Zobrazeno 1 - 10
of 76
pro vyhledávání: '"Emmanuelle Rial Sebbag"'
Autor:
Bettina Couderc, Alfonsina Faya Robles, Nathalie Caunes-Hilary, Laurie Galiby, Emmanuelle Rial Sebbag
Publikováno v:
Canadian Journal of Bioethics, Vol 6, Iss 2 (2023)
Une procédure collégiale désigne le fait de recueillir, avant de prendre une décision médicale délicate, l’avis de l’ensemble de l’équipe de soins responsable du patient, incluant le personnel infirmier et aide-soignant, entre autres. La
Externí odkaz:
https://doaj.org/article/9eb0615bf65343d187184d6d96aa0bb6
Publikováno v:
Frontiers in Political Science, Vol 3 (2022)
Genome editing techniques have generated a growing interest following the discovery of the so-called CRISPR-Cas technique. It has raised a global uproar as regards its use in humans, especially after the 2018 announcement of a Chinese scientist who h
Externí odkaz:
https://doaj.org/article/acfbb3643763451db532b3a4a09c7dd0
Autor:
Jane Kaye, Sharon F. Terry, Eric Juengst, Sarah Coy, Jennifer R. Harris, Don Chalmers, Edward S. Dove, Isabelle Budin-Ljøsne, Clement Adebamowo, Emilomo Ogbe, Louise Bezuidenhout, Michael Morrison, Joel T. Minion, Madeleine J. Murtagh, Jusaku Minari, Harriet Teare, Rosario Isasi, Kazuto Kato, Emmanuelle Rial-Sebbag, Patricia Marshall, Barbara Koenig, Anne Cambon-Thomsen
Publikováno v:
Human Genomics, Vol 12, Iss 1, Pp 1-6 (2018)
Abstract Background Governments, funding bodies, institutions, and publishers have developed a number of strategies to encourage researchers to facilitate access to datasets. The rationale behind this approach is that this will bring a number of bene
Externí odkaz:
https://doaj.org/article/e7d4f2e57d0448179c4f585620fbab71
Autor:
Mark A. Rothstein, Dimitri Patrinos, Kyle B. Brothers, Ellen Wright Clayton, Yann Joly, Ma’n H. Zawati, Pamela Andanda, Thalia Arawi, Mireya Castañeda, Don Chalmers, Haidan Chen, Mohammed Ghaly, Ryoko Hatanaka, Aart C. Hendriks, Calvin W.L. Ho, Jane Kaye, Dorota Krekora-Zając, Won Bok Lee, Titti Mattsson, Pilar Nicolás, Obiajulu Nnamuchi, Emmanuelle Rial-Sebbag, Gil Siegal, Jane M. Wathuta, Bartha Maria Knoppers
Publikováno v:
The Journal of Pediatrics. :113524
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::48267c7ab7b14ce27862da56ec422197
https://doi.org/10.1016/j.jpeds.2023.113524
https://doi.org/10.1016/j.jpeds.2023.113524
Autor:
S. Talukdar, Emmanuelle Rial-Sebbag, S.E. Wallace, Clare Turnbull, M. Ladanyi, Chey Loveday, Chaitanya Bandlamudi, B.S. Taylor, Michael F. Berger, Diana Mandelker, S. Jezdic, H Hanson, Mark T.A. Donoghue, L. Hawkes, Daniel Chubb, M. Vivek, A. Kulkarni, Angela George, J.-Y. Douillard, Preethi Srinivasan, F. Meric-Bersntam, Katie Snape
Publikováno v:
Annals of Oncology. 32:1069-1071
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::29eee2164e0681f78be897c115f20497
https://doi.org/10.1016/j.annonc.2021.05.798
https://doi.org/10.1016/j.annonc.2021.05.798
Publikováno v:
Social Science Information. 59:12-34
Over the past twenty-five years, international organizations have adopted human rights declarations in an attempt to address emerging ethical, legal and social concerns associated with genetic research and technologies. While these declarations point
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::5802fc552d728ea395b7d134d84bd864
https://doi.org/10.1177/0539018419900139
https://doi.org/10.1177/0539018419900139
Publikováno v:
Anthropologie & Santé (2021)
Le séquençage du génome humain est de plus en plus utilisé en oncologie pédiatrique afin de diagnostiquer, de sélectionner un traitement ciblé ou un suivi adapté ou d’identifier une transmission héréditaire. Les investigations génétique
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cd25463acfb716cd172ba05671c2d3dd
https://doi.org/10.4000/anthropologiesante.9269
https://doi.org/10.4000/anthropologiesante.9269
Publikováno v:
Santé Publique. 34:25a-25a
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::0ed7c3f6864e163b911ead77578d820f
https://doi.org/10.3917/spub.220.0025a
https://doi.org/10.3917/spub.220.0025a
Autor:
Dorota Krekora-Zajac, Gauthier Chassang, Anastassia Negrouk, Evert-Ben van Veen, Jane Reichel, Katharina Ó Cathaoir, Anne Kjersti Befring, Maja Šutalo, Isabelle Huys, Michaela Th. Mayrhofer, Emmanuelle Rial-Sebbag, Carla Barbosa, Olga Tzortzatou, Anastasia Siapka, Mette Hartlev, Nils Hoppe, Kärt Pormeister, Jakub Pawlikowski, Peggy Valcke, Marta Tomasi, Jean-Jacques Derèze, Lukasz Kozera, Andreia da Costa Andrade, Ruth Falzon, Sofie Bekaert, Teodora Lalova, Michael Hisbergues, Radek Halouzka, Magnus Stenbeck, Laurent Dollé, Santa Slokenberga, Simone Penasa, Carlos M. Romeo-Casabona, Els Kindt, Tom Southerington, Annelies Debucquoy, Sonja Eaker Fält
Publikováno v:
GDPR and Biobanking ISBN: 9783030493875
GDPR and biobanking : individual rights, public interest and research regulation across Europe
GDPR and biobanking : individual rights, public interest and research regulation across Europe
This chapter seeks to provide an insight into how the regulatory discretion the GDPR has left to the Member States has been used. It reviews the biobank regulatory environment; whether and how derogations under Article 89(2) GDPR are enabled; the leg
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cd630310e34f5cc3608d6047cdf07df0
https://lirias.kuleuven.be/handle/123456789/667774
https://lirias.kuleuven.be/handle/123456789/667774
Publikováno v:
GDPR and Biobanking ISBN: 9783030493875
Since 1978 and the initial French data protection law (Loi n°78-17 du 6 Janvier 1978), consecutive modifications regarding the protection of personal health data, especially in 2004, 2016 and 2018, set up a strict legal regime for processing sensiti
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::43c5670b680bc4c3d4aa0aa330155580
https://doi.org/10.1007/978-3-030-49388-2_14
https://doi.org/10.1007/978-3-030-49388-2_14