Engaging Patients in Setting a Patient-Centered Outcomes Research Agenda in Hematopoietic Cell Transplantation

Autor: Christina Ullrich, Alison W. Loren, Gloria Gee, Bronwen E. Shaw, Beatrice Abbetti, Barry A. Schatz, C. Fred LeMaistre, Susan Doughtie, Theresa Hahn, Elizabeth Murphy, David J. Vanness, Linda J. Burns, Navneet S. Majhail, Lakshmanan Krishnamurit, Ellen M. Denzen, Mark B. Juckett, Susan Kullberg, Areej El-Jawahiri, Stacie D. Arnold, Doug Rizzo, Jeff B. Bender, Karen L. Syrjala, D. Kathryn Tierney, Mary M. Horowitz, William A. Wood, Shirley Johnson, Wael Saber, Alva Roche-Green, Kim Schmit-Pokorny

Publikováno v: Biology of blood and marrow transplantation : journal of the American Society for Blood and Marrow Transplantation. 24(6)

The goal of patient-centered outcomes research (PCOR) is to help patients and those who care for them make informed decisions about healthcare. However, the clinical research enterprise has not involved patients, caregivers, and other non-providers r

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c246a542c62fae2e055ff032c5895462
https://pubmed.ncbi.nlm.nih.gov/29408289

Prospective Association of Psychological Distress and Sexual Quality of Life Among Hematopoietic Stem Cell Transplant Survivors.

Autor: Vencill JA; Department of Psychiatry & Psychology, Mayo Clinic, 200, 1st Street SW, Rochester, MN, 55905, USA.; Division of General Internal Medicine, Mayo Clinic, Rochester, MN, USA., Kirsch JL; Department of Psychiatry & Psychology, Mayo Clinic, 200, 1st Street SW, Rochester, MN, 55905, USA., McPherson K; Department of Psychiatry & Psychology, Mayo Clinic, 200, 1st Street SW, Rochester, MN, 55905, USA.; Minnesota State University, Mankato, MN, USA., Sprankle E; Minnesota State University, Mankato, MN, USA., Patten CA; Department of Psychiatry & Psychology, Mayo Clinic, 200, 1st Street SW, Rochester, MN, 55905, USA., Campana K; Minnesota State University, Mankato, MN, USA., Brockman T; Department of Psychiatry & Psychology, Mayo Clinic, 200, 1st Street SW, Rochester, MN, 55905, USA., Bronars C; Department of Psychiatry & Psychology, Mayo Clinic, 200, 1st Street SW, Rochester, MN, 55905, USA., Hughes C; Department of Psychiatry & Psychology, Mayo Clinic, 200, 1st Street SW, Rochester, MN, 55905, USA., Gastineau D; Department of Psychiatry & Psychology, Mayo Clinic, 200, 1st Street SW, Rochester, MN, 55905, USA., Ehlers SL; Department of Psychiatry & Psychology, Mayo Clinic, 200, 1st Street SW, Rochester, MN, 55905, USA. ehlers.shawna@mayo.edu.

Publikováno v: Journal of clinical psychology in medical settings [J Clin Psychol Med Settings] 2024 Apr 14. Date of Electronic Publication: 2024 Apr 14.

Practice patterns in chronic graft-versus-host disease patient management and patient reported outcome measures across the EBMT allogeneic transplantation network.

Autor: Perovic V; Institute for Microbiology and Immunology, Faculty of Medicine, University of Belgrade, Belgrade, Serbia., Sabol I; Division of Molecular Medicine, Ruđer Bošković Institute, Zagreb, Croatia., Grce M; Division of Molecular Medicine, Ruđer Bošković Institute, Zagreb, Croatia., Inngjerdingen M; Department of Pharmacology, Institute of Clinical Medicine, University of Oslo and Oslo University Hospital, Oslo, Norway., Pulanic D; Division of Hematology, Department of Internal Medicine, University Hospital Center Zagreb, Zagreb, Croatia.; School of Medicine, University of Zagreb, Zagreb, Croatia., Peric Z; Division of Hematology, Department of Internal Medicine, University Hospital Center Zagreb, Zagreb, Croatia.; School of Medicine, University of Zagreb, Zagreb, Croatia., Peczynski C; Clinical Sorbonne University Hematology and Cellular Therapy, Saint Antoine Hospital, INSERM UMR 938, Sorbonne University, Paris, France., Polge E; Clinical Sorbonne University Hematology and Cellular Therapy, Saint Antoine Hospital, INSERM UMR 938, Sorbonne University, Paris, France., Koenecke C; Department of Hematology, Hemostasis, Oncology and Stem Cell Transplantation, Hannover Medical School, Hannover, Germany., Dickinson A; Translational and Clinical Research Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, United Kingdom., Greinix H; Division of Hematology, Department of Internal Medicine, Medical University of Graz, Graz, Austria., Basak G; Department of Hematology, Oncology and Internal Medicine, Medical University of Warsaw, Warsaw, Poland., Penack O; Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Department of Department of Hematology, Oncology and Tumorimmunology, Berlin, Germany., Scherwath A; Department of Stem Cell Transplantation, University Medical Center Hamburg-Eppendorf, Hamburg, Germany., Barata A; Health Outcomes and Behavior Program, Moffitt Cancer Center, Tampa, FL, USA.; Hematology Department, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain.; Joseph Carreras Leukemia Research Institute, Barcelona, Spain., Olivieri A; Hematology Department and Stem Cell Transplant Unit, Università Politecnica delle Marche Università Politecnica delle Marche, Ancona, Italy., Lawitschka A; Stem Cell Transplantation (SCT)-Outpatient and Aftercare Clinic, St. Anna Children's Hospital, Medical University Vienna, Vienna, Austria., Mensah-Glanowska P; Jagiellonian University Medical College / University Hospital, Krakow, Poland., Andrikovics H; Laboratory of Molecular Genetics, Central Hospital of Southern Pest, National Institute of Hematology and Infectious Diseases, Budapest, Hungary., Schoemans H; Department of Public Health, University Hospitals of Leuven and KU Leuven, Leuven, Belgium., Wolff D; Department of Internal Medicine III, Faculty of Medicine, University Hospital Regensburg, Regensburg, Germany. Daniel.Wolff@klinik.uni-regensburg.de.

Publikováno v: Bone marrow transplantation [Bone Marrow Transplant] 2022 Sep; Vol. 57 (9), pp. 1458-1460. Date of Electronic Publication: 2022 Jun 11.

Transgender individuals represent an overlooked population amongst stem cell donors.

Autor: Adkins BD; Pathology, Microbiology and Immunology, Vanderbilt University Medical Center, Nashville, TN, USA. brian.adkins@vanderbilt.edu., Savani BN; Department of Internal Medicine, Division of Hematology and Oncology, Vanderbilt University Medical Center, Nashville, TN, USA., Booth GS; Pathology, Microbiology and Immunology, Vanderbilt University Medical Center, Nashville, TN, USA.

Publikováno v: Bone marrow transplantation [Bone Marrow Transplant] 2019 Nov; Vol. 54 (11), pp. 1721-1722. Date of Electronic Publication: 2019 Jan 18.

The EBMT/EHA CAR-T Cell Handbook

Autor: Nicolaus Kröger, John Gribben, Christian Chabannon, Ibrahim Yakoub-Agha, Hermann Einsele

This first open access European CAR-T Handbook, co-promoted by the European Society for Blood and Marrow Transplantation (EBMT) and the European Hematology Association (EHA), covers several aspects of CAR-T cell treatments, including the underlying b