Addressing pain in people living with cystic fibrosis: Cystic fibrosis foundation evidence-informed guidelines

Autor: Freedman, Steven D., Hatziagorou, Elpis, Hovater, Cade, Hunsberger, Joann B., Ladores, Sigrid, Lawson, Emily, Madej, Marcin, Millard, Jessica, Raffensperger, Kasey, Tallarico, Erin, Dellon, EP, Allada, G, Allgood, SJ, Georgiopoulos, AM, Goggin, JL, Hadjiliadis, D, Lowman, JD, Madge, S, Middour-Oxler, B, Muirhead, C, Noel, M, Wilson, P, Hempstead, SE, Faro, A, Kavalieratos, D

Publikováno v: In Journal of Cystic Fibrosis November 2024

Addressing pain in people living with cystic fibrosis: Cystic fibrosis foundation evidence-informed guidelines.

Autor: Dellon EP; Department of Pediatrics, Division of Pulmonology, University of North Carolina School of Medicine, Chapel Hill, NC, USA., Allada G; Department of Medicine, Division of Pulmonary and Critical Care Medicine, Oregon Health and Science University, Portland, Oregon, USA., Allgood SJ; Johns Hopkins University School of Nursing, Baltimore, MD, USA., Georgiopoulos AM; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, USA., Goggin JL; Pulmonary Service Line, UC San Diego Health, San Diego, CA, USA., Hadjiliadis D; Department of Medicine, Division of Pulmonary, Allergy, and Critical Care Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA., Lowman JD; Department of Physical Therapy and Adult Cystic Fibrosis Center, University of Alabama at Birmingham, Birmingham, AL, USA., Madge S; Adult Cystic Fibrosis Centre, Royal Brompton Hospital, London, UK., Middour-Oxler B; Department of Pediatrics, Emory University, and Children's Healthcare of Atlanta and Emory University Cystic Fibrosis Care Center, Atlanta, GA, USA., Muirhead C; Pediatric Cystic Fibrosis Center, Doernbecher Children's Hospital, Portland, Oregon, USA., Noel M; Department of Psychology, University of Calgary, and Alberta Children's Hospital Research Institute, Calgary, AB, Canada., Wilson P; Pharmacy Department, Nottingham University Hospitals NHS Trust, Nottingham, UK., Se H; Cystic Fibrosis Foundation, Bethesda, MD, USA., Faro A; Cystic Fibrosis Foundation, Bethesda, MD, USA., Kavalieratos D; Department of Family and Preventive Medicine, Division of Palliative Medicine, Emory University, Atlanta, GA, USA.

Publikováno v: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2024 Dec 06. Date of Electronic Publication: 2024 Dec 06.

Healthcare transition readiness of families of youth with cystic fibrosis during COVID-19: A correlational multicenter analysis.

Autor: Girdwood TC; University of North Carolina at Chapel Hill, School of Nursing, 120 North Medical Dr., Chapel Hill, NC 27599, USA.; Duke University, School of Nursing, 307 Trent Dr, Durham, NC 27710, USA., Kainz K; University of North Carolina at Chapel Hill, School of Social Work, 325 Pittsboro St Ste 3550, Chapel Hill, NC 27516, USA., Silva SG; Duke University, School of Nursing, 307 Trent Dr, Durham, NC 27710, USA., Goralski JL; University of North Carolina at Chapel Hill, School of Medicine, 321 South Columbia St., Chapel Hill, NC 27514, USA., de Ferris MED; University of North Carolina at Chapel Hill, School of Medicine, 321 South Columbia St., Chapel Hill, NC 27514, USA., Lynn MR; University of North Carolina at Chapel Hill, School of Nursing, 120 North Medical Dr., Chapel Hill, NC 27599, USA., Dellon EP; University of North Carolina at Chapel Hill, School of Medicine, 321 South Columbia St., Chapel Hill, NC 27514, USA., Nasr SZ; University of Michigan, Michigan Medicine, 1500 E Medical Center Dr, Ann Arbor, MI 48109, USA., Uluer A; Harvard Medical School, Boston Children's Hospital, 300 Longwood Avenue, Boston, MA 02115, USA., Toles MP; University of North Carolina at Chapel Hill, School of Nursing, 120 North Medical Dr., Chapel Hill, NC 27599, USA.

