Clinical audit research and evaluation of motor neuron disease (CARE-MND): a national electronic platform for prospective, longitudinal monitoring of MND in Scotland

Autor: Dympna McAleer, David Buchanan, Gill Stott, Andrew Bethell, Kitty Millar, Dianne Fraser, Shuna Colville, Laura Cunningham, Giulia Melchiorre, Ian Morrison, Dorothy Storey, Richard Davenport, Ann Silver, Anthony Bateman, Siddharthan Chandran, Gillian Craig, Emily Beswick, Sharon Abrahams, George Gorrie, Carol Thornton, Laura Marshall, Alison McEleney, Moira Flett, Susan Stewart, Helen Lennox, Danielle Leighton, Harry Gordon, Janice Hatrick, Suvankar Pal, Jenny Preston, Laura Stephenson, Laura Sherlock, Judith Newton, Callum Duncan, Carolyn Webber, Robert Swingler

Publikováno v: Leighton, D, Newton, J, Colville, S, Bethell, A, Craig, G, Cunningham, L, Flett, M, Fraser, D, Hatrick, J, Lennox, H, Marshall, L, Mcaleer, D, Mceleney, A, Millar, K, Silver, A, Stephenson, L, Stewart, S, Storey, D, Stott, G, Thornton, C, Webber, C, Gordon, H, Melchiorre, G, Sherlock, L, Beswick, E, Buchanan, D, Abrahams, S, Bateman, A, Preston, J, Duncan, C, Davenport, R, Gorrie, G, Morrison, I, Swingler, R, Chandran, S & Pal, S 2019, ' Clinical audit research and evaluation of motor neuron disease (CARE-MND): a national electronic platform for prospective, longitudinal monitoring of MND in Scotland ', Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, pp. 1-9 . https://doi.org/10.1080/21678421.2019.1582673

Objectives: Launched in 1989, the Scottish Motor Neuron Disease Register (SMNDR) has provided a resource for prospective clinical data collection. However, in 2015 we aimed to evolve a system to al...

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::078d123a6df2e62ff8e60042ab01c3ef
https://hdl.handle.net/20.500.11820/fe855df4-37a0-4c31-b31e-50c54468264d