Zobrazeno 1 - 10
of 19
pro vyhledávání: '"Emma Paulides"'
Autor:
Chloe Hinchliffe, Rana Zia Ur Rehman, Clemence Pinaud, Diogo Branco, Dan Jackson, Teemu Ahmaniemi, Tiago Guerreiro, Meenakshi Chatterjee, Nikolay V. Manyakov, Ioannis Pandis, Kristen Davies, Victoria Macrae, Svenja Aufenberg, Emma Paulides, Hanna Hildesheim, Jennifer Kudelka, Kirsten Emmert, Geert Van Gassen, Lynn Rochester, C. Janneke van der Woude, Ralf Reilmann, Walter Maetzler, Wan-Fai Ng, Silvia Del Din, the IDEA-FAST Consortium
Publikováno v:
Journal of NeuroEngineering and Rehabilitation, Vol 21, Iss 1, Pp 1-20 (2024)
Abstract Background Many individuals with neurodegenerative (NDD) and immune-mediated inflammatory disorders (IMID) experience debilitating fatigue. Currently, assessments of fatigue rely on patient reported outcomes (PROs), which are subjective and
Externí odkaz:
https://doaj.org/article/328393bd26b645fb94d7afee64834323
Autor:
Walter Maetzler, Leonor Correia Guedes, Kirsten Nele Emmert, Jennifer Kudelka, Hanna Luise Hildesheim, Emma Paulides, Hayley Connolly, Kristen Davies, Valentina Dilda, Teemu Ahmaniemi, Luisa Avedano, Raquel Bouça-Machado, Michael Chambers, Meenakshi Chatterjee, Peter Gallagher, Johanna Graeber, Corina Maetzler, Hanna Kaduszkiewicz, Norelee Kennedy, Victoria Macrae, Laura Carrasco Marín, Anusha Moses, Alessandro Padovani, Andrea Pilotto, Natasha Ratcliffe, Ralf Reilmann, Madalena Rosario, Stefan Schreiber, Dina De Sousa, Geert Van Gassen, Lori Ann Warring, Klaus Seppi, C. Janneke van der Woude, Joaquim J. Ferreira, Wan-Fai Ng
Publikováno v:
Digital Biomarkers, Vol 8, Iss 1, Pp 30-39 (2024)
Background: Fatigue is a prominent symptom in many diseases and is strongly associated with impaired daily function. The measurement of daily function is currently almost always done with questionnaires, which are subjective and imprecise. With the r
Externí odkaz:
https://doaj.org/article/660828ad7ec546d1a6dc10a64e7a913d
Publikováno v:
BMJ Open, Vol 12, Iss 4 (2022)
Externí odkaz:
https://doaj.org/article/0fea93e18d4d4cc0b553d22e3b6768e1
Autor:
Emma Paulides, Charlotte Daker, Chris Frampton, Richard B. Gearry, Tim Eglinton, Nanne K.H. de Boer, Charles N. Bernstein, Andrew M. McCombie
Publikováno v:
Inflammatory Intestinal Diseases, Pp 1-9 (2020)
Background: Inflammatory Bowel Disease (IBD) can have considerable effects on employment outcomes because of its disabling character. Goals: We aimed to investigate the impact of IBD in the workplace and to better understand the need for accommodatio
Externí odkaz:
https://doaj.org/article/502176baeba34ea1b54e96480b9213c4
Autor:
Annemarie C. de Vries, Rachel L A van Eijk, Annelieke Pasma, Nicole S. Erler, C. Janneke van der Woude, Emma Paulides
Publikováno v:
Digestive Diseases and Sciences
Digestive Diseases and Sciences, 67(7), 2849-2856. Springer New York
Digestive Diseases and Sciences, 67(7), 2849-2856. Springer New York
Background To learn from the crisis caused by the coronavirus disease (COVID-19) pandemic and be prepared for future pandemics, it is important to investigate the impact of this period on the wellbeing of patients with inflammatory bowel disease (IBD
Autor:
Nienke Z. Borren, Emma Paulides, C. Janneke van der Woude, Jody L. Frinack, Maria Alice V. Willrich, Ryan N. Olson, Ashwin N. Ananthakrishnan
Publikováno v:
Digestive Diseases and Sciences, 66(10), 3548-3554. Springer New York
Background: Therapeutic drug monitoring (TDM) is important in optimizing use of biologics in inflammatory bowel diseases (IBD). However, the role of proactive TDM during remission remains uncertain. Methods: This retrospective study included patients
Publikováno v:
BMJ Open, 12(4):e058358. BMJ Publishing Group
IntroductionCrohn’s disease (CD) is an inflammatory bowel disease (IBD). Several drugs exist to induce and maintain remission, but a significant part of the patients is refractory to current IBD drugs or experiences side effects. Whether low-dose n
Publikováno v:
Inflammatory Bowel Diseases
Paulides, E, Boukema, I, van der Woude, C J & de Boer, N K H 2021, ' The Effect of Psychotherapy on Quality of Life in IBD Patients : A Systematic Review ', Inflammatory Bowel Diseases, vol. 27, no. 5, pp. 711-724 . https://doi.org/10.1093/ibd/izaa144, https://doi.org/10.1093/ibd/izaa144
Paulides, E, Boukema, I, van der Woude, C J & de Boer, N K H 2021, ' The Effect of Psychotherapy on Quality of Life in IBD Patients : A Systematic Review ', Inflammatory Bowel Diseases, vol. 27, no. 5, pp. 711-724 . https://doi.org/10.1093/ibd/izaa144, https://doi.org/10.1093/ibd/izaa144
Background Patients with inflammatory bowel disease (IBD) express a need for additional psychotherapy; however, psychological support is not incorporated in the routine care of persons with IBD. This systematic review aims to assess the effect of psy
Publikováno v:
Frontline gastroenterology. 13(5)
BackgroundInflammatory bowel disease (IBD) has a major impact on different aspects of life of patients with IBD, but functioning in the home environment is under-reported in literature. The aim of this study was to assess the impact of IBD on househo
Autor:
Chris J. J. Mulder, Catherine Kim, Chris Frampton, Nanne K. H. de Boer, Tim Eglinton, Emma Paulides, Rupert W. Leong, Andrew McCombie, Richard B. Gearry
Publikováno v:
Journal of Gastroenterology and Hepatology. 34:92-102
Background and Aim: The Inflammatory Bowel Disease Disability Index (IBD-DI) is a measure of disability in inflammatory bowel disease (IBD). The IBD-DI is validated for use as a clinical interview but not for use as a self-report questionnaire. We ai