Zobrazeno 1 - 2
of 2
pro vyhledávání: '"Erin D. Harris"'
Autor:
Sarah K. Savage, Catherine Clinton, Sonja I. Ziniel, Patrick L. Taylor, Erin D. Harris, Ingrid A. Holm, Jonathan G. Amatruda, Robert C. Green, Noelle Huntington
Publikováno v:
Genetics in Medicine. 14:330-337
Little is known about parental attitudes toward return of individual research results (IRRs) in pediatric genomic research. The aim of this study was to understand the views of the parents who enrolled their children in a genomic repository in which
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3bc1168f60fb5a93dbf3a4fa63ee860c
https://doi.org/10.1038/gim.2011.25
https://doi.org/10.1038/gim.2011.25
Autor:
Erin D. Harris, Noelle Huntington, Sarah K. Savage, Robert C. Green, Ingrid A. Holm, Sonja I. Ziniel, Phoebe L. Bacon, Elissa R. Weitzman
Publikováno v:
Journal of empirical research on human research ethics : JERHRE. 10(2)
Understanding participants’ preferences for the return of individual research results (IRR) in genomic research may allow for the implementation of more beneficial result disclosure methods. We tested four preference-setting models through cognitiv
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5dd643217292004df8fa6245d914884c
https://pubmed.ncbi.nlm.nih.gov/25742675
https://pubmed.ncbi.nlm.nih.gov/25742675