5cc9bf875c57d5134339669
https://doi.org/10.1037/tep0000256
https://doi.org/10.1037/tep0000256
Autor:
Christina J. Nicolais, Alexandra L. Quittner, Ruth Bernstein, Katherine A. McLean, Estefany Saez-Flores, Kristin A. Riekert
Publikováno v:
Journal of clinical psychology in medical settings. 26(4)
Cystic fibrosis (CF) is a progressive, genetic disease affecting multiple organ systems. Treatments are complex and take 2–4 h per day. Adherence is 50% or less for pulmonary medications, airway clearance, and enzymes. Prior research has identified
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e8a95451a3607e9c2eaafede547471bc
https://pubmed.ncbi.nlm.nih.gov/30790101
https://pubmed.ncbi.nlm.nih.gov/30790101
Autor:
Robin Abel, Steven H. Abman, Eric Alton, Daniel R. Ambruso, William Carl Anderson, Karthik Balakrishnan, Ian Michael Balfour-Lynn, Anna Bamford, Ronen Bar-Yoseph, Erika Berman-Rosenzweig, Deepika Bhatla, Joshua A. Blatter, R. Paul Boesch, Matias Bruzoni, Andrew Bush, Michael Bye, Kai Håkon Carlsen, Anne B. Chang, Stephanie D. Chao, Michelle Chatwin, Bimal Pankaj Chaudhari, Lyn Chitty, Nicola Collins, Dan M. Cooper, Jonathan Corren, Robin T. Cotton, Andrea Coverstone, Suzanne Crowley, Steve Cunningham, Garry R. Cutting, Dorottya Czovek, Charles L. Daley, Gwyneth Davies, Jane C. Davies, Alessandro de Alarcòn, Emily M. DeBoer, Marietta Morales De Guzman, Sharon D. Dell, Robin Deterding, Gail H. Deutsch, Sunalene Devadason, William Graham Fox Ditcham, Jill Dorsey, Francine M. Ducharme, John Engelhardt, Mark L. Everard, Leland L. Fan, Albert Faro, Thomas Ferkol, Louise Fleming, Angela Mary Fonceca, Hammad A. Ganatra, Amy Michelle Garcia, David Gozal, Diane Gray, Anne Greenough, Uta Griesenbach, Jonathan Grigg, James S. Hagood, Jürg Hammer, Aaron Hamvas, Jonny Harcourt, Pia J. Hauk, Ulrich Heininger, Alexander John Henderson, Marianna M. Henry, Richard J. Hewitt, Heather Young Highsmith, Noah H. Hillman, Heather Ellen Hoch, Jeong S. Hyun, Mas Suhaila Isa, Adam Jaffé, Lance C. Jennings, Alan H. Jobe, Ankur A. Kamdar, Bhushan Katira, Brian P. Kavanagh, James Kemp, Carolyn M. Kercsmar, Leila Kheirandish-Gozal, Wilson King, Paul Kingma, Jennifer Knight-Madden, Alan Paul Knutsen, Alik Kornecki, Usha Krishnan, Geoffrey Kurland, Hugh Simon Lam, Claire Langston, Ada Lee, Margaret W. Leigh, Daniel Lesser, Clare M. Lloyd, Anna Maria Mandalakas, Paulo J.C. Marostica, Stacey L. Martiniano, Jennifer Maybee, Karen M. McDowell, Peter Michelson, Aaron Samuel Miller, Claire Kane Miller, Ayesha Mirza, David R. Murdoch, Christopher J.L. Newth, Andrew Gordon Nicholson, Jerry A. Nick, Christina J. Nicolais, Terry L. Noah, Lawrence M. Nogee, Blakeslee Noyes, Andrew H. Numa, Ann-Christine Nyquist, Hugh O'Brodovich, Matthias Ochs, J. Tod Olin, Øystein Olsen, Catherine Owens, Howard B. Panitch, Hans Pasterkamp, Donald Payne, Scott Pentiuk, Jeremy Prager, Jean-Paul Praud, Andrew P. Prayle, Bernadette Prentice, Philip E. Putnam, Alexandra L. Quittner, Shlomit Radom-Aizik, Suchitra Rao, Mobeen Rathore, Gregory J. Redding, Michael Rutter, Estefany Saez-Flores, Sejal Saglani, Rayfel Schneider, Kenneth O. Schowengerdt, Marcelo C. Scotta, Thomas Semple, Laurie Sherlock, Ram N. Singh, Raymond G. Slavin, Peter Sly, Bjarne Smevik, Keely Garrett Smith, Jonathan Spahr, James M. Stark, Jeffrey R. Starke, Renato T. Stein, Paul C. Stillwell, Dennis C. Stokes, Daniel T. Swarr, Stuart Charles Sweet, Stanley James Szefler, Paul Tambyah, Christelle Xian-Ting Tan, James Temprano, Chad M. Thorson, Bruce C. Trapnell, Brian Michael Varisco, Timothy J. Vece, Harish G. Vyas, Ruth Wakeman, Colin Wallis, Jennifer Wambach, Daniel J. Weiner, Anja M. Werno, Susan E. Wert, Jeffrey A. Whitsett, Robert William Wilmott, Robert E. Wood, Christopher Todd Wootten, Marie Wright, Sarah Wright, Rae S.M. Yeung, Takeshi Yoshida, Carolyn Young, Lisa R. Young, Heather J. Zar, Pamela Leslie Zeitlin, David Zielinski
