Zobrazeno 1 - 10
of 39
pro vyhledávání: '"Diana, Marinello"'
Autor:
Federica Di Cianni, Maria Vincenza Mastrolia, Edoardo Biancalana, Diana Marinello, Giacomo Emmi, Marta Mosca, Gabriele Simonini, Rosaria Talarico
Publikováno v:
Frontiers in Medicine, Vol 11 (2024)
Behçet’s syndrome (BS) is a rare chronic multi-systemic inflammatory disorder that usually involves adults between third and fourth decades of life, while pediatric and juvenile onset are relatively rare. BS young patients (YP) often develop a ful
Externí odkaz:
https://doaj.org/article/a5d7d42064ef4f958e0e13a0cd83d37e
Autor:
Chiara Tani, Chiara Cardelli, Roberto Depascale, Anna Gamba, Luca Iaccarino, Andrea Doria, Matilde Bandeira, Sara Paiva Dinis, Vasco C. Romão, Emanuele Gotelli, Sabrina Paolino, Maurizio Cutolo, Niccolò Di Giosaffatte, Alessandro Ferraris, Paola Grammatico, Lorenzo Cavagna, Veronica Codullo, Carlomaurizio Montecucco, Valentina Longo, Lorenzo Beretta, Ilaria Cavazzana, Micaela Fredi, Silvia Peretti, Serena Guiducci, Marco Matucci-Cerinic, Stefano Bombardieri, Gerd R. Burmester, João E. Fonseca, Charissa Frank, Ilaria Galetti, Eric Hachulla, Ulf Müller-Ladner, Matthias Schneider, Vanessa Smith, Farah Tamirou, Jacob M. Van Laar, Ana Vieira, Rossella D'Urzo, Sara Cannizzo, Andrea Gaglioti, Diana Marinello, Rosaria Talarico, Marta Mosca
Publikováno v:
Journal of Translational Autoimmunity, Vol 7, Iss , Pp 100221- (2023)
Background: Vaccination is one of the most important measures to contain the COVID-19 pandemic, especially for frail patients. VACCINATE is a multicentre prospective observational study promoted by the European Reference Network on Rare and Complex C
Externí odkaz:
https://doaj.org/article/6535028b21df4f64b471e8d7b7b6052c
Autor:
Rosaria Talarico, Diana Marinello, Arianna Manzo, Sara Cannizzo, Ilaria Palla, Simone Ticciati, Andrea Gaglioti, Leopoldo Trieste, Lorenzo Pisa, Luciano Badalamenti, Girolamo Randisi, Alessandra Del Bianco, Valentina Lorenzoni, Giuseppe Turchetti, Marta Mosca
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-11 (2021)
Abstract Background As often seen in many chronic diseases, the disease impact on patients also induces a significant impact on the quality of life (QoL) of caregivers. Caregivers are the ones who are really willing to offer care in the general appro
Externí odkaz:
https://doaj.org/article/c080945374c74e15b5cf2bfde6989557
Autor:
Munther Khamashta, Rosaria Talarico, Chiara Tani, Angela Tincani, Ilaria Galetti, Marta Mosca, Ilaria Palla, Yehuda Shoenfeld, Antonio Brucato, Dina Zucchi, Diana Marinello, Coralie Bouillot, Silvia Aguilera, Monica Holmner, Silvia Sandulescu, Lucy Scarle, Dalila Tremarias, Laura Cattaneo, Andrea Gaglioti, Simone Ticciati
Publikováno v:
RMD Open, Vol 8, Iss 2 (2022)
Objective The aim of this work is to explore patient’ unmet needs of rare and complex rheumatic tissue diseases (rCTDs) patients during pregnancy and its planning by means of the narrative-based medicine (NBM) approach.Methods A panel of nine rCTDs
Externí odkaz:
https://doaj.org/article/965efde61a6941e7834548222d68ed60
Autor:
Matilde Bandeira, Federica Di Cianni, Diana Marinello, Laurent Arnaud, Sara Cannizzo, Claudio Carta, Alain Cornet, Sara M. Barril, Inita Bulina, Alessandro Ferraris, João Fonseca, Andrea Gaglioti, Marteen Limper, Valentina Lorenzoni, Judith Majnik, Marco Matucci-Cerinic, Ilaria Palla, Simona Rednic, Matthias Schneider, Vanessa Smith, Alberto Sulli, Klaus Søndergaard, Simone Ticciati, Angela Tincani, Giuseppe Turchetti, Rosaria Talarico, Maurizio Cutolo, Marta Mosca, Domenica Taruscio
