Zobrazeno 1 - 10
of 17
pro vyhledávání: '"Dianne G Shaw"'
Autor:
Irena Doubelt, Jason M Springer, Tanaz A Kermani, Antoine G Sreih, Cristina Burroughs, David Cuthbertson, Simon Carette, Nader A Khalidi, Curry L Koening, Carol Langford, Carol A McAlear, Larry W Moreland, Paul A Monach, Dianne G Shaw, Philip Seo, Ulrich Specks, Kenneth J Warrington, Kalen Young, Peter A Merkel, Christian Pagnoux
Publikováno v:
Interactive Journal of Medical Research, Vol 11, Iss 1, p e27273 (2022)
BackgroundPatient-based registries can help advance research on rare diseases such as eosinophilic granulomatosis with polyangiitis (EGPA), a complex multiorgan form of antineutrophil cytoplasmic antibody (ANCA)–associated vasculitis. ObjectiveThe
Externí odkaz:
https://doaj.org/article/56119628cf6c4a39a62f8ed95e17f3cc
Autor:
Antoine G. Sreih, Keri Cronin, Dianne G. Shaw, Kalen Young, Cristina Burroughs, Joyce Kullman, Kirthi Machireddy, Carol A. McAlear, Peter A. Merkel, for the Vasculitis Patient-Powered Research Network
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Abstract Background Patients with vasculitis, a set of rare diseases, encounter delays in obtaining an accurate diagnosis which can lead to substantial morbidity and increased mortality. This study sought to describe the diagnostic journey of patient
Externí odkaz:
https://doaj.org/article/00ccab25353a4cfc92deb61775d20863
Autor:
Kalen Young, Dana Kaminstein, Ana Olivos, Cristina Burroughs, Celeste Castillo-Lee, Joyce Kullman, Carol McAlear, Dianne G. Shaw, Antoine Sreih, George Casey, Vasculitis Patient-Powered Research Network, Peter A. Merkel
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-7 (2019)
Abstract Background There is increasing interest in actively involving patients in the process of medical research to help ensure research is relevant and important to both researchers and people affected by the disease under study. This project exam
Externí odkaz:
https://doaj.org/article/31241b7f65b54dc888c130c5073aff00
Autor:
Shilpa Venkatachalam, Kelly Gavigan, Laura Stradford, Vandana Dronadula, Angela Degrassi, W. Benjamin Nowell, Shubhasree Banerjee, Peter A. Merkel, Michael D. George, Jennifer Gordon, Dianne G. Shaw, Kalen Larsen, Lisa Emrich, Robert N. McBurney, Hope Sullivan, Ashira Blazer, Brittany Banbury, Kimberly N. Weaver, Michael D. Kappelman, Jeffrey R. Curtis
Publikováno v:
ACR Open Rheumatology.
Objective: The study objective was to prioritize topics for future patient-centered research to increase uptake of common vaccines, such as for pneumococcal pneumonia, influenza, herpes zoster, human papillomavirus, and severe acute respiratory syndr
Autor:
Maria I. Danila, Kelly Gavigan, Esteban Rivera, W. Benjamin Nowell, Michael D. George, Jeffrey R. Curtis, Lisa Christopher‐Stein, Shubhasree Banerjee, Peter A. Merkel, Kalen Young, Dianne G. Shaw, Jennifer Gordon, Shilpa Venkatachalam
Publikováno v:
Arthritis Care & Research. 74:1049-1057
To assess the perceptions and preferences of telemedicine among patients with autoimmune rheumatic diseases during the COVID-19 pandemic.We conducted an online survey among patients with autoimmune rheumatic diseases. Attitudes about telemedicine (i.
Autor:
Kalen Young, Shilpa Venkatachalam, Dianne G Shaw, Laura G Kolaczkowski, Angela Dobes, Emily Cerciello, Peter A. Merkel, W. Benjamin Nowell, Jeffrey R. Curtis, Robert McBurney, Michael D. Kappelman
Publikováno v:
The Patient
Patient-Powered Research Networks (PPRNs) are US-based registry infrastructures co-created by advocacy groups, patient research partners, academic investigators, and other healthcare stakeholders. Patient-Powered Research Networks collect information
Autor:
Kalen Young, Joyce Kullman, Marcela A. Ferrada, David Curtis, Shilpa Venkatachalam, Cristina Burroughs, K. Gavigan, Jennifer Gordon, Michael D. George, Maria I. Danila, Shubhasree Banerjee, W. Benjamin Nowell, Peter A. Merkel, Jeffrey R. Curtis, Dianne G Shaw, Peter C. Grayson
Publikováno v:
ACR Open Rheumatology
Objective This study aimed to analyze the concerns and health-related behaviors in patients with vasculitis during the early phase of the coronavirus disease 2019 (COVID-19) pandemic in North America. Methods Patients with vasculitis in North America
Autor:
Tiffany Dharia, Shilpa Venkatachalam, Joshua F. Baker, Shubhasree Banerjee, David Curtis, Maria I. Danila, Kelly Gavigan, Jennifer Gordon, Peter A. Merkel, Dianne G. Shaw, Kalen Young, Jeffrey R. Curtis, William B. Nowell, Michael D. George
Publikováno v:
Arthritis careresearch. 74(5)
We aimed to assess trends in anxiety and interruptions in disease-modifying antirheumatic drug (DMARD) use among patients with rheumatic diseases during the COVID-19 pandemic and to evaluate whether DMARD interruptions were associated with disease fl
Autor:
Irena Doubelt, Jason M Springer, Tanaz A Kermani, Antoine G Sreih, Cristina Burroughs, David Cuthbertson, Simon Carette, Nader A Khalidi, Curry L Koening, Carol Langford, Carol A McAlear, Larry W Moreland, Paul A Monach, Dianne G Shaw, Philip Seo, Ulrich Specks, Kenneth J Warrington, Kalen Young, Peter A Merkel, Christian Pagnoux
BACKGROUND Patient-based registries can help advance research on rare diseases such as eosinophilic granulomatosis with polyangiitis (EGPA), a complex multiorgan form of antineutrophil cytoplasmic antibody (ANCA)–associated vasculitis. OBJECTIVE Th
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::d0ef15be9b69fdd001c8573f5cfd1bd1
https://doi.org/10.2196/preprints.27273
https://doi.org/10.2196/preprints.27273
Autor:
Antoine G. Sreih, Keri Cronin, Dianne G. Shaw, Kalen Young, Cristina Burroughs, Joyce Kullman, Kirthi Machireddy, Carol A. McAlear, Peter A. Merkel, for the Vasculitis Patient-Powered Research Network
Publikováno v:
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Background Patients with vasculitis, a set of rare diseases, encounter delays in obtaining an accurate diagnosis which can lead to substantial morbidity and increased mortality. This study sought to describe the diagnostic journey of patients with va