Výsledky vyhledávání - "Douglass Fisher"

Clinical verification of genetic results returned to research participants: findings from a Colon Cancer Family Registry

Autor: Noralane M. Lindor, Lederle Tenney, Anjali R. Truitt, David L. Veenstra, Douglass Fisher, Gail P. Jarvik, Mercy Y. Laurino, Stephanie M. Fullerton, Polly A. Newcomb

Publikováno v: Molecular Genetics & Genomic Medicine

Background The extent to which participants act to clinically verify research results is largely unknown. This study examined whether participants who received Lynch syndrome (LS)-related findings pursued researchers’ recommendation to clinically v

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f54659c92b889b8439704618f1da9463
https://doi.org/10.1002/mgg3.328

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How do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family Registry

Autor: Sherri Sheinfeld Gorin, Noralane M. Lindor, Julie Arnold, Jan T. Lowery, Pamela S. Sinicrope, Mary Jane Esplen, Dennis J. Ahnen, Douglass Fisher, John L. Hopper, Terrilea Burnett, Louise Keogh, Mercy Laurino, Steven Gallinger, Judith A. Maskiell, Sheri D. Schully, Spring Holter

Publikováno v: Journal of Community Genetics. 5:99-108

There is consensus internationally that research participants should be offered the opportunity to receive clinically relevant genetic information identified through research, but there is little empirical peer-reviewed work documenting this process.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ccb442021b9982be4be0286f9343824f
https://doi.org/10.1007/s12687-013-0148-y

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Might Massage Or Guided Meditation Provide 'Means to A Better End'? Primary Outcomes from An Efficacy Trial with Patientsatthe end of Life

Autor: Leila Kozak, Sean Congdon, Donald L. Patrick, Douglass Fisher, Lois Downey, Leanna J. Standish, Paula Diehr, William E. Lafferty

Publikováno v: Journal of Palliative Care. 25:100-108

This article reports findings from a randomized controlled trial of massage and guided meditation with patients at the end of life. Using data from 167 randomized patients, the authors considered patient outcomes through 10 weeks post-enrolment, as w

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::647a610fce0f4dae9fe59a583e8848d7
https://doi.org/10.1177/082585970902500204

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Disclosing genetic research results: experiences of the Colon Cancer Family Registry

Autor: Noralane M. Lindor, Jan T. Lowery, Douglass Fisher, Sheri Sheinfeld Gorin, Sheri D. Schully, Spring Holter, John Hopper, Pam Sinicrope, Dennis J. Ahnen, Terrilea Burnett, Judi Maskiell, Louise Keogh

Publikováno v: Hereditary Cancer in Clinical Practice, Vol 9, Iss Suppl 1, p P18 (2011)
Hereditary Cancer in Clinical Practice

Background Literature on the ethics of returning research-generated genetic results to research participants has not reported on the practical experience of this activity. The Colon Cancer Family Registry (Colon CFR) has recruited participants from t

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d803bb4fd7cc3b99d1351424179d77a0
https://doaj.org/article/ffa2fe3fec67487181734a808960b57b

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Might massage or guided meditation provide 'means to a better end'? Primary outcomes from an efficacy trial with patients at the end of life

Autor: Lois, Downey, Paula, Diehr, Leanna J, Standish, Donald L, Patrick, Leila, Kozak, Douglass, Fisher, Sean, Congdon, William E, Lafferty

Publikováno v: Journal of palliative care. 25(2)

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::503ae0b43175f704e97d6e022d59c354
https://pubmed.ncbi.nlm.nih.gov/19678461

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Implications of generating genetic test results for colon cancer in the international, population-based colon cancer family registry

Autor: Julie Arnold, Sheri D. Schully, Louise Keogh, Spring Holter, Mercy Laurino, Pamela S. Sinicrope, Jan T. Lowery, Judith A. Maskiell, Terrilea Burnett, Dennis J. Ahnen, Mary Jane Esplen, Steven Gallinger, Noralane M. Lindor, Douglass Fisher, John L. Hopper, Sherri Sheinfeld Gorin

Publikováno v: Journal of Clinical Oncology. 30:3567-3567

3567 Background: The ability to genotype large numbers of people rapidly and inexpensively for research purposes highlights the need to develop guidelines for providing medically-relevant research results - including unanticipated findings - to study

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::8338331e8087ef0cc7412ae475495734
https://doi.org/10.1200/jco.2012.30.15_suppl.3567

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