Zobrazeno 1 - 10
of 230
pro vyhledávání: '"Elizabeth D. Blume"'
Autor:
Lauren S. Crafts, Christopher Teng, Margaret Irwin, Angela M. Feraco, Andrew J. Lawton, Jennifer M. Snaman, Elizabeth D. Blume, Christina Ronai
Publikováno v:
BMC Medical Education, Vol 24, Iss 1, Pp 1-8 (2024)
Abstract Background Pediatric cardiology fellows often deliver serious news to families. Effective clinician-patient communication is the basis of strong therapeutic relationships and improves health outcomes, increases patient adherence, and enhance
Externí odkaz:
https://doaj.org/article/7212b3d2927b45c48b3732a14f131ccd
Autor:
Gerard T. Berry, Elizabeth D. Blume, Ann Wessel, Tajinder Singh, Leah Hecht, Deborah Marsden, Inderneel Sahai, Scott Elisofon, Michael Ferguson, Heung Bae Kim, David J. Harris, Didem Demirbas, Mohammed Almuqbil, William L. Nyhan
Publikováno v:
JIMD Reports, Vol 54, Iss 1, Pp 3-8 (2020)
Abstract Cardiomyopathy is a frequent complication of propionic acidemia (PA). It is often fatal, and its occurrence is largely independent of classic metabolic treatment modalities. Liver transplantation (LT) is a treatment option for severe PA as t
Externí odkaz:
https://doaj.org/article/ab2641ca9a6d489a88e3074f2d6a20bb
Autor:
Margaret Irwin, Geoffrey Binney, Kimberlee Gauvreau, Sitaram Emani, Elizabeth D. Blume, David W. Brown
Publikováno v:
Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, Vol 10, Iss 18 (2021)
Background Neo‐aortic root dilation and neo‐aortic regurgitation (AR) are common after arterial switch operation for D‐loop transposition of the great arteries. We sought to evaluate these outcomes in patients with bicuspid native pulmonary val
Externí odkaz:
https://doaj.org/article/a9667a7ce1b84473b9f0b8b07d31533d
Parent and Physician Understanding of Prognosis in Hospitalized Children With Advanced Heart Disease
Autor:
Emily Morell, Mary Katherine Miller, Minmin Lu, Kevin G. Friedman, Roger E. Breitbart, Jeffrey R. Reichman, Julie McDermott, Lynn A. Sleeper, Elizabeth D. Blume
Publikováno v:
Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, Vol 10, Iss 2 (2021)
Background The unpredictable trajectory of pediatric advanced heart disease makes prognostication difficult for physicians and informed decision‐making challenging for families. This study evaluated parent and physician understanding of disease bur
Externí odkaz:
https://doaj.org/article/ad1c6b0d85054e45956ed12cc9d29d40
Autor:
Melissa K. Cousino, Lindsay J. May, Lauren Smyth, Melissa McQueen, Katherine Thompson, Tiffany Hunter, Courtney Ventresco, Katrina Fields, Jenna Murray, Desiree S. Machado, Muhammad Shezad, Farhan Zafar, David N. Rosenthal, Angela Lorts, Elizabeth D. Blume
Publikováno v:
Cardiology in the Young. :1-9
Background: Patient- and proxy-reported outcomes (PROs) are an important indicator of healthcare quality and can be used to inform treatment. Despite the widescale use of PROs in adult cardiology, they are underutilised in paediatric cardiac care. Th
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::f84bd3968bf6140447e3019bfd3800a4
https://doi.org/10.1017/s1047951122004048
https://doi.org/10.1017/s1047951122004048
Autor:
Ryan L. Kobayashi, Maria A. Cetatoiu, Paul Esteso, Courtney Ventresco, Beth Hawkins, Kevin P. Daly, Elizabeth D. Blume, Francis Fynn-Thompson, Christina VanderPluym
Publikováno v:
ASAIO Journal.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::e216c0c9c1b455f03bea3a3de52d3192
https://doi.org/10.1097/mat.0000000000001889
https://doi.org/10.1097/mat.0000000000001889
Autor:
Faraz Alizadeh, Emily Morell, Kevin Hummel, Yunhong Wu, David Wypij, Danes Matthew, Paul Esteso, Katie Moynihan, Elizabeth D. Blume
Publikováno v:
Pediatric Cardiology. 43:1822-1831
There is significant uncertainty in describing prognosis and a lack of reliable entry criteria for palliative care studies in children with advanced heart disease (AHD). This study evaluates the utility of the surprise question-"Would you be surprise
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5108d468cd3263f74293ff46bf0bf3bb
https://doi.org/10.1007/s00246-022-02919-8
https://doi.org/10.1007/s00246-022-02919-8
Autor:
Kenneth Pituch, Emily E. Johnston, Elizabeth D. Blume, Katie M. Moynihan, Emily Morell, Sonja I. Ziniel
Publikováno v:
Pediatric Cardiology. 43:744-755
Children with heart disease often experience symptoms and medically intense end-of-life care. Our study explored bereaved parents' perceptions of a "good death" via a mail survey to 128 parents of children with heart disease who died in two centers.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::4a41a388b8ba59b9db624d63987b22c2
https://doi.org/10.1007/s00246-021-02781-0
https://doi.org/10.1007/s00246-021-02781-0
Publikováno v:
Journal of Pain and Symptom Management. 65:e655-e656
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::b07f4bb424a4cf398588c54e54c81df3
https://doi.org/10.1016/j.jpainsymman.2023.02.279
https://doi.org/10.1016/j.jpainsymman.2023.02.279
Publikováno v:
Cardiol Young
Workshop proceedings, priorities, and recommendations from the “State of the Science and Future Directions in Palliative and End-of-Life Care in Pediatric Cardiology,” a Harvard Radcliffe Accelerator Workshop, are detailed. Eight priorities for r
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c291b403fb2d26e335e8eb5d836d85dd
https://doi.org/10.1017/s104795112100233x
https://doi.org/10.1017/s104795112100233x