Zobrazeno 1 - 10
of 68
pro vyhledávání: '"Elin Haf, Davies"'
Autor:
Christel McMullan, Shamil Haroon, Grace Turner, Olalekan Lee Aiyegbusi, Anuradhaa Subramanian, Sarah E. Hughes, Sarah Flanagan, Krishnarajah Nirantharakumar, Elin Haf Davies, Chris Frost, Louise Jackson, Naijie Guan, Yvonne Alder, Amy Chong, Lewis Buckland, Felicity Jeyes, David Stanton, Melanie Calvert
Publikováno v:
Scientific Reports, Vol 14, Iss 1, Pp 1-13 (2024)
Abstract Post COVID-19 condition or long COVID is highly prevalent and often debilitating, with key symptoms including fatigue, breathlessness, and brain fog. There is currently a lack of evidence-based treatments for this highly complex syndrome. Th
Externí odkaz:
https://doaj.org/article/a5cb3cd57e1e4eccbd6fdf3518bec703
Autor:
Christel McMullan, Melanie Calvert, Alastair K Denniston, Karen Shaw, Sarah E Hughes, Olalekan Lee Aiyegbusi, Elin Haf Davies, Charles Craddock, David Burns, Francesca Kinsella, Paul Ferguson, Foram Khatsuria, Lester Pyatt, John Ansell, Evelyn Chakera, Julie Richardson-Abraham
Publikováno v:
BMJ Open, Vol 14, Iss 3 (2024)
Introduction Chimeric antigen receptor (CAR) T-cell therapies are novel, potentially curative therapies for haematological malignancies. CAR T-cell therapies are associated with severe toxicities, meaning patients require monitoring during acute and
Externí odkaz:
https://doaj.org/article/8f9a75a3f9bd4b25afae899d7b3ff01f
Autor:
Christel McMullan, Ameeta Retzer, Sarah E. Hughes, Olalekan Lee Aiyegbusi, Camilla Bathurst, Alan Boyd, Jamie Coleman, Elin Haf Davies, Alastair K. Denniston, Helen Dunster, Chris Frost, Rosie Harding, Amanda Hunn, Derek Kyte, Rebecca Malpass, Gary McNamara, Sandra Mitchell, Saloni Mittal, Philip N. Newsome, Gary Price, Anna Rowe, Wilma van Reil, Anita Walker, Roger Wilson, Melanie Calvert
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-13 (2023)
Abstract Background Electronic patient-reported outcome (ePRO) systems are increasingly used in clinical trials to provide evidence of efficacy and tolerability of treatment from the patient perspective. The aim of this study is twofold: (1) to descr
Externí odkaz:
https://doaj.org/article/1f4183a1c1e54a1a8341cfe7200a5ed5
Autor:
Tanya Collin-Histed, Madeline Stoodley, Kathleen Beusterien, Deborah Elstein, Dena H. Jaffe, Shoshana Revel-Vilk, Elin Haf Davies, the International Gaucher Alliance (IGA)
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-11 (2023)
Abstract Background Gaucher disease (GD) is a rare autosomal recessive lysosomal storage disorder. GD types 2 and 3 are known as neuronopathic Gaucher disease (nGD) because they have brain involvement that progresses over time. Implementing a systema
Externí odkaz:
https://doaj.org/article/966c96d854524e36b98f9a6d422e8753
Autor:
Vrinda Saraff, Annemieke M Boot, Agnès Linglart, Oliver Semler, Pol Harvengt, Angela Williams, Karen M A Bailey, Fiona Glen, Elin Haf Davies, Sue Wood, Stephen Greentree, Angela J Rylands
Publikováno v:
PLoS ONE, Vol 19, Iss 1, p e0295080 (2024)
The importance of patient centricity and keeping the patient at the heart of research design is now well recognised within the healthcare community. The involvement of patient, caregiver and clinician representatives in the study design process may h
Externí odkaz:
https://doaj.org/article/16f26078608f47bda925573937c86d22
Autor:
Rima Nabbout, Galliano Zanello, Dixie Baker, Lora Black, Isabella Brambilla, Orion J. Buske, Laurie S. Conklin, Elin Haf Davies, Daria Julkowska, Yeonju Kim, Thomas Klopstock, Harumasa Nakamura, Kim G. Nielsen, Anne R. Pariser, Jose Carlos Pastor, Maurizio Scarpa, Maureen Smith, Domenica Taruscio, Stephen Groft
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-10 (2023)
Abstract Background Many patients with rare diseases are still lacking a timely diagnosis and approved therapies for their condition despite the tremendous efforts of the research community, biopharmaceutical, medical device industries, and patient s
Externí odkaz:
https://doaj.org/article/c9ca331354bc45bb934c597b9e06fa26
Autor:
Grace M. Turner, Christel McMullan, Olalekan Lee Aiyegbusi, Sarah E. Hughes, Anita Walker, Felicity Jeyes, Yvonne Adler, Amy Chong, Lewis Buckland, David Stanton, Elin Haf Davies, Shamil Haroon, Melanie Calvert
Publikováno v:
Research Involvement and Engagement, Vol 9, Iss 1, Pp 1-13 (2023)
Plain English summary The World Health Organisation defines Long COVID as a condition which impacts people 3 months after they first had COVID-19. Some of the symptoms that characterise Long COVID symptoms include fatigue, breathlessness and brain fo
Externí odkaz:
https://doaj.org/article/408d0f2147dd491784ca1c52ebe5174d
Autor:
Grace A Bailey, Megan E. Wadon, Sandra Komarzynski, Clare Matthews, Elin Haf Davies, Kathryn J. Peall
Publikováno v:
Brain and Behavior, Vol 13, Iss 9, Pp n/a-n/a (2023)
Abstract Background Sleep disturbance is an increasingly recognized non‐motor trait in dystonia, with varying findings reported to date. Here, we examine sleep in a UK Biobank derived dystonia cohort using subjective self‐reported sleep symptoms
Externí odkaz:
https://doaj.org/article/f7da7c8793e14ef48b7531b2d618ec9a
Autor:
Jörg B Schulz, Kathrin Reetz, Sabrina Sayah, Feng Xie, Ludger Schöls, Thomas Klockgether, Thomas Klopstock, Sylvia Boesch, Alexandra Dürr, Elin Haf Davies, Maresa Buchholz, Niklas Weber, Stephanie Borel, Ivan Karin, Marcus Grobe-Einsler, Madeleine Schmeder, Andreas Nadke, Bernhard Michalowsky
Publikováno v:
BMJ Open, Vol 13, Iss 8 (2023)
Introduction Friedreich ataxia (FA) is the most common hereditary ataxia in Europe, characterised by progressively worsening movement and speech impairments with a typical onset before the age of 25 years. The symptoms affect the patients’ health-r
Externí odkaz:
https://doaj.org/article/bf2cf032245c4f42950300631be150bb
Autor:
Elin Haf Davies, Karen Fieggen, Jo Wilmshurst, Obuchinezia Anyanwu, Richard Joseph Burman, Sandra Komarzynski
Publikováno v:
Epilepsia Open, Vol 6, Iss 4, Pp 653-662 (2021)
Abstract Objective Resources for management of epilepsy in Africa are extremely limited reinforcing the need to develop innovative strategies for optimizing care. Studies have shown that the prevalence of epilepsy in low‐ and middle‐income countr
Externí odkaz:
https://doaj.org/article/c5dd67cb6da64877a94548fe1a940ae4