Zobrazeno 1 - 10
of 30
pro vyhledávání: '"Eden G. Robertson"'
Autor:
Bróna Nic Giolla Easpaig, Bronwyn Newman, Judith Johnson, Ursula M. Sansom‐Daly, Lucy Jones, Lukas Hofstätter, Eden G. Robertson, Reema Harrison
Publikováno v:
Health Expectations, Vol 27, Iss 5, Pp n/a-n/a (2024)
ABSTRACT Introduction Health services rely upon carers to provide care for loved ones with cancer, yet many carers often feel ill‐prepared for this role. Despite a multitude of programmes to support carer mental health, programmes that help carers
Externí odkaz:
https://doaj.org/article/35fe79fa1b484daa86701ec3dc68f9b8
Autor:
Eden G. Robertson, Kate Hetherington, Rebecca Daly, Mark W. Donoghoe, Nicholas Handelsman, David S. Ziegler, Claire E. Wakefield
Publikováno v:
Cancer Medicine, Vol 13, Iss 12, Pp n/a-n/a (2024)
Abstract Background Patient‐reported outcomes measures (PROMs) are increasingly being collected within cancer clinical trials, yet limited literature on the feasibility and acceptability of doing so. Methods We collected parent‐proxy and adolesce
Externí odkaz:
https://doaj.org/article/c410b79109df4d86876e4705fb6a2e02
Autor:
Ximena Garcia-Quintero, Daniela Cleves, Maria Isabel Cuervo, Michael McNeil, Marta Salek, Eden G. Robertson, Wendy Gomez, Justin N. Baker, Erica C. Kaye
Publikováno v:
JCO Global Oncology, Vol , Iss 9 (2023)
Externí odkaz:
https://doaj.org/article/fc990c91df234297985a91220c1bba95
Autor:
Stephanie Best, Elizabeth E Palmer, Lauren Kelada, Rani Sachdev, Eden G Robertson, I Goranitis, Natalie Grainger, Fleur Le Marne, Kristine Pierce, Suzanne M Nevin, Rebecca Macintosh, Erin Beavis, Annie Bye
Publikováno v:
BMJ Open, Vol 12, Iss 10 (2022)
Introduction Developmental and epileptic encephalopathies (DEEs) are rare epilepsy conditions that collectively impact 1 in 2000 children. They are highly genetically heterogeneous, resulting in significant barriers to accurate and adequate informati
Externí odkaz:
https://doaj.org/article/eeb167524d8c4a76ac03283cc48a346f
Autor:
Jessica Gereis, Kate Hetherington, Lauren Ha, Eden G. Robertson, David S. Ziegler, Kristine Barlow-Stewart, Katherine M. Tucker, Jonathan M. Marron, Claire E. Wakefield
Publikováno v:
European Journal of Human Genetics. 30:1216-1225
Genome and exome sequencing (GS/ES) are increasingly being used in pediatric contexts. We summarize evidence regarding the actual and perceived understanding of GS/ES of parents of a child offered testing for diagnosis and/or management of a symptoma
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c45bffabff4d2935fcf714e4db0349d0
https://doi.org/10.1038/s41431-022-01170-2
https://doi.org/10.1038/s41431-022-01170-2
Autor:
Wakefield, Jacqueline D. Hunter, Eden G. Robertson, Kate Hetherington, David S. Ziegler, Glenn M. Marshall, Judy Kirk, Jonathan M. Marron, Avram E. Denburg, Kristine Barlow-Stewart, Meera Warby, Katherine M. Tucker, Brittany M. Lee, Tracey A. O’Brien, Claire E.
Publikováno v:
Journal of Personalized Medicine; Volume 12; Issue 8; Pages: 1327
Current literature/guidelines regarding the most appropriate term to communicate a cancer-related disease-causing germline variant in childhood cancer lack consensus. Guidelines also rarely address preferences of patients/families. We aimed to assess
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=multidiscipl::c1ad73ee4471175de193bcb40986faa7
Autor:
Jessica Zavadil, Meghna Singh, Eden G. Robertson, Lisa Clark, Jenn M. Snaman, Michael McNeil, Anna Acerra, Justin N. Baker
Publikováno v:
The Journal of Pediatrics. :113393
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::21c7e41217849dfd281987ccd436b7c6
https://doi.org/10.1016/j.jpeds.2023.03.007
https://doi.org/10.1016/j.jpeds.2023.03.007
Publikováno v:
Journal of Pediatric Nursing. 55:165-173
Purpose Incorporating a Decision Aid (DA) about nutrition support into the general pediatric healthcare setting may improve parent and patient understanding about the risks and benefits of nutrition support options. We aimed to evaluate the acceptabi
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::08fb4176a3ed10aa47d3f6b6fb09cc45
https://doi.org/10.1016/j.pedn.2020.08.013
https://doi.org/10.1016/j.pedn.2020.08.013
Publikováno v:
Journal of Pediatric Nursing. 54:10-17
Introduction Burn wound care procedures can cause severe pain to the child, and distress for both the child and caregivers. We evaluated a new Starlight Children's Foundation program, ‘Captains on Call’, which aims to provide positive distraction
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::542ac6aa9efe1db268f14079fc3e2da2
https://doi.org/10.1016/j.pedn.2020.05.001
https://doi.org/10.1016/j.pedn.2020.05.001
Autor:
Eden G Robertson, Lauren Kelada, Stephanie Best, I Goranitis, Natalie Grainger, Fleur Le Marne, Kristine Pierce, Suzanne M Nevin, Rebecca Macintosh, Erin Beavis, Rani Sachdev, Annie Bye, Elizabeth E Palmer
Publikováno v:
BMJ Open. 12:e063249
IntroductionDevelopmental and epileptic encephalopathies (DEEs) are rare epilepsy conditions that collectively impact 1 in 2000 children. They are highly genetically heterogeneous, resulting in significant barriers to accurate and adequate informatio
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::832da4657834cff76d283206a6c6b14f
https://doi.org/10.1136/bmjopen-2022-063249
https://doi.org/10.1136/bmjopen-2022-063249