Zobrazeno 1 - 3
of 3
pro vyhledávání: '"Enid, Aliaj"'
Autor:
Christina Roman, Alexandra C.H. Nowakowski, Julie Lazzara, Enid Aliaj, Kathryn M. Porter, Stephanie A. Kraft, Seema K. Shah, Drucy Borowitz, Benjamin S. Wilfond
Publikováno v:
SSM: Qualitative Research in Health, Vol 2, Iss , Pp 100091- (2022)
Background: We conducted a survey in an online forum without prior IRB approval which yielded information we wanted to share with the medical community. We sought approaches to ethically publish the survey's results. Objective: Address the ethical is
Externí odkaz:
https://doaj.org/article/3c507632bd7249d5abc74b3169a3c42f
Autor:
Meghana Sathe, Baha Moshiree, Enid Aliaj, MinJae Lee, Jessica Hudson, Alex Gifford, Susan Attel, Breck Gamel, Steven D. Freedman, Sarah Jane Schwarzenberg, A. Jay Freeman
Publikováno v:
Pediatric Pulmonology. 58:811-818
The success of highly effective modulator therapy (HEMT) has led to consideration of simpler regimens for people with CF (PwCF) with opportunities to modify burdensome regimens. Despite the intuitive appeal of discontinuing chronic therapies no longe
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f3439ec0a549e4ba027a8b1e55a8801e
https://doi.org/10.1002/ppul.26257
https://doi.org/10.1002/ppul.26257
Publikováno v:
Journal of Pediatric Gastroenterology & Nutrition. 75:e94-e97
People with cystic fibrosis (CF) and exocrine pancreatic insufficiency must take pancreatic enzyme replacement therapy (PERT) to prevent malnutrition and gastrointestinal (GI) symptoms. Finding better ways to manage GI complaints is a high priority f
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0427e1377814293b93dfc1b607c1f336
https://doi.org/10.1097/mpg.0000000000003606
https://doi.org/10.1097/mpg.0000000000003606