Ethics governance in Scottish universities: how can we do better? A qualitative study

Autor: Edward S Dove, Cristina Douglas

Publikováno v: Research Ethics Review, Vol 19 (2023)

While ethical norms for conducting academic research in the United Kingdom are relatively clear, there is little empirical understanding of how university research ethics committees (RECs) themselves operate and whether they are seen to operate well.

Externí odkaz: https://doaj.org/article/97d0edbd9c6544669fd1ecb865560448

A Delphi Technology Foresight Study: Mapping Social Construction of Scientific Evidence on Metagenomics Tests for Water Safety.

Autor: Stanislav Birko, Edward S Dove, Vural Özdemir

Publikováno v: PLoS ONE, Vol 10, Iss 6, p e0129706 (2015)

Access to clean water is a grand challenge in the 21st century. Water safety testing for pathogens currently depends on surrogate measures such as fecal indicator bacteria (e.g., E. coli). Metagenomics concerns high-throughput, culture-independent, u

Externí odkaz: https://doaj.org/article/42e6fedce7d542f5b3b57157c5c94157

Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO).

Autor: Yann Joly, Edward S Dove, Bartha M Knoppers, Martin Bobrow, Don Chalmers

Publikováno v: PLoS Computational Biology, Vol 8, Iss 7, p e1002549 (2012)

Externí odkaz: https://doaj.org/article/7b0ab8bf8a5f4bdfacdbd318a13023a8

Achieving procedural parity in managing access to genomic and related health data:A global survey of data access committee (DAC) members

Autor: Jonathan Lawson, Vasiliki Rahimzadeh, Jinyoung Baek, Edward S. Dove

Publikováno v: Lawson, J, Rahimzadeh, V, Baek, J & Dove, E S 2023, ' Achieving procedural parity in managing access to genomic and related health data : A global survey of data access committee (DAC) members ', Biopreservation and biobanking . https://doi.org/10.1089/bio.2022.0205

Data access committees (DACs) are critical players in the data sharing ecosystem. DACs review requests for access to data held in one or more repositories, and where specific constraints determine how the data may be used and by whom. Our team survey

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1001d4d2c55e371b73093793eec2bbb7
https://www.pure.ed.ac.uk/ws/files/336699768/LawsonEtal2023BBAchievingProceduralParity.pdf

Secondary use of personal health data:When Is It 'further processing' under the GDPR, and what are the implications for data controllers?

Autor: Regina Becker, Davit Chokoshvili, Giovanni Comandé, Edward S. Dove, Alison Hall, Colin Mitchell, Fruzsina Molnár-Gábor, Pilar Nicolàs, Sini Tervo, Adrian Thorogood

Publikováno v: Becker, R, Chokoshvili, D, Comandé, G, Dove, E S, Hall, A, Mitchell, C, Molnár-Gábor, F, Nicolàs, P, Tervo, S & Thorogood, A 2022, ' Secondary use of personal health data : When Is It "further processing" under the GDPR, and what are the implications for data controllers? ', European Journal of Health Law, pp. 1-29 . https://doi.org/10.1163/15718093-bja10094
European Journal of Health Law

Contemporary biomedical research heavily relies on secondary use of personal health data that were obtained in a different clinical or research setting. Under the European Union’s General Data Protection Regulation (GDPR), data controllers processi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5aed2b6212a5e867abd470d9e33fcc4e
https://www.pure.ed.ac.uk/ws/files/297738779/BeckerEtal2022EJHLSecondaryUseOfPersonalHealthData.pdf