Zobrazeno 1 - 10 of 241 pro vyhledávání: '"Donald B Bailey"'
1
Akademický článek
Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study
Autor: Lisa M Gehtland, Ryan S Paquin, Sara M Andrews, Adam M Lee, Angela Gwaltney, Martin Duparc, Emily R Pfaff, Donald B Bailey Jr
Publikováno v: JMIR Pediatrics and Parenting, Vol 5, Iss 1, p e30941 (2022)
BackgroundMany research studies fail to enroll enough research participants. Patient-facing electronic health record applications, known as patient portals, may be used to send research invitations to eligible patients. ObjectiveThe first aim was to
Externí odkaz: https://doaj.org/article/3330e508a12342b0a307562748463c50
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2
Akademický článek
Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability.
Autor: Lauren A McCormack, Amanda Wylie, Rebecca Moultrie, Robert D Furberg, Anne C Wheeler, Katherine Treiman, Donald B Bailey, Melissa Raspa
Publikováno v: PLoS ONE, Vol 14, Iss 10, p e0223801 (2019)
BACKGROUND:Informed consent requires that individuals understand the nature of the study, risks and benefits of participation. Individuals with intellectual disabilities (ID) have cognitive and adaptive impairments that may affect their ability to pr
Externí odkaz: https://doaj.org/article/3372900e3ea8435bbc1a3fd7449b47cb
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3
Akademický článek
Skills attained by infants with congenital Zika syndrome: Pilot data from Brazil.
Autor: Anne C Wheeler, Camila V Ventura, Ty Ridenour, Danielle Toth, Lucélia Lima Nobrega, Lana Claudia Silva de Souza Dantas, Camilla Rocha, Donald B Bailey, Liana O Ventura
Publikováno v: PLoS ONE, Vol 13, Iss 7, p e0201495 (2018)
The recent Zika outbreak and its link to microcephaly and other birth defects in infants exposed in utero have garnered widespread international attention. Based on the severity of birth defects the extent of impairment in these infants is expected t
Externí odkaz: https://doaj.org/article/a10ae4c9439749bf9b8e5a9bd9f3d905
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4
Akademický článek
Health and reproductive experiences of women with an FMR1 premutation with and without fragile X premature ovarian insufficiency
Autor: Anne Caroline Wheeler, Melissa eRaspa, Annette eGreen, Ellen eBishop, Carla eBann, Anne eEdwards, Donald B Bailey
Publikováno v: Frontiers in Genetics, Vol 5 (2014)
Recently, research has indicated an increased risk for greater medical and emotional comorbidity and physical health symptoms among women with an FMR1 expansion. However, these studies have generally been limited in their ability to model multiple ri
Externí odkaz: https://doaj.org/article/46c1679b147743e6b51390d34f25d285
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6
Using Facebook, Instagram, and Pinterest advertising campaigns to increase enrollment in newborn screening research
Autor: Stephanie McInnis, Jessica Sobolewski, Manisha Dass, Lisa M. Gehtland, Donald B. Bailey
Publikováno v: Frontiers in Communication. 7
IntroductionSocial media ad campaigns can be an efficient, cost-effective way to recruit for studies online, especially as the onset of the COVID-19 pandemic limited in-person recruitment. Early Check, a large ongoing study offering testing for a pan
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::714e4943ba4e7fbbc5f5e42cbe52d1fc
https://doi.org/10.3389/fcomm.2022.1052355
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7
Akademický článek
Early Identification of Fragile X Syndrome through Expanded Newborn Screening
Autor: Katherine C. Okoniewski, Anne C. Wheeler, Stacey Lee, Beth Boyea, Melissa Raspa, Jennifer L. Taylor, Donald B. Bailey
Publikováno v: Brain Sciences, Vol 9, Iss 1, p 4 (2019)
Over the past 20 years, research on fragile X syndrome (FXS) has provided foundational understanding of the complex experiences of affected individuals and their families. Despite this intensive focus, there has been little progress on earlier identi
Externí odkaz: https://doaj.org/article/fbfe01829d2942c49727393ad995304e
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8
Outreach to new mothers through direct mail and email: recruitment in the Early Check research study
Autor: Rebecca Moultrie, Martin Duparc, Cynthia M. Powell, Angela Gwaltney, Lisa M. Gehtland, Megan A. Lewis, Ryan S. Paquin, Holly L. Peay, Nancy M. P. King, Anne Wheeler, Blake A. Harper, Scott M. Shone, Melissa Raspa, Donald B. Bailey
Publikováno v: Clinical and Translational Science
Clinical and Translational Science, Vol 14, Iss 3, Pp 880-889 (2021)
Meeting recruitment targets for clinical trials and health research studies is a notable challenge. Unsuccessful efforts to recruit participants from traditionally underserved populations can limit who benefits from scientific discovery, thus perpetu
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d341697cc2cedc03f05a5cfdd7084d05
http://europepmc.org/articles/PMC8212727
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10
Values clarification and parental decision making about newborn genomic sequencing
Autor: Christine Rini, Ryan S. Paquin, Rita M. Butterfield, Cynthia M. Powell, Myra I. Roche, Jonathan S. Berg, Megan A. Lewis, Susana Peinado, Donald B. Bailey
Publikováno v: Health Psychol
Objective Using an online decision aid developed to support parental decision making about newborn genomic sequencing, we tested whether adding a values clarification exercise to educational content would improve decision making outcomes and influenc
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::074fafbed0039970c2265c1fb5699eee
https://doi.org/10.1037/hea0000829
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