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pro vyhledávání: '"ENERCA"'
Autor:
Joan-Lluis Vives Corrons, María del Mar Mañú Pereira, Carlos Romeo-Casabona, Pilar Nicolás, Béatrice Gulbis, Androulla Eleftheriou, Michael Angastiniotis, Patricia Aguilar Martínez, Paola Bianchi, Richard Van Wijk, Hermann Heimpel, Barbara De la Salle, Andrea Mosca
Publikováno v:
Thalassemia Reports, Vol 4, Iss 3 (2014)
The Community added value of Centres of Expertise (CoE) and European Reference Networks (ERN) is particularly high for rare diseases (RD) due to the rarity of these conditions, which implies both a small number of patients and scarcity of expertise w
Externí odkaz:
https://doaj.org/article/8dfd18cd6843465cb8188620f60bf6bd
Autor:
Béatrice Gulbis, María del Mar Mañú Pereira, Emilio J. Armaza Armaza, Pilar Nicolás, for the ENERCA working group
Publikováno v:
Thalassemia Reports, Vol 4, Iss 3 (2014)
The creation of a telemedicine, tele-expertise platform opens a new challenge within the European Network for Rare and Congenital Anaemias (ENERCA; www.enerca.org). This is a cornerstone in the field of rare anaemias, in which national expertise is u
Externí odkaz:
https://doaj.org/article/edc16b4accef42d1b9b2f12b256def51
Autor:
Patricia Aguilar-Martínez
Publikováno v:
Thalassemia Reports, Vol 4, Iss 3 (2014)
ENERCA (the European Network for Rare and Congenital Anemias) is a European Commission funded project since 2002. Rare anaemias in Europe comprise haemoglobin disorders, such as thalassemias or sickle cell disease, and other rarer disorders, includin
Externí odkaz:
https://doaj.org/article/f36c8783a6704717b50dedbed67ea345
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