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::34d96ab4068e695d68baf2fc1b6f5cab
https://doi.org/10.1016/b978-0-323-44887-1.00085-7
https://doi.org/10.1016/b978-0-323-44887-1.00085-7
Patient-reported outcomes (PROs) are instruments that evaluate daily functioning and health outcomes from the patient's perspective. If developed using standardized procedures (FDA Guidance, 2009), they can be used as primary or secondary outcomes in
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::9634ac120f7a00944c6dfcd67afd9109
https://doi.org/10.1016/b978-0-323-44887-1.00013-4
https://doi.org/10.1016/b978-0-323-44887-1.00013-4
Autor:
Ryan D. Nipp, Lara Traeger, Estefany Saez-Flores, Erin Kobetz, Matthew Schlumbrecht, William F. Pirl
Publikováno v:
Journal of oncology practice. 14(6)
Purpose: ASCO recommends early involvement of palliative care for patients with advanced cancers on the basis of evidence from 18 randomized trials. We examined racial and ethnic minority representation in these trials and the role of race and ethnic
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::520405e42012075c6a0927117e7a886f
https://pubmed.ncbi.nlm.nih.gov/29813013
https://pubmed.ncbi.nlm.nih.gov/29813013
Publikováno v:
Emerging Issues in Family and Individual Resilience ISBN: 9783319260310
Cystic fibrosis (CF) is a life-shortening and recessive genetic disorder that affects approximately 1 in 2500 live births worldwide. The disorder affects the functions of multiple organs including the lungs, pancreas, liver, and reproductive system a
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::431d6e1eac21e36cbc70a7574f035692
https://doi.org/10.1007/978-3-319-26033-4_4
https://doi.org/10.1007/978-3-319-26033-4_4
Publikováno v:
Current opinion in pulmonary medicine. 22(2)
Purpose of review Cystic fibrosis (CF) is the most common genetic, life-shortening illness among white populations. Management of the disease requires a complex, time-consuming treatment regimen. The purpose of this review is to highlight current res
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7be55d29f6d35661aa04b96e59467ad5
https://pubmed.ncbi.nlm.nih.gov/26814144
https://pubmed.ncbi.nlm.nih.gov/26814144
Autor:
Matthias Salathe, Kenneth N. Olivier, Kevin P. Fennelly, Alexandra L. Quittner, Estefany Saez-Flores, Andreas Schmid, Anjana Madan
Publikováno v:
10.1 Respiratory Infections.
Background: Patient-reported outcomes (PROs) offer key information about living with a chronic illness. NTM can co-occur with bronchiectasis, causing symptoms that impair health-related quality of life (HRQoL). NTM is hard to treat and few good outco
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::a8095ead58d0de88e17f50b82d833a38
https://doi.org/10.1183/13993003.congress-2015.pa2635
https://doi.org/10.1183/13993003.congress-2015.pa2635
Autor:
A. Colin, P.B. Pedreira, Christina J. Nicolais, Alexandra L. Quittner, Estefany Saez-Flores, Matthias Salathe
Publikováno v:
Journal of Cystic Fibrosis. 15:S113-S114
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::9e43d0478d2671fb7957ceaabaf135f6
https://doi.org/10.1016/s1569-1993(16)30484-2
https://doi.org/10.1016/s1569-1993(16)30484-2
Autor:
William F. Pirl, Jennifer S. Temel, Joseph A. Greer, Areej El-Jawahri, Kobetz Erin, Neysari Arana, Estefany Saez-Flores
Publikováno v:
Journal of Clinical Oncology. 35:104-104
104 Background: While ASCO guidelines recommend early palliative care (PC) for patients with metastatic cancer, few African Americans (AA) have participated in PC trials and little data exist on the acceptability and effect of early PC in this popula
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::b28a9a674e2b3b1bba2922296c62665d
https://doi.org/10.1200/jco.2017.35.31_suppl.104
https://doi.org/10.1200/jco.2017.35.31_suppl.104