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Development of an advance directive 'communication tool' relevant for patients with advanced cancer in six European countries

Autor: Arnfeldt, C.M., Groenvold, M., Johnsen, A.T., Červ, B., Deliens, L., Dunleavy, L., van der Heide, A., Kars, M.C., Lunder, U., Miccinesi, G., Pollock, K., Rietjens, J.A.C., Seymour, J.

Publikováno v: Arnfeldt, C M, Groenvold, M, Johnsen, A T, Červ, B, Deliens, L, Dunleavy, L, van der Heide, A, Kars, M C, Lunder, U, Miccinesi, G, Pollock, K, Rietjens, J A C, Seymour, J & ACTION consortium 2022, ' Development of an advance directive 'communication tool' relevant for patients with advanced cancer in six European countries : Experiences from the ACTION trial ', PLoS ONE, vol. 17, no. 7, e0271919, pp. 1-18 . https://doi.org/10.1371/journal.pone.0271919
PLoS ONE, 17(7 July):e0271919. Public Library of Science
PLOS ONE

BackgroundThe ACTION trial evaluated the effect of a modified version of the Respecting Choices´ advance care planning programme in patients with advanced cancer in six European countries. For this purpose, an advance directive acceptable for all si

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::907aa63decfa3d8f2db6d9259a39fa09
https://doi.org/10.1371/journal.pone.0271919

Missing not at random in end of life care studies

Autor: Carreras G., Miccinesi G., Wilcock A., Preston N., Nieboer D., Deliens L., Groenvold M., Lunder U., van der Heide A., Baccini M., Korfage I. J., Rietjens J. A. C., Jabbarian L. J., Polinder S., van Delden H., Kars M., Zwakman M., Verkissen M. N., Eecloo K., Faes K., Pollock K., Seymour J., Caswell G., Bramley L., Payne S., Dunleavy L., Sowerby E., Bulli F., Ingravallo F., Toccafondi A., Gorini G., Cerv B., Simonic A., Mimic A., Kodba-Ceh H., Ozbic P., Arnfeldt C., Thit Johnsen A.

Publikováno v: BMC Medical Research Methodology, Vol 21, Iss 1, Pp 1-12 (2021)
Carreras, G, Miccinesi, G, Wilcock, A, Preston, N, Nieboer, D, Deliens, L, Grønvold, M, Lunder, U, van der Heide, A & Baccini, M 2021, ' Missing not at random in end of life care studies : multiple imputation and sensitivity analysis on data from the ACTION study ', BMC Medical Research Methodology, vol. 21, no. 1, 13 . https://doi.org/10.1186/s12874-020-01180-y
BMC Medical Research Methodology
BMC MEDICAL RESEARCH METHODOLOGY
BMC Medical Research Methodology, 21(1):13. BioMed Central Ltd.

Background Missing data are common in end-of-life care studies, but there is still relatively little exploration of which is the best method to deal with them, and, in particular, if the missing at random (MAR) assumption is valid or missing not at r

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::bfca53c3958c973227a8c2d95198e7f3
https://hdl.handle.net/20.500.14017/3fc12a12-13f7-431d-9fee-ffe60f12d8d0

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Trained facilitators' experiences with structured advance care planning conversations in oncology

Autor: Zwakman, M., Pollock, K., Bulli, F., Caswell, G., Cerv, B., van Delden, J. J. M., Deliens, L., van der Heide, A., Jabbarian, L. J., Koba-Ceh, H., Lunder, U., Miccinesi, G., Arnfeldt, C. A. Moller, Seymour, J., Toccafondi, A., Verkissen, M. N., Kars, M. C., Korfage, I. J., Rietjens, J. A. C., Polinder, S., Billekens, P. F. A., Eecloo, K., Faes, K., Wilcock, A., Bramley, L., Payne, S., Preston, N., Dunleavy, L., Sowerby, E., Ingravallo, F., Carreras, G., Gorini, G., Simonic, A., Mimic, A., Ceh, H. Kodba, Ozbic, P., Grønvold, M., Johnsen, A. Thit

Publikováno v: BMC Cancer, Vol 19, Iss 1, Pp 1-13 (2019)
BMC cancer, vol. 19, pp. 1-13, 2019.
BMC CANCER
BMC Cancer, 19(1). BioMed Central
BMC Cancer
BMC Cancer, 19(1):1026. BioMed Central Ltd.
Zwakman, M, Pollock, K, Bulli, F, Caswell, G, Cerv, B, van Delden, J J M, Deliens, L, van der Heide, A, Jabbarian, L J, Koba-Ceh, H, Lunder, U, Miccinesi, G, Arnfeldt, C A M, Seymour, J, Toccafondi, A, Verkissen, M N, Kars, M C, Korfage, I J, Rietjens, J A C, Polinder, S, Billekens, P F A, Eecloo, K, Faes, K, Wilcock, A, Bramley, L, Payne, S, Preston, N, Dunleavy, L, Sowerby, E, Ingravallo, F, Carreras, G, Gorini, G, Simonic, A, Mimic, A, Ceh, H K, Ozbic, P, Grønvold, M & Johnsen, A T 2019, ' Trained facilitators' experiences with structured advance care planning conversations in oncology : an international focus group study within the ACTION trial ', B M C Cancer, vol. 19, 1026 . https://doi.org/10.1186/s12885-019-6170-7

Background In oncology, Health Care Professionals often experience conducting Advance Care Planning (ACP) conversations as difficult and are hesitant to start them. A structured approach could help to overcome this. In the ACTION trial, a Phase III m

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::90088ef871a8311cd9b58ee37fe7ada1
https://hdl.handle.net/20.500.14017/eea61caf-25ee-4819-9b4f-411a7adc0f92