Integration of stakeholder engagement from development to dissemination in genomic medicine research: Approaches and outcomes from the CSER Consortium

Autor: O’Daniel, Julianne M., Ackerman, Sara, Desrosiers, Lauren R., Rego, Shannon, Knight, Sara J., Mollison, Lonna, Byfield, Grace, Anderson, Katherine P., Danila, Maria I., Horowitz, Carol R., Joseph, Galen, Lamoure, Grace, Lindberg, Nangel M., McMullen, Carmit K., Mittendorf, Kathleen F., Ramos, Michelle A., Robinson, Mimsie, Sillari, Catherine, Madden, Ebony B.

Publikováno v: In Genetics in Medicine May 2022 24(5):1108-1119

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Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.

Autor: Gutierrez, Amanda M., Robinson, Jill O., Raesz-Martinez, Robin, Canfield, Isabel, Majumder, Mary A., Scollon, Sarah, Desrosiers, Lauren R., Hsu, Rebecca L., Allen-Rhoades, Wendy, Parsons, D. Williams, Plon, Sharon E., McGuire, Amy L., Malek, Janet

Publikováno v: Journal of Adolescent & Young Adult Oncology; Oct2023, Vol. 12 Issue 5, p773-781, 9p

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The motivation and process for developing a consortium-wide time and motion study to estimate resource implications of innovations in the use of genome sequencing to inform patient care.

Autor: Hoban HG; Institute for Human Genetics, University of California, San Francisco, California, USA., Yip TA; Institute for Human Genetics, University of California, San Francisco, California, USA., Chau JC; Division of Genomic Medicine, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA., Bensen JT; Department of Epidemiology, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA., Desrosiers LR; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA., Finnila CR; HudsonAlpha Institute for Biotechnology, Huntsville, Alabama, USA., Hindorff LA; Division of Genomic Medicine, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA., Kelly NR; Division of Pediatric Genetic Medicine, Department of Pediatrics, Children's Hospital at Montefiore and the Albert Einstein College of Medicine, Bronx, New York, USA., Lynch FL; Center for Health Research, Kaiser Permanente Northwest, Portland, Oregon, USA., Rolf BA; Division of Medical Genetics, Department of Medicine, University of Washington, Seattle, Washington, USA., Smith HS; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Wasserstein MP; Division of Pediatric Genetic Medicine, Department of Pediatrics, Children's Hospital at Montefiore and the Albert Einstein College of Medicine, Bronx, New York, USA., Hassmiller Lich K; Department of Health Policy and Management, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.

Publikováno v: Clinical and translational science [Clin Transl Sci] 2024 Jan; Vol. 17 (1), pp. e13635. Date of Electronic Publication: 2023 Dec 08.