Publikováno v:
Frontiers in Medicine, Vol 9 (2022)
BackgroundPatient registries play a crucial role in supporting clinical practice, healthcare planning and medical research, offering a real-world picture on rare and complex connective tissue diseases (rCTDs). ERN ReCONNET launched the first European
Externí odkaz:
https://doaj.org/article/d63d06b3a6134ffc9e48d1f06b3e4790
Autor:
Diana Marinello, Federica Di Cianni, Alessandra Del Bianco, Irene Mattioli, Jurgen Sota, Luca Cantarini, Giacomo Emmi, Pietro Leccese, Giuseppe Lopalco, Marta Mosca, Angela Padula, Matteo Piga, Carlo Salvarani, Domenica Taruscio, Rosaria Talarico
Publikováno v:
Frontiers in Medicine, Vol 8 (2021)
Behçet's syndrome (BS) represents a challenging condition, characterized by a variable spectrum of disease profile and associated with a significant limitation of the daily activities as well as a potential negative impact on relationships and psych
Externí odkaz:
https://doaj.org/article/3265e483562646e5bd5cd5f2c02d686e
Autor:
Rosaria Talarico, Frederic Houssiau, Stefano Bombardieri, Gerd Burmester, Ilaria Galetti, Eric Hachulla, Ulf Mueller-Ladner, Matthias Schneider, Vanessa Smith, Maurizio Cutolo, Marta Mosca, Jacob M van Laar, Charissa Frank, Ana Vieira, Giuseppe Turchetti, Joao Fonseca, Diana Marinello
Publikováno v:
RMD Open, Vol 6, Iss 2 (2020)
Introduction The European Reference Network (ERN) ReCONNET is the ERN aimed at improving the management of rare and complex connective tissue and musculoskeletal diseases (rCTDs) across the European Union (EU). In the mission of ERN ReCONNET, clinica
Externí odkaz:
https://doaj.org/article/150458132ac547a4b417f1b84f1cd975
Autor:
Valentina Lorenzoni, Diana Marinello, Ilaria Palla, Marta Mosca, Giuseppe Turchetti, Rosaria Talarico
Publikováno v:
The European Journal of Health Economics.
Objective This study aims at evaluating the cost-of-illness (COI) of patients diagnosed with Behcet’s syndrome (BS) in Italy, trying to depict the impact of different costs’ components to the overall economic burden and analysing the variability
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::b150899374ccf33c6e31854debf62d29
https://doi.org/10.1007/s10198-023-01593-8
https://doi.org/10.1007/s10198-023-01593-8
Autor:
Rosaria Talarico, Sara Cannizzo, Valentina Lorenzoni, Diana Marinello, Ilaria Palla, Salvatore Pirri, Simone Ticciati, Leopoldo Trieste, Isotta Triulzi, Enrique Terol, Anna Bucher, Giuseppe Turchetti
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-1 (2021)
An amendment to this paper has been published and can be accessed via the original article.
Externí odkaz:
https://doaj.org/article/a89c7bce1b54452a9d04f3e55cb20480
Autor:
Maria Vincenza Mastrolia, Diana Marinello, Federica Di Cianni, Rosaria Talarico, Gabriele Simonini
Publikováno v:
Clinical and Experimental Rheumatology.
The assessment of quality of life (QoL) in Behçet's disease (BD) patients has been a surrogate of disease outcomes, but a wider impact on the patient's lifestyle has not been considered. This systematic review aims to provide an overview of the exis
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::114973e0ddbdc54ac0922c52fa5fee17
https://doi.org/10.55563/clinexprheumatol/sian1b
https://doi.org/10.55563/clinexprheumatol/sian1b