Fibrodysplasia ossificans progressiva in Brazil: challenges and strategies to create assistance and educational networks.

Autor: Zorzi AR; Center of Rare Diseases at Faculdade São Leopoldo Mandic (DoRa), R José Rocha Junqueira, 13, Campinas, SP, 13045-755, Brazil. alessandro.zorzi@slmandic.edu.br., Delai PR; Center of Rare Diseases at Faculdade São Leopoldo Mandic (DoRa), R José Rocha Junqueira, 13, Campinas, SP, 13045-755, Brazil., Rosa HLC; Faculdade São Leopoldo Mandic Medical School, Undergraduate Medical Program, Campinas, SP, Brazil., Brito WE; Center of Rare Diseases at Faculdade São Leopoldo Mandic (DoRa), R José Rocha Junqueira, 13, Campinas, SP, 13045-755, Brazil., Montalli VAM; Center of Rare Diseases at Faculdade São Leopoldo Mandic (DoRa), R José Rocha Junqueira, 13, Campinas, SP, 13045-755, Brazil., Napimoga JC; Center of Rare Diseases at Faculdade São Leopoldo Mandic (DoRa), R José Rocha Junqueira, 13, Campinas, SP, 13045-755, Brazil.; Faculdade São Leopoldo Mandic, Instituto São Leopoldo Mandic, Laboratory of the Neuroimmune Interface in Pain Research, Campinas, SP, Brazil., Napimoga MH; Center of Rare Diseases at Faculdade São Leopoldo Mandic (DoRa), R José Rocha Junqueira, 13, Campinas, SP, 13045-755, Brazil.; Faculdade São Leopoldo Mandic, Instituto São Leopoldo Mandic, Laboratory of the Neuroimmune Interface in Pain Research, Campinas, SP, Brazil., Nociti FH Jr; Center of Rare Diseases at Faculdade São Leopoldo Mandic (DoRa), R José Rocha Junqueira, 13, Campinas, SP, 13045-755, Brazil.; Undiagnosed Diseases Network International (UDNI - Brazil), Piracicaba, SP, Brazil.

Publikováno v: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2022 Sep 07; Vol. 17 (1), pp. 348. Date of Electronic Publication: 2022 Sep 07.