Zobrazeno 1 - 10
of 32
pro vyhledávání: '"Devan M Duenas"'
Autor:
Celina Bridges, Devan M Duenas, Hannah Lewis, Katherine Anderson, Douglas J Opel, Benjamin S Wilfond, Stephanie A Kraft
Publikováno v:
PLoS ONE, Vol 16, Iss 4, p e0250999 (2021)
ObjectiveClinicians and healthcare organizations are ethically obligated to treat patients with respect, yet it is not clear what actions best demonstrate respect to patients. This exploratory qualitative study aimed to understand what actions on bot
Externí odkaz:
https://doaj.org/article/a12681056ec047a385022984b7e5a787
Autor:
Elliott Mark Weiss, Megan M. Gray, Linda K. Ko, Devan M. Duenas, Ellie Oslin, Stephanie A. Kraft
Publikováno v:
Trials, Vol 25, Iss 1, Pp 1-14 (2024)
Abstract Background Recruitment for neonatal clinical trials can be particularly challenging. Low enrollment rates bias the research population and decrease generalizability of findings. We identified a critical need for an intervention to improve ho
Externí odkaz:
https://doaj.org/article/ca073e2cbca441fb80dabf27a645a6d8
Publikováno v:
BMC Medical Ethics, Vol 24, Iss 1, Pp 1-11 (2023)
Abstract Background Standard interpretations of the ethical principle of respect for persons have not incorporated the views and values of patients, especially patients from groups underrepresented in research. This limits the ability of research eth
Externí odkaz:
https://doaj.org/article/d82714984fdb46b48e3e7cdc4858d8d1
Autor:
Erwin Jiayuan Khoo, Devan M. Duenas, Benjamin S. Wilfond, Luke Gelinas, Armand H. Matheny Antommaria
Publikováno v:
Pediatrics. 151
When incentives are offered to parents and their children to partake in research, there are concerns that parents may be unduly influenced by the incentives, and the children may be exploited. We present a case from a low- and middle-income country a
Autor:
Kathryn M Porter, Stephanie A Kraft, Candace D Speight, Devan M Duenas, Nyiramugisha K Niyibizi, Andrea Mitchell, M Rebecca O’Connor, Charles Gregor, Kendra Liljenquist, Seema K Shah, Benjamin S Wilfond, Neal W Dickert
Publikováno v:
JAMIA Open. 6
Objective Research recruitment through patient portals (ie, patient-facing, web-based clinical interfaces) has the potential to be effective, efficient, and inclusive, but best practices remain undefined. We sought to better understand how patients v
Publikováno v:
The American journal of bioethics : AJOB. 22(10)
Autor:
Nangel M Lindberg, Kathleen F Mittendorf, Devan M Duenas, Katherine Anderson, Alyssa Koomas, Stephanie A Kraft, Sonia Okuyama, Kelly J Shipman, Meredith L Vandermeer, Katrina AB Goddard, Benjamin S Wilfond, Carmit McMullen
Publikováno v:
Perm J
INTRODUCTION: The Cancer Health Assessments Reaching Many study seeks to reduce disparities in genomic care. Two patient advisory committees (PACs) were formed, 1 of English speakers and 1 of Spanish speakers, to vet study processes and materials. St
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6fcc8e534dc14c54b6770ed47cc6b092
https://europepmc.org/articles/PMC9662241/
https://europepmc.org/articles/PMC9662241/
Autor:
Kathleen F. Mittendorf, Hannah S. Lewis, Devan M. Duenas, Donna J. Eubanks, Marian J. Gilmore, Katrina A. B. Goddard, Galen Joseph, Tia L. Kauffman, Stephanie A. Kraft, Nangel M. Lindberg, Ana A. Reyes, Elizabeth Shuster, Sapna Syngal, Chinedu Ukaegbu, Jamilyn M. Zepp, Benjamin S. Wilfond, Kathryn M. Porter
Publikováno v:
Hereditary cancer in clinical practice, vol 20, iss 1
Background Risk assessment for hereditary cancer syndromes is recommended in primary care, but family history is rarely collected in enough detail to facilitate risk assessment and referral – a roadblock that disproportionately impacts individuals
Autor:
Stephanie A. Kraft, Sandra Soo-Jin Lee, Kelly J. Shipman, Kathryn M. Porter, Jake Allen, Devan M. Duenas, Donna Eubanks, Briana Arnold, Jamilyn M. Zepp, Marian J. Gilmore, Katrina A.B. Goddard, Kristin R. Muessig, Tia L. Kauffman, Kathleen F. Mittendorf, Kate Anderson, Galen Joseph, Nangel M. Lindberg, Benjamin S. Wilfond, Claudia Guerra, Elizabeth Shuster
Publikováno v:
AJOB empirical bioethics, vol 12, iss 1
AJOB Empir Bioeth
AJOB Empir Bioeth
BACKGROUND: Clinical genomic implementation studies pose challenges for informed consent. Consent forms often include complex language and concepts, which can be a barrier to diverse enrollment, and these studies often blur traditional research-clini
Autor:
Laura M. Amendola, Elizabeth Shuster, Michael C. Leo, Michael O. Dorschner, Bradley A. Rolf, Brian H. Shirts, Marian J. Gilmore, Sonia Okuyama, Jamilyn M. Zepp, Tia L. Kauffman, Kathleen F. Mittendorf, Cecilia Bellcross, Charisma L. Jenkins, Galen Joseph, Leslie Riddle, Sapna Syngal, Chinedu Ukaegbu, Katrina A.B. Goddard, Benjamin S. Wilfond, Gail P. Jarvik, Jake Allen, Katherine P. Anderson, Frank Angelo, Briana L. Arnold, Cecelia Bellcross, Tiffany Bendelow, Barbara B. Biesecker, Kristin D. Breslin, Joanna E. Bulkley, Kristina F. Booker, Mikaella Caruncho, James V. Davis, Sonia Deutsch, Beth Devine, Devan M. Duenas, Donna J. Eubanks, Heather Spencer Feigelson, Amanda S. Freed, Clay Greaney, Inga Gruß, Claudia Guerra, Boya Guo, Joan Holup, Jessica Ezzell Hunter, Chalinya L. Ingphakorn, Paige Jackson, Leah S. Karliner, Erin Keast, Sarah Knerr, Alyssa H. Koomas, Stephanie A. Kraft, Mi H. Lee, Robin Lee, Sandra Soo-Jin Lee, Hannah S. Lewis, Elizabeth G. Liles, Nangel M. Lindberg, Frances Lynch, Carmit K. McMullen, Elizabeth Medina, Kristin R. Muessig, C. Samuel Peterson, Angela R. Paolucci, Rosse Rodriguez Perez, Kathryn M. Porter, Chelese L. Ransom, Ana Reyes, Leslie S. Riddle, Sperry Robinson, Alan F. Rope, Emily Schield, Jennifer L. Schneider, Kelly J. Shipman, Britta N. Torgrimson-Ojerio, Meredith L. Vandermeer, Alexandra M. Varga, David L. Veenstra, W. Chris Whitebirch, Larissa Lee White
Publikováno v:
Genetics in medicine : official journal of the American College of Medical Genetics. 24(6)
This study aimed to evaluate the laboratory-related outcomes of participants who were offered genomic testing based on cancer family history risk assessment tools.Patients from clinics that serve populations with access barriers, who are screened at