Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat

Autor: Cagri Yildirim-Toruner, Rajdeep Pooni, Y. Ingrid Goh, Emily Becker-Haimes, James W. Dearing, Maria E. Fernandez, Esi M. Morgan, Gareth Parry, Jon M. Burnham, Stacy P. Ardoin, Fatima Barbar-Smiley, Joyce C. Chang, Peter Chiraseveenuprapund, Vincent Del Gaizo, Guy Eakin, Lisa C. Johnson, Yukiko Kimura, Andrea M. Knight, Melanie Kohlheim, Erica F. Lawson, Mindy S. Lo, Nancy Pan, Andrea Ring, Tova Ronis, Rebecca E. Sadun, Emily A. Smitherman, Alysha J. Taxter, Janalee Taylor, Richard K. Vehe, Sheetal S. Vora, Jennifer E. Weiss, Emily von Scheven, MAS for the CARRA Implementation Science Workgroup

Publikováno v: Pediatric Rheumatology Online Journal, Vol 20, Iss 1, Pp 1-11 (2022)

Abstract The translation of research findings into clinical practice is challenging, especially fields like in pediatric rheumatology, where the evidence base is limited, there are few clinical trials, and the conditions are rare and heterogeneous. I

Externí odkaz: https://doaj.org/article/427888d05bcb4374a3e09bdbf5e61c8d

Implementation of Rheumatology Health Care Transition Processes and Adaptations to Systems Under Stress: A Mixed‐Methods Study

Autor: Y. Ingrid Goh, Carra Transition Workgroup, Erica F. Lawson, Joyce C. Chang, Patience H. White, Kristine Carandang, Cora Sears, Rosemary G Peterson, Nicole Bitencourt, Rebecca E Sadun, Emily Smitherman, Risa Alperin, Rebecca S. Overbury

Publikováno v: Arthritis Care & Research. 75:689-696

OBJECTIVES Despite poor healthcare transition outcomes among young adults with pediatric rheumatic diseases, adoption of transition best practices is low. We sought to understand how structured transition processes were operationalized within pediatr

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a29a22a85349222788a25b266befbc1c
https://doi.org/10.1002/acr.24822

Community poverty level influences time to first pediatric rheumatology appointment in Polyarticular Juvenile Idiopathic Arthritis

Autor: Susan M. Goodman, Karen Onel, Bella Mehta, William Daniel Soulsby, Linda M. Gerber, Victoria Cooley, Nayimisha Balmuri, Erica F. Lawson

Publikováno v: Pediatric Rheumatology Online Journal, Vol 19, Iss 1, Pp 1-9 (2021)
Pediatric rheumatology online journal, vol 19, iss 1
Pediatric Rheumatology Online Journal

Background The impact of social determinants of health on children with polyarticular juvenile idiopathic arthritis (pJIA) is poorly understood. Prompt initiation of treatment for pJIA is important to prevent disease morbidity; however, a potential b

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::59527994a0a4217add9c0387be29b4f9
https://doaj.org/article/b71c0767be554429bf019179e3ee7d5f

Transitioning to Adulthood with a Rheumatic Disease: A Case-Based Approach for Rheumatology Care Teams

Autor: Rebecca E, Sadun, Lauren T, Covert, Erica F, Lawson

Publikováno v: Rheumatic diseases clinics of North America. 48(1)

Both pediatric and adult rheumatology care teams play a central role in health care transition, the shift from child- and family-centered to adult-oriented health care. Components of transition preparation include readiness assessment, setting self-m

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::f97dbea23cfa2f3e1393406a343417ea
https://pubmed.ncbi.nlm.nih.gov/34798943

Disease activity and health-care utilization among young adults with childhood-onset lupus transitioning to adult care: data from the Pediatric Lupus Outcomes Study

Autor: Aimee O. Hersh, Erica F. Lawson, Sara L Haro

Publikováno v: Lupus. 29(10)

Background Individuals with childhood-onset systemic lupus erythematosus (cSLE) must transfer from pediatric to adult care. The goal of this study was to examine disease activity and health-care utilization among young adults with cSLE who are underg

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::100e7954d5f4ba0f85257a75d38d3df0
https://pubmed.ncbi.nlm.nih.gov/32640935