Publikováno v: Health care transitions [Health Care Transit] 2024 Jul 26; Vol. 2, pp. 100065. Date of Electronic Publication: 2024 Jul 26 (Print Publication: 2024).

Elevated creatine phosphokinase and rhabdomyolysis associated with elexacaftor/tezacaftor/ivacaftor use in cystic fibrosis.

Autor: McKinzie CJ; Department of Pharmacy, University of North Carolina Medical Center, Chapel Hill, North Carolina, USA., Kam CW; Department of Pharmacy, University of North Carolina Medical Center, Chapel Hill, North Carolina, USA., Jones MC; Department of Pharmacy, University of North Carolina Medical Center, Chapel Hill, North Carolina, USA., Gifford LB; Division of Pulmonary Diseases & Critical Care Medicine, University of North Carolina School of Medicine, Chapel Hill, North Carolina, USA., Loughlin CE; Division of Pulmonology, Department of Pediatrics, University of North Carolina School of Medicine, Chapel Hill, North Carolina, USA., Noah TL; Division of Pulmonology, Department of Pediatrics, University of North Carolina School of Medicine, Chapel Hill, North Carolina, USA., Shenoy VK; Division of Gastroenterology, Department of Pediatrics, University of North Carolina School of Medicine, Chapel Hill, North Carolina, USA., Dellon EP; Division of Pulmonology, Department of Pediatrics, University of North Carolina School of Medicine, Chapel Hill, North Carolina, USA.

Publikováno v: Pediatric pulmonology [Pediatr Pulmonol] 2024 Jun; Vol. 59 (6), pp. 1795-1797. Date of Electronic Publication: 2024 Mar 22.

Changes in fecal elastase-1 following initiation of CFTR modulator therapy in pediatric patients with cystic fibrosis.

Autor: Stephenson KG; Department of Nutrition, University of North Carolina Medical Center, 101 Manning Drive, Chapel Hill, NC 27514, United States. Electronic address: KimberlyEri.Stephenson@unchealth.unc.edu., Lingle AJ; Department of Pharmacy, Children's Mercy Kansas City, 2401 Gillham Road, Kansas City, MO 64108, United States., Baumberger KA; Department of Nutrition, University of North Carolina Medical Center, 101 Manning Drive, Chapel Hill, NC 27514, United States., Dellon EP; Division of Pediatric Pulmonology, University of North Carolina at Chapel Hill, 247 MacNider Building CB# 7217, 333 S. Columbia Street, Chapel Hill, NC 27599-7217, United States., Esther CR Jr; Division of Pediatric Pulmonology, University of North Carolina at Chapel Hill, 247 MacNider Building CB# 7217, 333 S. Columbia Street, Chapel Hill, NC 27599-7217, United States., Meier EM; Department of Pediatrics, Children's Mercy - Kansas City, 2401 Gillham Road, Kansas City, MO 64108, United States., Oermann CM; Department of Pediatrics, Children's Mercy - Kansas City, 2401 Gillham Road, Kansas City, MO 64108, United States., Shenoy VK; Division of Pediatric Gastroenterology, University of North Carolina, 247 MacNider Building CB# 7229, 333 S. Columbia Street, Chapel Hill, NC 27599-7229, United States., Smith NR; Department of Nutrition, Children's Hospital of Georgia, 1447 Harper Street, BP 3252, Augusta, GA 30912, United States., Wimmer NS; Division of Pediatric Pulmonology, Children's Hospital of Georgia, 1447 Harper Street, Augusta, GA 30912, United States., Duehlmeyer SR; Department of Pharmacy, Children's Mercy Kansas City, 2401 Gillham Road, Kansas City, MO 64108, United States., Kam CW; Department of Pharmacy, University of North Carolina Medical Center, 101 Manning Drive, CB 7600, Chapel Hill, NC 27514, United States., McKinzie CJ; Department of Pharmacy, University of North Carolina Medical Center, 101 Manning Drive, CB 7600, Chapel Hill, NC 27514, United States., Poisson MO; Department of Pharmacy, Children's Hospital of Georgia, 1120 15th Street, Augusta, GA 30912, United States., Elson EC; Department of Pharmacy, Children's Mercy Kansas City, 2401 Gillham Road, Kansas City, MO 64108, United States.

Publikováno v: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2023 Nov; Vol. 22 (6), pp. 996-1001. Date of Electronic Publication: 2023 Sep 26.