Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome

Autor: Pearson, Gail, Stylianou, Mario, Mahony, Lynn, Sleeper, Lynn, Tennstedt, Sharon, Colan, Steven, Klein, Gloria, Guey, Lin, Wruck, Lisa, Travison, Thomas, Chen, Shan, Gerstenberger, Eric, Olesker, Tanya, Teitel, David F., Newburger, Jane, King, Martha, Dunbar-Masterson, Carolyn, Posa, Andrea, Nang, Quincy, Hass, Cara, Hsu, Daphne, Lai, Wyman, Hellenbrand, William, Printz, Beth, Devereux, Richard, Sherwood, Greysi, Vetter, Victoria, Paridon, Stephen, Gleason, Marie, Mirarchi, Nicole, DiLullo, Sandra, Ejembi, Agbenu, Morgan, Ruth, Benson, D. Woodrow, Border, William, Cnota, James, Heydarian, Haleh, James, Jeanne, Hogan, Kathryn, Bogenschutz, Lois, Benham, Mary Pat, Barnard, Teresa, Anderson, Page A.W., Li, Jennifer S., Wechsler, Stephanie Burns, Cook, Amanda, Sang, Charles, Covitz, Wesley, Sutton, Lori Jo, Crawford, Kari, Roberts, Summer, Palmer, Deborah, Saul, J. Philip, Atz, Andrew, Forbus, Geoffrey, Infinger, Patricia, Choudhury, Aparna, Minich, LuAnn, Williams, Richard, Yetman, Angela, Shearrow, Marian, Robinson, Michelle, Porter, June, McCrindle, Brian, Russell, Jennifer, Colman, Jack, Khaikin, Svetlana, Slater, Nancy, Dietz, Harry C., Ravekes, William J., Rykiel, Mary, Sparks, Elisabeth, MacCarrick, Gretchen, Leadroot, Jennifer, Canter, Charles, Sharkey, Angela, Braverman, Alan, Rainey, Cheryl, Jefferies, John L., Slesnick, Timothy, Martinez, Hugo, Menesses, Andres, Tenende, Tunu, Liang, David, Merkel, Elisabeth, Loeys, Bart, De Backer, Julie, Cobben, Jan Maarten, Sluysmans, Thierry, De Paepe, Anne, Gelb, Bruce, Srivastava, Shubhika, Mendiz-Ramdeen, Tejani, Weismann, Constance, Lawrence, Emily, Chin, Stephanie, Ko, Helen, Le Yau, Jen, Webber, Steven, Drant, Stacey, Luce, Jane, Stiegler, Kevin, Kinnard, Cheryl, Stewart, Cheri, Sommers, Sue, Madison, Carol, Young, Luciana, Domenico, Megan, Waitzman, Kathryn, Lozano, Carla, Baker, Charles, Zielinski, Erin, Velden, Heidi Vander, Overman, Alison, Lewin, Mark, Payne, Amy, Rimoin, David, Pariani, Mitchel, Siegel, Robert, Rafique, Asim, Grossfeld, Paul, Smith, Arlene, McLees-Palinkas, Terri, Colan, Steven D., Tierney, Elif Seda Selamet, Trevey, Shari, Rivera, Marga, Artman, Michael, Austin, Erle, Baldwin, H. Scott, Bernstein, Daniel, Feltes, Timothy, Johnson, Julie, Klitzner, Thomas, Krischer, Jeffrey, Matherne, G. Paul, Zahka, Kenneth G., Kugler, John, Driscoll, David J., Galantowicz, Mark, Hunsberger, Sally A., Knight, Thomas J., Taylor, Holly, Handisides, Jill C., Hollenbeck-Pringle, Danielle, Uzark, Karen, Trachtenberg, Felicia L., Pemberton, Victoria L., Atz, Teresa W., Bradley, Timothy J., Cappella, Elizabeth, De Nobele, Sylvia, Groh, Georgeann Keh-Teng, Hamstra, Michelle S., Korsin, Rosalind, Levine, Jami C., Lindauer, Bergen, Liou, Aimee, Neal, Meghan K. Mac, Markham, Larry W., Morrison, Tonia, Mussatto, Kathleen A., Olson, Aaron K., Pierpont, Mary Ella M., Pyeritz, Reed E., Radojewski, Elizabeth A., Roman, Mary J., Xu, Mingfen, Lacro, Ronald V. ^*

Publikováno v: In The Journal of Pediatrics January 2019 204:250-255